posted
I take 450mg NAC along with 1,500mg Vit. C to help the NAC be utilized by the body.
I also take a Vit. B complex, Samento, 30 drops per day, divided into two doses, 15 minutes before meals.
Omega 3's and Omega 6's are supposed to be helpful so I take fish oil caps and flax seed oil.
The other things I do are avoid stress, sugar and alcohol. I get fresh air and take naps. I get light exercise.
I take various probiotics, varying the kind. So far, no yeast problems and I've been on ABX for over 3 months, total.
I eat organic as much as possible, lots of vegetables, some fruits, some protein.
Posts: 19 | From Stamford, Connecticut | Registered: Apr 2008
| IP: Logged |
Clarissa
Frequent Contributor (1K+ posts)
Member # 4715
posted
My LLMD recommends Mesosilver and Xango Mangosteen.
Both of these products will build immune system and do some "killing" so herxes can be expected initially.
I herxed the first week on Mesosilver (2 tablespoons a day) and then started clearing and feeling better...felt like it was vacuuming up leftover debris.
I don't think I've herxed on the Mangosteen Juice (2 oz a day) but I stick to the alloted amount. It tastes so yummy that people drink too much and that's when the herxing happens!
posted
Thanks for great anwers, I will go shopping a lot of what you have recommended, the mesosilver sounds very promising.
Also interesting that you mention beeing in the sun, i think I actually herx if I stay in the sun for some time, I get nightsweats and extreme twitching, has anybody else noticed that?
Best to you all!
Posts: 347 | From sweden | Registered: Feb 2008
| IP: Logged |
Peacesoul
Unregistered
posted
I'm not a believer in Vitamins or suppliments at all. If one has a very good diet, then you're getting all the vitamins and sups you need.
It's like my ND says; the Chinese live long healthy lives and most of them just eat rice and fish. I do however, believe in herbs to boost the immune system like Olive Leaf, Apple cider vinegar and Oil or Oregano.
What I've learned (like you already stated) eating well, sleeping well and a lot and exercise are the best ways.
quote:Originally posted by Peacesoul: I'm not a believer in Vitamins or suppliments at all. If one has a very good diet, then you're getting all the vitamins and sups you need.
It's like my ND says; the Chinese live long healthy lives and most of them just eat rice and fish. I do however, believe in herbs to boost the immune system like Olive Leaf, Apple cider vinegar and Oil or Oregano.
What I've learned (like you already stated) eating well, sleeping well and a lot and exercise are the best ways.
Also, reduced or no stress.
Your statement is true but when you are infected with lyme and other infections, your cells are not absorbing much at all so intake has to increase. Just counting on food for vitamins and nutrients is not enough until the infection is gone.
The biofilm is the main culprit for this along with bartonella which takes the air supply right out of the cells.
IP: Logged |
Peacesoul
Unregistered
posted
quote:Originally posted by ByronSBell 2007: Your statement is true but when you are infected with lyme and other infections, your cells are not absorbing much at all so intake has to increase. Just counting on food for vitamins and nutrients is not enough until the infection is gone.
The biofilm is the main culprit for this along with bartonella which takes the air supply right out of the cells.
I've never heard of that. Do you have any studies I can read on that?
Also if true, then all you need to do is increase intake of food. Vitamins and sups rarely absorb properly in the system anyway and are nowhere near the quality that can be found in food.
Most people have clogged up colons that inhibit absorption of vits and sups.
Vits and sups are ok if someone does not or cannot eat. Otherwise they are a waste or money.
IP: Logged |
ByronSBell 2007
Unregistered
posted
quote:Originally posted by Peacesoul:
quote:Originally posted by ByronSBell 2007: Your statement is true but when you are infected with lyme and other infections, your cells are not absorbing much at all so intake has to increase. Just counting on food for vitamins and nutrients is not enough until the infection is gone.
The biofilm is the main culprit for this along with bartonella which takes the air supply right out of the cells.
I've never heard of that. Do you have any studies I can read on that?
Also if true, then all you need to do is increase intake of food. Vitamins and sups rarely absorb properly in the system anyway and are nowhere near the quality that can be found in food.
Most people have clogged up colons that inhibit absorption of vits and sups.
Vits and sups are ok if someone does not or cannot eat. Otherwise they are a waste or money.
Vitamins rarely absorb? Want to see all my tests and other patients tests that show improvements after taking supplements...
No where near the quality that can be found in food? Most supplements are taken from food...
Supplements are a waste of money?
Don't give out mis-information, it hurts new members here trying to learn.
IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
I think I don't have enough energy to even process the word "Boost" so I tend more toward "Support" instead.
Most LLMDs have a list of essential supplements. Beyond that there are many but it would be good to have a consult to see just what systems - for you - might need a little more support.
Other than whatever you use to address infections, here is some of what I've found helpful:
If the lining of your stomach is tender, that would be the first thing to address. Slippery Elm powder helps me. Mix a spoonful in a little cool water and then add warm water and drink.
DGL (licorice with the excitatory element glyz. removed) is fabulous, too, for mucous membrane of mouth or GI tract.
Liver support by way of milk thistle or other protective herbs helps many here in regards to protecting the liver from the toxins of lyme and metabolizing medicines and environmental chemicals. The more color in your vegetables and fruits the better. Dark berries are lowest in sugar of all the fruits and their colors really work for us.
Adrenal / endocrine support is helpful for most as lyme really hits that system. Gentle exercise like walking/strolling and Tai Chi or Qi Gong can be very good. Stretching in or out of a warm pool can be wonderful.
Herbs that typically help the endocrine system (HPA axis) - and support energy - include: Ashwagandha; Cordyceps; Siberian Gingseng (not Korean ginseng as is too stimulating for those with deficiency disorders); and Rhodiola (but start low and slow as it can be too stimulating for some).
Brain support: -
The Better Brain Book By David Perlmutter, MD, FACN and Carol Colman
at the bottom of this page, you can see a video of Dr. Perlmutter on an "Oprah" program. David Perlmutter, MD, FACN is a Board-Certified Neurologist and Fellow of the American College of Nutrition . . . Dr. Perlmutter was awarded the 2002 Linus Pauling Award for his pioneering work in innovative approaches to neurological disorders. . . .
* Coenzyme Q-10 measurably increases the efficiency of cellular energy production, as demonstrated in studies performed at the Massachusetts General Hospital.1 In addition, it serves as a potent brain antioxidant. These effects explain why major institutions worldwide are vigorously evaluating coenzyme Q10 as a therapeutic aid in brain disorders.
* Alpha Lipoic Acid provides powerful antioxidant action and regenerates other important brain antioxidants including vitamins E, C, and glutathione. Unlike other antioxidants, alpha lipoic acid is both fat- and water-soluble, greatly enhancing its ability to be absorbed from the gut and penetrate into the brain.2
* N-Acetyl-L-Cysteine (NAC) dramatically increases the body's production of glutathione, one of the brain's most important antioxidants. NAC itself is a potent antioxidant shown to reduce formation of nitric oxide, a free radical implicated for a causative role in Parkinson's disease, Alzheimer's disease, and other neurodegenerative disorders.3
* Acetyl-L-Carnitine, like coenzyme Q-10, enhances neuronal energy production by transporting fuel sources into the mitochondria -- the energy producing machinery of the neuron. This particularly benefits damaged brain neurons, which are characterized by decreased energy production.
In addition, acetyl-L-carnitine acts as an effective antioxidant and been demonstrated to protect laboratory animals from developing parkinsonism when they are exposed to chemicals known to induce the condition.4 A report in a recent issue of Neurology found that acetyl-L-carnitine profoundly reduces the rate of progression of Alzheimer's disease in younger patients.5
* Vitamin E exhibits profound ability to limit free radical damage in the brain -- the likely explanation of why it outperformed a highly touted "Alzheimer's drug" in clinical trials reported in the New England Journal of Medicine.6
Diets rich in Vitamin E have been shown to reduce the risk of Parkinson's disease by an incredible 61%,7 and to dramatically slow disease progression in already-diagnosed patients when supplemented with vitamin C.8
* Gingko biloba, one of the most extensively studied nutritional supplements for neurodegenerative conditions, directly improves brain metabolism, increases brain blood flow, and provides antioxidant action.
In a placebo-controlled, double-blind randomized trial published in the Journal of the American Medical Association, Gingko biloba not only stabilized Alzheimer's disease, but in addition, many subjects demonstrated an actual improvement noted in various standardized psychological tests.9
* Vitamin D may have even greater ability than vitamin E to quench brain free radicals, as described in several reports. Deficiencies of vitamin D have been found in cases of Parkinson's Disease, Alzheimer's Disease, and Multiple Sclerosis.10
* Vitamin B12 (Methylcobalamin) is critical for maintaining myelin, the protective coat surrounding each neuron. As with Vitamin D, Vitamin B12 deficiency is associated with neurodegenerative conditions.
* Phosphatidylserine produces marked memory and learning improvements in demented patients, according to research conducted at Stanford University.11 Like acetyl-L-carnitine and coenzyme Q-10, phosphatidylserine plays an important role in neuronal energy production and chemical communication.
===========
another book that explains all the body systems and has information on many supplements is
quote:Originally posted by ByronSBell 2007: Want to see all my tests and other patients tests that show improvements after taking supplements...
No where near the quality that can be found in food? Most supplements are taken from food...
Supplements are a waste of money?
Don't give out mis-information, it hurts new members here trying to learn.
Yes, if you have any studies backing this up, I would like to see that. And I'm not giving out mis information, It's called my opinion and I'm adamant about it. I think members are smart enough to desipher what info they want to take in.
A significant number of the vitamins you will find on the pharmacy shelves these days are made synthetically through chemical processes, rather than derived directly from plants or other materials So be cautious of your misinformation
IP: Logged |
ByronSBell 2007
Unregistered
posted
quote:Originally posted by Peacesoul:
quote:Originally posted by ByronSBell 2007: Want to see all my tests and other patients tests that show improvements after taking supplements...
No where near the quality that can be found in food? Most supplements are taken from food...
Supplements are a waste of money?
Don't give out mis-information, it hurts new members here trying to learn.
Yes, if you have any studies backing this up, I would like to see that. And I'm not giving out mis information, It's called my opinion and I'm adamant about it. I think members are smart enough to desipher what info they want to take in.
A significant number of the vitamins you will find on the pharmacy shelves these days are made synthetically through chemical processes, rather than derived directly from plants or other materials So be cautious of your misinformation
An opinion would be, "I think supplements are worthless, eat large amounts of food instead."
You stated, "Supplements are a waste of money."
I have not misinformed anyone on here and everyone would agree. Don't lie to make yourself look good. Like you said, "our memebers are smart enough to decipher"
IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Sure, many of the vitamins on the shelves are not the best quality as they have been exposed to heat and sometimes use additives or less than the best bio-available forms.
If someone is doing fine without vitamins or any supplements, great. Good food is most important. However, for those who need additional nutritional support, it can be overwhelming. It does require some study, but just take it slow.
Many here have found excellent products and all naturopathic physicians and licensed acupuncturists can teach patients how to shop for the best quality and, most importantly, which items are most necessary specifically for them at this point in time.
There is a wealth of information from many researchers about the quality and benefits - and cautions - of alternative medical support.
While opinions may vary, the proof is out there in thousands of works. Here's one place to begin for an overview.
However, keep in mind that some studies have used the wrong source of a certain vitamin and, therefore, the outcomes have been skewed (i.e. a synthetic form of Vitamin A or Vitamin E is not the same as the natural forms such as beta carotene or alpha-top....).
So, as you search, keep in mind the source and the control groups. Do we know that people in studies ate well or went home via McBurger's and McFry's?
quote:Originally posted by ByronSBell 2007: I have not misinformed anyone on here and everyone would agree. Don't lie to make yourself look good. Like you said, "our memebers are smart enough to decipher"
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
swedish lyme sufferer - you also asked about saunas.
As you are in Sweden (yet not to make this a cliche) my guess is that, per capita, you have more saunas there than in the US.
Your regular/conventional saunas may not be as hot as those elsewhere, however, the high heat of most saunas (as in the US) may be too much of a stress to the heart for patients with infections and depleted endocrine systems.
To try to "kill" the (lyme) borrelia spirochete requires a temperature far above what humans can tolerate, so the help of sauna therapy is more from the aspect of sweating and helping get circulation going and aided the body to eliminate toxins from infections, medicines, spent foods and the environment (including heavy metals which seem higher in lyme patients).
Low heat (FIR) far infrared saunas have been helping many. But most cannot afford these. If you have access to one, still start slow and low.
From what I've read - and experienced - from regular hot saunas I'd say to be sure to just stay a short time and drink water (not cold water, though) throughout. Attention to electrolytes is vital regardless of the type of sauna. And be sure blood sugar level is not too low (or too high if you tend that direction).
Keeping a wet towel on your head may keep your brain from getting too hot. One over your shoulders/chest may help, too.
(Years ago, pre-lyme, when I would do sauna, I had to put cotton balls in my ears to keep them from burning inside.)
At the slightest feeling of unease, get out, but just a few minutes at first is key. These are just my suggestions. It's best, too, to ask your doctor first. But be aware that some gung-ho types don't understand the body changed by lyme.
The practice of a sudden shift from a hot sauna to an ice bath or shower, in my opinion, might be dangerous to anyone in a weakened condition as it is a huge shock to a heart/ body. Be gentle and kind in all manners.
(I was looking for the impact of high heat/stress and infections but that search lead down another path. I know that aerobic exercise during certain viral illnesses can damage the heart and, in some cases, can be fatal [from the writings of Dr. Richard Bruno].
Therefore, I'd wonder if cardiac and brain stress from an extended time of high heat might similarly be of concern for patients with a mix of infections and, specifically, with a spirochetal infection.
How do spirochetes - in all forms - react to the variable of heat in a human? It may just be a matter of degrees. I'd sure like to read work by a lyme scientist or doctor regarding what happens in high heat, though. And, then, understand how our bodies deal with that.
-
[ 26. May 2008, 03:55 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
ByronSBell 2007
Unregistered
posted
quote:Originally posted by Peacesoul:
quote:Originally posted by ByronSBell 2007: I have not misinformed anyone on here and everyone would agree. Don't lie to make yourself look good. Like you said, "our memebers are smart enough to decipher"
I have gone a couple of times and when I regulate the temp up to 100 degrees Celcius (temp of boiling water) I get a huge herx afterwards and fell really crappy. Maybe it is a too strong herx, but it is really a herx, that I can tell, almost as intense as IV Abx herxes.
So I think I will try to continue this. My LLMD says it is good, the blood flows more easily in the heat so the abx you have in the blood reaches thos small capillaires where the bb hides out.
Thank you again for good research links!
(no I will not go in the ice water, that is what finish people do, but the are a little more wild than us swedes ;-)
Posts: 347 | From sweden | Registered: Feb 2008
| IP: Logged |
luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Peacesoul said:
"A significant number of the vitamins you will find on the pharmacy shelves these days are made synthetically through chemical processes, rather than derived directly from plants or other materials So be cautious of your misinformation"
A certainty if you buy them at Wal-Mart or other conventional stores just trying to cash in on the latest fad.
Peacesoul, my LLMD does not agree with yours. In fact, two wonderful doctors I have worked with had me on supplements where my bloodwork showed I was deficient.
Very few sick people are absorbing the nutrients in their food and lets be honest. Most people don't even come close to eating a healthy, balanced diet.
I'm a huge fan of eating right, but if I don't take extra vitamin C my blood pressure rises. I trust my doctor's wisdom when she advises me to take CoQ10, Vit D, magnesium, etc.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
| IP: Logged |
METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
quote: you guys?!
Come on now, I don't want to have to spank you. *wink wink*. But seriously, this isn't the place. Now hug and make up, or I'll beat you both within an inch of your life.
If I decide to get really mean I'll hug and kiss you both, and you don't want that, do you? HUH? DO YOU?!
*teehee*
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
Some vitamins/minerals/supplements are definitely better that others. I agree that most of the stuff on the shelves at Wal-Mart isn't easily absorbed. The products my LLMD recommended for me told me that on somekind of scale, I forget what it's called, (I believe that has to do w/bio-availability) that Centrum is a 7 and the ones I'm on now are a 96. So some are definitely better absorbed than others.
Posts: 2541 | From Northeast | Registered: Jan 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic