Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
Hi guys, it's been a bit, but I need some help. My mom has been put on Rifamin to stop an infection on her face. It makes an open hole in her face. She has had it before and they believe it to be micobacterium which she aquired many, many years ago from a sea urchin sting.
They put her on Rifampin, I didn't know, and I just spoke to her, she sounds horrible. She is herxing something awful, she is in extreme pain, and very week. Her health is already pretty bad, she has been misdfiagnosed with MS, and as later found to be CDC Lyme positive.
My question is, can she back down on Rifampin like she can some of the other abx?
And what is the recipe for the detoxifier, the one with the lemon juice and olive oil?
I am worried about her and she lives in Hawaii, I am on the mainland and can't help her.
Posts: 1251 | From california | Registered: Apr 2005
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ByronSBell 2007
Unregistered
posted
Lemon juice and olive oil is good.
Get plenty of fluids. Get the bowels moving. Get rest. Take benadryl. Take alieve.
Thats about it for stuff you can buy. There are other things doctors can do but this may be hard at this time.
All you can say after those suggestions is to grit it out.
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Alv
Unregistered
posted
She probably is killing bart also .But she does not know.Also she need to have it taken with another drug so it does not get resistance.
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ByronSBell 2007
Unregistered
posted
quote:Originally posted by Alv: She probably is killing bart also .But she does not know.Also she need to have it taken with another drug so it does not get resistance.
The bart itself wont build immun eto the rifampin, it will start producing biofilm to protext itself and they go into the red blood cells.
Heparin will be needed along with some certain supplements.
But rigt now we are focused on the herx in this topic.
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posted
Sure, she can back down on it, but will the bacteria be killed? It will make it harder to do so!
Rifampin nearly killed me, so I understand your fear. Maybe she needs to call her dr and see if there's another abx she can take instead...??
Metallic Blue has the recipe for the lemon oil drink.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
Jelly,
I had the worst Bart herxes on Rifampin - truly something from a horror movie. My Bart is much worse than my Lyme so that explains it.
I had to start on a less-than-pediatric dose, made by a compounding pharmacy, and even then had horrific neurological herxing. I ramped up extremely slowly over weeks, and still only made it up to half a usual dose for Bart.
Not the ideal way to treat Bart, but it's all I could do.
A good friend of mine recently ended up in the ER in my area (I think you and I live near each other) with heart attack symptoms, was hospitalized, all due to Rifampin - and a probable herx according to her LLMD. So please do not let the docs push your mom on the high dosage with this drug!
Even one of the nurses that works in my internist's office - a non-Lymie - had to take Rifampin for something else and she said it made her completely incoherent and unable to form sentences. So it's a tough drug just in general.
Yes, I would think she could back down - there were days I had to cut my dose in half or skip a dose for a day. Rifampin is a strange drug in that one is not supposed to stop and start it or severe flu-like symptoms or worse can happen. So it's better to back down then to stop and start a lot.
LymeBytes posted recently about her son dramatically reducing a horrible Flagyl herx using Activated Charcoal.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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posted
i had terrible bart, and rifampin helped tremendously. but the herxes were horrible
I had to start out on half the dose for the first two weeks. I also pulsed it for the first 2 months, taking it for five days, then zithro for 2
the first 2 days on the rifampin were always bad, i had horrible burning pain all over my body. it would subside by day 4, and then I woudl be ok and the cycle would start over
it was horrible but worth it
Posts: 615 | From maryland | Registered: Oct 2007
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posted
I have been on Rifampin for about 6 mos...and feel as though I have been herxing the entire time. (This abx was added to the other 2 I am still taking)
Even with the pain from this herx, I am still in a better place than where I was 6 mos ago.("seizure like" activity, blacking out, severe vertigo, vision loss) My comfort here is 1. I probably do have Bart (all testing has been neg.)and 2.I am killing the little buggers!
Jelly, I was also misdiagnosed with MS for most of my adult life.
If you find the recipe, can you send it to me? I have been having a difficult time finding what I need from searches. I know that the problem with my search difficulty is me and my lyme filled brain.
Sorry that I was not much help to you. Prayers being sent for your Mom.
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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posted
I have been on Rifampin for about 6 mos...and feel as though I have been herxing the entire time. (This abx was added to the other 2 I am still taking)
Even with the pain from this herx, I am still in a better place than where I was 6 mos ago.("seizure like" activity, blacking out, severe vertigo, vision loss) My comfort here is 1. I probably do have Bart (all testing has been neg.)and 2.I am killing the little buggers!
Jelly, I was also misdiagnosed with MS for most of my adult life.
If you find the recipe, can you send it to me? I have been having a difficult time finding what I need from searches. I know that the problem with my search difficulty is me and my lyme filled brain.
Sorry that I was not much help to you. Prayers being sent for your Mom.
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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posted
I have been on Rifampin for about 6 mos...and feel as though I have been herxing the entire time. (This abx was added to the other 2 I am still taking)
Even with the pain from this herx, I am still in a better place than where I was 6 mos ago.("seizure like" activity, blacking out, severe vertigo, vision loss) My comfort here is 1. I probably do have Bart (all testing has been neg.)and 2.I am killing the little buggers!
Jelly, I was also misdiagnosed with MS for most of my adult life.
If you find the recipe, can you send it to me? I have been having a difficult time finding what I need from searches. I know that the problem with my search difficulty is me and my lyme filled brain.
Sorry that I was not much help to you. Prayers being sent for your Mom.
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Her best bet is to stop treatment all together, wait until the symptoms settle down for a day or two. If her doctor gives her the "ok" to do that, chances are Activated Charcoal would be more effective than anything else for a severe reaction like that. It must be taken 2 hr away from other medications and before meals. It must be taken "alone."
Don't forget that blood work must be done while using Rifampin. Every 2 weeks preferably to monitor white and red blood counts.
The Lemon Olive formula probably isn't the best approach in my opinion for this particular situation (It's not meant for acute reactions, but rather a daily detox), but here it is:
Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
Thank you guys for all of your help, I actually feel even more worried hearing your experiences. My mom is 70 and this worries me sick.
I will recommend the charcol, what about bentonite, does that work at all?
Posts: 1251 | From california | Registered: Apr 2005
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Yes, bentonite clay is effective, though Charcoal is cheaper and more effective if I'm not mistaken. Make sure she's taking in fiber, whether supplemented or in vegetables or fruit. This helps remove everything.
Constipation is a consequence sometimes of using those supplements. Fiber will also help remove the toxins. Water should be consumed, preferably plain or with lemon. You don't want mineral waters binding to these detoxifying agents.
The doctor may not have a problem with also recommending Magnesium. 500mg to 1,000mg will produce a laxative effect in most people
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
JB - just thinking about your mom, is she any better?
MB - thank you for the recipe
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
One important note. Rifampin is one of those drugs that apparently is not ok to pulse, so stopping and starting over and over is not an option based on what I've been told.
This is something that needs to be confirmed by her own doctor if that is the route she chooses to take.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
I spoke with my mom yesterday, and she sounded a little better, more coherent than the day before. She knew I called the day before, but couldn't remember much of our short conversation.
She did tell me yesterday that she had also take an amoxycyllan with the Rifampin, on the first day I spoke with her. She has a perscrip for Amoxy she takes as a maintenence for the lyme, which was prescribed by a LLMD several years ago.
I don't know if that is what made her so sick or what, but she said she wasn't going to do it again. I will call her in a few hours to see how she is feeling today and I will let you know later.
She has been having a hard time getting food and enough fluids because she has been so weak. My SNL has brought her food which she loves, but my SNL is Puerto Rican and cooks some spicy food which is not setting well with my mom right now. But, boy can she cook!
Thank you for your concern, I hate her living so far away and not having anyone who understands what is happening. My brother is the only one who does not have symptoms of Lyme, so just doesn't get it.
I'll let you know how she is later.
Posts: 1251 | From california | Registered: Apr 2005
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
Hi, yes I did post about Activated Charcoal recently...
My son was so sick, hallucinating, tremor, pain, nausea so severe, he wouldn't allow me to get near him, he didn't want paramedics because his skin hurt and didn't want anyone touching him. I was freaked out. I was ready to take him to the hospital so I contacted our LLMD, he told me to run out and buy A/C...I thought this was a joke!! And to be honest I was really angry - like some OTC supplement was going to save my kid! Well....
Jokes on me. I am not kidding, within hours there was a difference. Within 4 days I swear he was a new person.
I tried it when I felt nauseated, toxic and sick and foggy - bam - within hours I felt great.
Several other lyme patients I know now have tried it at my urging...worked for everyone of them.
An A/C company recently contacted me after reading my "article" at my site and wants to use my "testimonial" that it works for lyme herxing.
I have studied Lyme pretty much non-stop for over 2 years and can't believe I never came across this. This blows chitosan and cholestyramine away in my opinion, without worry about it absorbing nutrients. Please read the links in the article below!
There are rules to using it. Do not use 2 hours before or after any medications.
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