posted
I'm doing a 48 hour ambulatory EEG. Just got all hooked up around 12:20pm today and I'm miserable already.
I'm pretty spacey right now, so forgive me. I've got a question, though.
What are the sx differences in strokes, TIA's and seizures? I don't know what the hell is going on with me me, but any input would be helpful for me to understand all of this.
I've got an MRI shcduled for Thursday that I need to change now, due to the timing of this EEG. I hate this..........
When I got hooked up to the EEG stuff and had to breathe fast and hard to make sure he had it all hooked correctely to read, I almost LOST it.
I started getting dizzy, numb and clammy in my hamds, my chest hurt, my left shoulder bblade even hurt. They were misting me with water and blowing a fan on me. The doctor told me I was hyper-ventilating.
I was crying, shaking and then I told him that his equiipment was working FINE. He reassured me that I was going to be okay and that he wouldn't let anything happen to me. He stopped the "equipment test" and sent me home with a very detailed journal to keep and wires all over me.......
I'm just wondering what the differences are in these strokes, TIA's and seizures. I think I've had both seizures and TIA's. I'm just so sick of tests.
Any advice or information that could help me get tjhrough this? I'm so loopy right now from whatever the heck is happeing in my brain, I should go lay down. I hope I don't trip or run into a wall on the way.......which I usually do.
I feel drunk or something right now. This is not okay.
Thanks for putting up with my rmabling post, and thanks for any feedbajkc.
terri3boys
Posts: 268 | From Texas | Registered: Aug 2007
| IP: Logged |
posted
Thanks, that's pretty much what I thought the difference was. It seems as though my doc thinks I had a TIA about 2 weeks ago, but I know that I've had "little" seizures before.
Strokes run on my dad's maternal side of the family and that's what worries me. I've been on Neurontin for at least 10 years for the mini-seizures that are "electrical mis-fires of neurotransmitters," so I know all about that.
These other things I'm having are different in nature.........I've never had the "who am I, where am I, what am I doing, what day is it" type thing. Or the slurred, slowed, labored speech to this extent.
I don't know. It may be all the same thing. We'll see when we get these tests done, I guess. Who knows?
Thanks for your confirmation of the diffferences. I'm really going to lay down know -------- if I can manage not to get tangled in all of these wires and electrodes!
Take care, terri3boys
Posts: 268 | From Texas | Registered: Aug 2007
| IP: Logged |
tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I really don't have answers to your questions, but before my diagnosis and they were still trying to figure out what was going on in my system, they gave me an EEG.
At no time did they do all that they seem to have done to you, when trying to see if the machine was working????????? That would be distressing.
For me, the only part of the test that seemed to set me off was when they flashed the lights. I walked out of there disoriented and a raging headache, but nothing to the degree you are discussing and at the time, I wasn't even blaming the test, but whatever was going on with me since that could happen even without the test.
But results in my case said I was having "mini seizures" and that he felt I had "migraine disease". I don't doubt I may have some issues with these two, but never knew why it was going on along with the neuroglogical issues that they didn't address.
In any case, do keep us posted on how the results come out and get some sleep. It's frustrating when all the testing has us knocked down for the count. Good luck.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
| IP: Logged |
bettyg
Unregistered
posted
used search, and typed in stroke symptoms; many things gave up, but from what i read of 12 this looked the best to pass onto you vs. "stroke" being mentioned once; no explanation.
from david1097....
If you recovered quickly, you may have had a transient ischemic attack (TIA).
This happens when the blood flow gets temporarily blocked due to a temporary obstruction that gets cleared out after a few seconds or minutes, the same as the duration of the stroke like symptoms.
It it considered as a warning sign for future full blown stroke. If you have not already, you might want to look it up on the net (ie e-medicine.com). ***************************
IP: Logged |
posted
Thanks for your responses. Yes, this thing is recording.......I had to chnge the batteries exactly 24 hours after they began it.
THAT was strressful, waiting on the light to come back on to assure it started recording! Then I couln't figure out how to put the thing back into the case with all of these wires hooked all over me.
I should have been recorded DURING that time of distress!!! I don't know if I like doing this at home. I don't want to screw it up. I can't wait to get this junk off of me ----- it feels like a bowling ball is strapped on my side with a bunch of wires hooked up everywhere.
I'll do some more research later. Kinda feeling funky again. Need to go.
thanks again ~~~ terri3boys & a bowling ball
Posts: 268 | From Texas | Registered: Aug 2007
| IP: Logged |
posted
My daughter spent about 5 days in the hospital tethered to a wall while they did a video eeg.
She had just enough length on the wires to go to the bathroom and stand in front of the door. They would come in 2 or 3 times a day to push the electrodes down that were coming loose.
It was not fun for her or me. She had lots of anxiety.
She was diagnoised with pseudo seizures. They look and feel like seizures, but did not show up electrically. They would just last a few seconds, but she would not know where she was or what had happened even though she knew when she was going to have one and could lay down.
The doctor who did the test was not lyme friendly and thought it was emotional. Her psychiatrist did not think they were emotional. The lyme doctor just said some patients have pseudo seizures. She had about 3 while she was under for a pain procedure and that doctor nearly freaked.
She hasn't had one for a couple of months now. This may not help you, but if you don't get an absolute diagnosis, don't be discouraged. I think changing her protocol and focusing on detoxing was key to my daughter's improvement
Posts: 177 | From God's Grace | Registered: Apr 2007
| IP: Logged |
posted
Terri, I wanted you to know that you are NOT alone. I am going thru this very same thing.
Back before I got another Lyme Diagnosis, they were testing me for MS and other things. I was having what I could only find out digging in the internet and talking to some EMT's were TIA's. It was really scarey. BEsides brain fog and forgetfulness, up until last year, I hadn't had neurosymptoms to thjat extent.
Then earllier this year, after starting treatment from a LLMD, I have developed 3 types of seizures- atonic, myoclonic? and 2 full blown grand mals....not fun.
Last sunday for church, I looked like I had parkinesons....I had seized off and on all night long besides being on nuerotin and klonopin and after taking them n the AM, at church, I could feel myself start to go into a seizure...stiffening and jerking but never wetn fully into one but my speech was slurred and stuttered, my brain kept skipping and I couldn't remember what I'd said, my right arm/hand and my right side of my face kept twitching to the extent that some were really concerned. DH had to lift me into the bathroom as our bathroom doors at churchare too narrow for my wheelchair. In the process, i broke my glasses and then, I couldn' see clearly! What a day. Since then, some improvement has come back to my legsbut with it, incredible pain.... like you wouldn't believe....not sure what is prefereable, not being able to put any weight down on shaky legs that won't hold me or having some ability to stand but the pain is horrendous!
Anyways honey, you are not alone. I have not had any of those test and most likely won't because we have no insurance. I'm hoping dr C wll help me and not send me eleswhere...litereally he is my last hope besides prayer.
Blessings and hugs, Sister KImberly
Posts: 41 | From Brookfield, MO | Registered: Jan 2008
| IP: Logged |
posted
Terri, I wanted you to know that you are NOT alone. I am going thru this very same thing.
Back before I got another Lyme Diagnosis, they were testing me for MS and other things. I was having what I could only find out digging in the internet and talking to some EMT's were TIA's. It was really scarey. BEsides brain fog and forgetfulness, up until last year, I hadn't had neurosymptoms to thjat extent.
Then earllier this year, after starting treatment from a LLMD, I have developed 3 types of seizures- atonic, myoclonic? and 2 full blown grand mals....not fun.
Last sunday for church, I looked like I had parkinesons....I had seized off and on all night long besides being on nuerotin and klonopin and after taking them n the AM, at church, I could feel myself start to go into a seizure...stiffening and jerking but never wetn fully into one but my speech was slurred and stuttered, my brain kept skipping and I couldn't remember what I'd said, my right arm/hand and my right side of my face kept twitching to the extent that some were really concerned. DH had to lift me into the bathroom as our bathroom doors at churchare too narrow for my wheelchair. In the process, i broke my glasses and then, I couldn' see clearly! What a day. Since then, some improvement has come back to my legsbut with it, incredible pain.... like you wouldn't believe....not sure what is prefereable, not being able to put any weight down on shaky legs that won't hold me or having some ability to stand but the pain is horrendous!
Anyways honey, you are not alone. I have not had any of those test and most likely won't because we have no insurance. I'm hoping dr C wll help me and not send me eleswhere...litereally he is my last hope besides prayer.
Blessings and hugs, Sister KImberly
Posts: 41 | From Brookfield, MO | Registered: Jan 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[dizzy]](graemlins/dizzy.gif)
Printer-friendly view of this topic