I'm bringing this up again, in hopes for a response.
I also thought that adding a list of symptoms would be helpful.
In Feb, March and April of last year I had lingering flu like symptoms, after which i was very tired all the time, very hard to stay awake at mid-day.
Then my hands started to feel swollen, was hard to make a fist, couldn't even come close to getting my wedding ring on.
Weight gain, despite eating 1000 cals a day or less. (20 lbs in a year, right after I had just lost it from having my second child) At age 30, I weighed 105, now at 41 I weigh close to 160, which is what I weighed 9 mos. pregnant.
Joint pain in legs elbows and fingers. (I have had knee pain intermittantly since falling while rollerblading in 1994, I often limp due to pain in winter).
Sinusy headaches, ear ache.
Feeling kind of foggy, like you do when you have a head cold.
Taking wrong turns while driving, when I normally have an excellent sense of direction.
Sweating at night, although I normally don't sweat. (Starting in high school I would frequently pass out from heat exhaustion, my body just wouldn't sweat to bring down its own temp.)
Sore throats.
Loud noises HURT. (like my son yelling, which he is prone to doing).
I sometimes get snappy (much more easily ticked off), where I didn't normally have much of a temper.
Ringing in head at night.
Sharp pains like I'm being bitten by a large bug with teeth.
The sensation that something is crawling on me.
Some twitching in my right eye (not often though) and the same eye at times feels like its getting conjunctivitis.
And of course headaches.
Light sensativity, for as long as I can remember.
I think that's most of them. I have only ever seen a tick once in my life, in 1995 when I pulled one of my arm after returning from a local park.
It was attached for 2 hours or less, came out whole and alive, and I do not recall getting any symptoms afterwards, although I must admit that I did not know a single symptom of Lyme until after my son was diagnosed a year ago.
I have lived in NJ for most of my life, and played in the woods often as a child.
If anyone out there has words of wisdom to offer, I would love to hear from you.
I hope you get more responses here. You have been so supportive to people who post here, it is your turn now.
Wishing you the best,
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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posted
where and what tests did you have run? I am thinking I need more testing as my initial co's came back negative but feel like we are missing something too.
I suspect bart and potential myco. More bart though.
I have been treating with rulide and bactrim and the herxes were hard. They say this hits bart and lyme. Dont know about myco though.
Hang in there...sounds like your situation is very overwhelming....I know for me it seems like I can see the light at the end of the tunnel some days
then the next it just seems so far away and dark.....
cj
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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also does bicillin hit bart?? if i have already asked this sorry i simply cannot recall!
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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The tests were done at MDL. I see the doc on Wed. for the Lyme results, until then she has me taking cats claw.
I know that with our son, his symptoms got steadily worse for the first few months of treatment, then slowly but steadily got better, I'm assuming that I have the same to look forward to.
I also don't know what the implications are for having not one but two versions of bart running wild in me are. (Has anyone else tested positive for quintana?)
Anyway, thank you for responding, any little bit helps as I try to gear up for what should be an, uh, interesting(??) summer exerience.
Take care, kp
Posts: 394 | From tinton falls nj | Registered: Jul 2007
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