tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I've been feeling unattached, dizzy and spacy lately but keep trying to push through it. Was doing the laundry but when carrying the basket, I'm not even sure what happened but I must have fallen and decided to sleep it off.
Not sure how long I was there, but my husband was yelling at me that this wasn't a place to sleep and I think he's just reaching a breaking point. Where do people go to give their family a break.
I have a huge knot on the side of my head next to my eye and doing ice, but what would cause me to just not even really recall what actually happened. He did carry me back to bed and I slept more but the knot is bigger. Not going to doctor since I'm feeling better other than it the lump is very tender.
Could this be medication related, herx related or am I just plain losing my mind? See my LLMD on Monday and will see what the heck is going on since I was making such good ground but I'm so messed up lately and I wish there was a rehab place to go to give your family a break.
I think being a caretaker is harder than the lyme since I don't even know what is going on most of the time anymore. This after 19 months of treatment? What is going on?
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Maybe you passed out????
You said you had been dizzy. Hows ur blood pressure?
Also maybe when you fell you hit your head in a way that effected your memory of what happened??? maybe you have a concusion ???
- just some thoughts from a fellow lyme (and babs) patient
Are you being treated for babs now? I only ask because i think for me the dizzy and lightheadness are babs related and they seem to always get worse when i herx... and for me babs herxes have been much worse than the lyme herxes.
hubby called saying he needed help; yelled back...i'm on my way.
there he was lying on the FLOOR spread out. with his advanced parkinson's, severe tremors, and NOT being stable, took 15-20 minutes to get him up.
i grabbed his pantlegs at bottom and dragged him with his using his arms to push 4-5 times where he could eventually work with a livingroom chair to eventually get on his knees, and up.
i was so worried.
last week ended his amandyine tremor pills, and strictly L DOPA parkinson's meds;
he sweats PROFUSELY non-stop with any efffort in doing anything;
causes temper flare ups and he's not like that...
i put a call into his neurologist; they get back tomorrow and will call! terrible side effects.
he also is UNDIAGNOSED LYME since my 1st llmd didn't know how to read IGENEX's western blot igm and igg results.
best wishes cathy on finding the CAUSE of this for you!
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
I used to pass out or have drop seizures all the time.
I'd usually recall the instant before though, feeling faint or sometimes like the elevator floor suddenly stopping sudden and short.
This could be low blood pressure, low blood sugar, inner ear/middle ear (balance) related. Please do tell your doctor and examine what might have caused this. Perhaps no need for a huge workup, but if you can think back to what you ate, or didn't, how you felt earlier that day, etc. it might help.
Did you look suddenly up or down or was head at a strained angle prior to event?
Check your meds and over the counter products for anything that might lower blood pressure, produce vertigo, or lower blood sugar - or raise it.
It might be good to get a EEG and perhaps some sort of scan of your head as well as and CT of vestibular area w/ and IAC - interior auditory canals (CT better than MRI for that).
You might also ask your doctor what to do if this happens again. Anti-inflammatory, wise, especially. I take an arnica 200 homeopathic and that helps stop swelling in my head and stops bruises.
This might have just been a blimp on the screen and won't bother you again, still, balance training might be very helpful, for everyone. Good preventative skills.
Rest well.
======
Going back to the emotional tone . . . oohhh. My bet is that your family loves you and enjoys having you around no matter what.
I think we, especially those of us who grew up with American television and slick magazines and movies - well, I think we got a skewed view of what life was to look like - just a part of the picture.
Reality may hold pain, but love can handle that. Just be yourself. It's all part of the whole picture.
take care.
---
[ 03. June 2008, 02:38 AM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
Update....Got one heck of a bruise on the right side of my face. Not sure what the heck I did.
In any case, my LLMD had taken some blood to be shipped to a new lab and although he has results, he says it's hard to decipher, so he's suppose to have a call back from the lab on that later today.
In the mean time, he feels it's time for me to see someone like Dr. H in NY who will offer more aggressive treatment, something he doesn't do since he's still trying to fly under the radar.
I have an appointment to see my LLMD on Monday so will figure out where I'm headed next, but after 19 months of orals, this is getting frustrating to be only where I am. Guess it's picc line time. Crap.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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posted
Darn! I hate to read this!! Sounds like a seizure is a possibility because those who have seizures are usually VERY sleepy and tired afterward.
COULD be from the hit on the head though too!!
Sounds like IV is a good plan, though not something I would look forward to myself!!
hugs
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96220 | From Texas | Registered: Feb 2001
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
Thank you tutu. I'm not sure I'll ever really know what happened or what made me fall. My husband tends to think I blacked out since I'd been struggling even keeping my head up for a couple days before all this.
But you know...we just don't know and me refusing ER's no matter what.....maybe that isn't exactly my smartest move either, but I wasn't in any condition to make decisions at this time and just slept.
Not sure why I'm so darn hard, but it definitely took a lot out of my body no matter what I did.
Guess I'll see what my LLMD suggests as my next piece of action on Monday, but until then, I'm scrambling like a bee to get all the "homework" I can on my various options and doctor choices.
I honestly don't know where I'd be without this board.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Has your doctor checked you for POTS (postural orthostatic tachycardia)? That can cause fainting, dizziness and fatigue, among other things.
My LLMD is finding that a lot of her TBD patients have it. I developed it fairly recently.
Hope you get to the bottom of this soon, Cactus
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
Cactus,
Actually I think that is a test they use to do when I'd be admitted in the hospital over and over before my diagnosis.
Is that where they take your blood pressure lying down, then have you stand and take it and then again lying back down? Back in THOSE days, they use to always say it was fine, but who knows at this stage since I've been on treatment for 19 months and all sorts of changes have happened.
This could definitely make sense though since I had just bent over to get the laundry out of the dryer and was walking out the hallwall with a bucket of clothes and that's where my husband found me....on the floor with the laundry everywhere.
But yes, bending over and maybe I just moved up too quickly. I guess I'll really never know for sure, but don't think I want to do that one again, whatever it was.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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