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» LymeNet Flash » Questions and Discussion » Medical Questions » help

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Author Topic: help
louis2
Member
Member # 9238

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i have been a lymie since 1990 but recently i just cant get better i have constant headache between my eyes and numbness around eyes i have neck cracking crunching , feet burn , teeth numb and feel sick. i had frye test last summer said i had bartonella i had babs test 2 months ago said positive . i do antibiotics but i just dont get better . i went to a natropath dr yesterday and he said i need to detox my liver and this should get rid of all these headaches etc. he put me on an intense liver cleanse for a week but i feel horrible. i would appreciate any thoughts on this ineed help.
Posts: 39 | From white plains, newyork | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


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louis,

plesae edit your subject line and body text by following the below ok!

show in subject line: started DETOXING; need help/advise; thanks!


now please break up your solid block text int short paragraphs; we thank you!

i'm wanting you to RECEIVE REPLIES.... [Wink]


WELCOME, would you like a FREE copy of my newbie package of 120 pages info galore sent by LYMENET'S PRIVATE MESSAGE system here; includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?


I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY! The part NOT organized yet is the last 30 pages of SSDI, ss disability insurance benefits tips/forms!


also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.


most of mine is very DETAILED info on certain things: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR/no infrared SUNGLASSES, etc. and how to use this board!


If you would like my newbie package, please send me a PRIVATE MESSAGE. PMs are the 2 people standing together icon to right of your name. Just ask me to send you lyme package, and I'll get it to you promptly. Thank you!

**********************

When you post or reply, please break up your solid, continuous block text [Smile]


welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.


please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.


now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.


if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.


then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND


we thank you for helping us; [Wink] otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. [Frown]

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dbourne
LymeNet Contributor
Member # 13833

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I don't have much experience with detox. On the top of the page is a search button. Type in detox and you might get some good information. Good luck.
Posts: 183 | From Texas | Registered: Nov 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Member # 743

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Do you feel you've had plenty of abx for bartonella and babs??

Have you been taking probiotics all along?

Have you done anything to detox along the way?

How many years have you been treating Lyme? ever since 1990?

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804

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the presence of babs has kept my lyme from resolving.

Do you think all your coinfections (babs and bart) are gone?

I only ask because if you just found out you had babs two months ago then i figure you probaly have not treated for more than 2 months...

I can tell you two months into my babs treatment wasnt near enough... but that is just my expereince.

I am going to try to find lymetoo's babs and bart symptoms for you.

--------------------
multiple chemical sensitvity group:
http://www.lymefriends.com/group/multiplechemicalsensitivities

Group for artists. All media welcome:
http://www.lymefriends.com/group/creativecorner


http://groups.yahoo.com/group/Lyme_Artist

Posts: 3860 | From nj,usa | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804

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this is a post of lymetoo's i copied listing symptoms

Lyme Disease Symptoms List
1. Unexplained fevers, sweats, chills, or flushing
2. Unexplained weight change--loss or gain
3. Fatigue, tiredness, poor stamina
4. Unexplained hair loss
5. Swollen glands: list areas____
6. Sore throat
7. Testicular pain/pelvic pain
8. Unexplained menstrual irregularity
9. Unexplained milk production: breast pain
10.Irritable bladder or bladder dysfunction
11.Sexual dysfunction or loss of libido
12.Upset stomach
13.Change in bowel function-constipation, diarrhea
14.Chest pain or rib soreness
15.Shortness of breath, cough
16.Heart palpitations, pulse skips, heart block
17.Any history of a heart murmur or valve prolapse?
18.Joint pain or swelling: list joints_____________
19.Stiffness of the joints, neck, or back
20.Muscle pain or cramps
21.Twitching of the face or other muscles
22.Headache
23.Neck creeks and cracks, neck stiffness, neck pain
24.Tingling, numbness, burning or stabbing sensations, shooting pains
25.Facial paralysis (Bell's Palsy)
26.Eyes/Vision: double, blurry, increased floaters, light sensitivity
27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
28.lncreased motion sickness, vertigo, poor balance
29.Lightheadedness, wooziness
30.Tremor
31.Confusion, difficulty in thinking
32.Diffculty with concentration, reading
33.Forgetfuiness, poor short term memory
34.Disorientation: getting lost, going to wrong places
35.Difficulty with speech or writing
36.Mood swings, irritability, depression
37.Disturbed sleep-too much, too little, early awakening
38.Exaggerated symptoms or worse hangover from alcohol


The following signs/symptoms may be present in those infected with Babesiosis:
Fatigue
Arthralgias
Myalgia
Drenching sweats
Headaches
Emotional lability
Depression
Dark urine
Splenomegaly
Dizziness
Nausea and vomiting
Cough
Dyspnea
Fever
Chills
Hepatosplenomegaly
Jaundice
Malaise
Shortness of breath
Bleeding tendencies, bruising
Thrombocytopenia
Hemoglobinuria
Hyperesthesia
Pulmonary edema
Encephalopathy
Low to normal range leukocyte counts
Possible elevated levels of dehydrogenase, bilirubin,
transaminase*
Anorexia
Approximately 25%- 66% of Babesia patients are known to be co-infected with Lyme disease. These symptoms may continue for long periods of time, decrease, then return. A low Babesiosis titer (IgG) often indicates a chronic infection.
An acute or current infection may show a higher reading on the IgM test initially. There are over 100 species of Babesia in the United States but only ONE or TWO species are currently checked by commercial labs.


BARTONELLA SYMPTOMS

GENERAL: Fatigue, Restlessness, Combative behavior, Myalgias, Malaise, Liver and/or Spleen
involvement, Abdominal pain, Infectious Mononucleosis-like Syndrome, Granulomatous Hepatitis

BRAIN: Encephalopathy may occur 1-6 weeks after the initial infection and is fairly common in patients
with Bartonella. Note: Approximately 50 percent of patients who develop Encephalopathy can be affected
by seizures (from focal to generalized, and from brief and self-limited to status epilepticus). Headaches,
Cognitive Dysfunction, and CNS Lesions may be evident.

RASH AND LYMPHADENITIS: Erythematous papules (red splotches or slightly raised red spots) may
develop. Such papules occasionally occur on the lower limbs but are more common on the upper limbs, the
head, and neck. The papules may appear on the skin or mucous membranes. Bartonella may also cause
subcutaneous nodules, with some bone involvement possible. The nodules may show some
hyperpigmentation, be tender, fester, and/or be enlarged or swollen, but not always.

EYES: Conjunctivitis, Bartonella Neuroretinitis, Loss of Vision, Flame Shaped Hemorrhages, Branch
Retinal Artery Occlusion with Vision Loss, Cotton Wool Exudates, Parinaud's Oculoglandular Syndrome,
and Papilledema.
BONES AND MUSCLES: Osteomyelitis, Myositis, Osteolytic Lesions (softening of bone), Myelitis,
Radiculitis, Transverse Myelitis, Arthritis, Chronic Demyelinating Polyneuropathy.

HEART: Endocarditis, Cardiomegaly.
Possible lab findings: The following may show up during standard testing:
Thrombocytopenia, pancytopenia, anemia, elevated serum alkaline phosphatase level, elevated bilirubin, abnormal liver enzymes.
X-ray of the bone may show areas of lysis or poorly-defined areas of cortical destruction with periosteal
reaction. Cardiomegaly may show up on a chest X-Ray.

Biopsies of lymph nodes reveal pathology often indistinguishable from sarcoidosis. Reports of biopsies
strongly suggestive of lymphoma do occur.
Tests occasionally show an enlarged liver with multiple hypodense areas scattered throughout the
parenchyma.

--------------------
Do not take this as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express!

oops!
Lymetutu
My story: www.tinyurl.com/2ubzoz

--------------------
multiple chemical sensitvity group:
http://www.lymefriends.com/group/multiplechemicalsensitivities

Group for artists. All media welcome:
http://www.lymefriends.com/group/creativecorner


http://groups.yahoo.com/group/Lyme_Artist

Posts: 3860 | From nj,usa | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804

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Just breaking up the text for the neurolymies and those with vision problems to make it easier to read [Smile]

Originally posted by louis2:
" i have been a lymie since 1990 but recently i just cant get better

i have constant headache between my eyes and numbness around eyes i have neck cracking crunching , feet burn , teeth numb and feel sick.

i had frye test last summer said i had bartonella

i had babs test 2 months ago said positive . i do antibiotics but i just dont get better .

i went to a natropath dr yesterday and he said i need to detox my liver and this should get rid of all these headaches etc.

he put me on an intense liver cleanse for a week but i feel horrible. i would appreciate any thoughts on this ineed help."

--------------------
multiple chemical sensitvity group:
http://www.lymefriends.com/group/multiplechemicalsensitivities

Group for artists. All media welcome:
http://www.lymefriends.com/group/creativecorner


http://groups.yahoo.com/group/Lyme_Artist

Posts: 3860 | From nj,usa | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
   

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