posted
Hi everyone- My daughter was seeing another Neurologist here in New York, but we are looking to change. Someone on another Lyme forum recommended Dr. K in Orange, CT. Has anyone seen him? Any experiences? Positive or Negative? Thank you!
Posts: 371 | From CT | Registered: Jun 2008
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posted
As with most docs I am sure you will get both positive and negative feedback.
This info is based on hubby's experiences.
Dr K clinically diagnosed hubby with Lyme in 2003. After 2 months IV Rocephin his office notes say that hubby has "post-Lyme autoimmune syndrome". This is not based on any test results or anything other than the fact that hubby only improved about 25% with Rocephin and within a week started going downhill again.
Dr K is a proponent of IV IgG -- hubby did not qualify based on immune subclasses testing. The doc lost interest in hubby -- would not return phone calls or schedule any additional appointments. He was moving his office at the time so that may have been a factor.
In my opinion the doc does not know coinfections and will not treat these without positive test results. Ignored positive bloodslide from Bowen lab for Babesia.
The Dr B saw hubby 6 months after Dr K and diagnosed hubby with Babesia and also Bartonella (BLO) based on clinical symptoms.
If I remember correctly a fellow LymeNet poster -- PolarBlast -- actually did the IV IgG and eventually found another LLMD who treated him for his coinfections.
7 Years after getting sick hubby remains disabled. Has had some slight improvement in 2008 with a new LLMD -- is treating Lyme, Babesia and Bartonella all at once by pulsing low doses of 5 different antibiotics -- something he has never done before. In the past could only tolerate one med at a time.
If anyone knows a really good Lyme neurologist who believes in chronic coinfections please send me a message.
Hubby does not currently have a neurologist -- has been to over 20 neurologists in the last 7 years -- the 3 who were supposed to be Lyme literate were all huge disappointments.
This is just my opinion and not medical advice.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
Thank you to everyone who has PM-ed me and given me some feedback--Me and my daughter appreciate it so much! Posts: 371 | From CT | Registered: Jun 2008
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bettyg
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posted
JK, welcome; so glad you found us!
WELCOME, would you like a FREE copy of my newbie package of 124 pages info galore sent by LYMENET'S PRIVATE MESSAGE system here; includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?
I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY! The part NOT organized yet is the last 30 pages of SSDI, ss disability insurance benefits tips/forms!
also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
most of mine is very DETAILED info on certain things: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR/no infrared SUNGLASSES, etc. and how to use this board!
If you would like my newbie package, please send me a PRIVATE MESSAGE. PMs are the 2 people standing together icon to right of your name. Just ask me to send you lyme package, and I'll get it to you promptly. Thank you!
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we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy.
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. ![[Frown]](frown.gif)
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