posted
cantgiveup, How long have you been under treatment? I have never tested positive on anything (IND on Igenex WB for Bb, negative on everything else) and would love to get a positive test result, but haven't been tested in about 1.5 years. Igenex testing is so expensive. I can't afford to do it on a whim.
Although some may not feel the need for a positive test result, it might help w/insurance coverage and to be able to finally tell people who keep asking me if my Drs really know I have Lyme.
Thanks,
Patti
Posts: 975 | From California | Registered: Apr 2007
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psano... The IgG and IgM from Igenex is around $190 .. high, but not as bad as you might think.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
psano, ive never really done long term treatment.
i was sick in 2005 and my body was such a mess with huge fungal issue that i couldnt tolerate abx.
taking levaquin since april 29th has been my longest stretch on an abx.
I was tested thru igenex prior to levaquin and wasnt on abx when i tested.
I was extremely fortunate, I have medicare and it picked up my testing. For once something went my way. I had 2100 worth of testing. But, i see this as my just rewards for fighting since getting sick in 05.
Lymetoo- I believe my CD57 is low because my WBC is too. I notice when it is higher so is my CD57. The WBC is probably out battling the lyme right now, or I hope.
I also had that strange extreme hunger around testing.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
Lymetoo, I remembered the cost being around $600, but maybe that was for the WB plus all the coinfections. My insurance won't cover it.
cant, I can't believe you've survived so long w/o more antibiotics. How have you done it?
Yes, being on antibiotics doesn't help w/the tests, although my first one wasn't on them.
Posts: 975 | From California | Registered: Apr 2007
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quote:Originally posted by psano2: Lymetoo, I remembered the cost being around $600, but maybe that was for the WB plus all the coinfections. My insurance won't cover it.
Yes, that's with coinfection testing. I understand Fry is the cheapest place to get coinfection testing.
Stick with Igenex for the Lyme.
Do you NEED a test result to get treated? If not, don't worry about it.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
psano- a lot of my earlier symptoms cleared with antifungals. Adding in armour thyroid helped my body temp which in turn I believe helped something.
Most of my symptoms are in my pelvis and bladder now. what started out as mostly neuro lyme for me has now progressed to stiffness in my joints and muscles, and bladder/pelvic stuff.
I did olive leaf off and on, a few months of catsclaw. Difflucan on and off with malarone.
I dont detox well so abx can make things very bad for me.
I also did physical therapy which helped a lot.
Im on meds for the pelvic/bladder, non abx, which also help.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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No, of course not. I'm being treated, and about as well as I could hope for. I guess it's mainly to be able to satisfy those people who still seem skeptical about my "illness".
I know it's not necessary, but it would help quiet them. I hate being doubted about this, so I guess one could argue that it's just an ego thing w/me...I admit it.
Patti
Posts: 975 | From California | Registered: Apr 2007
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Patti, im like that too, and even now im like darn it NO CDC positive LOL.
I think just the fact you are getting well, should be proof enough. You wouldnt be getting better if you didnt have an infection.
My LLMD even said we had luck on our side the day of that blood draw.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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bettyg
Unregistered
posted
thanks for letting us know PRICES went up again; i keep forgetting it's MAY and NOVEMBER every year they increase prices!!
i noted in my newbie package; and will call tomorrow for new price list and more brochures for my lyme tables i'll set up this year!
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