I understand that some are high, some are low, and some are normal, but I don't understand the relevance of these especially the immune tests.
On a good/bad note, I received my first ever positive Western Blot on the IgM- bands 41 and 23kDa. This test was performed at a mainstream lab, too. I should mention that I've already had 10 weeks of IV rocephin and 6.5 months of orals. My LLMD says that either my immune system is not killing it, or the abx are not hitting the 'keets.
Please let me know if you know what these labs mean. I'm at a loss!
"What lies behind us and what lies before us are tiny matters compared to what lies within us." ~ Ralph Waldo Emerson Posts: 138 | From West Virginia | Registered: Sep 2007
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"What lies behind us and what lies before us are tiny matters compared to what lies within us." ~ Ralph Waldo Emerson Posts: 138 | From West Virginia | Registered: Sep 2007
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Just from personal experience and from dealing with so many lymies I would like to suggest that you get tested for heavy metals. And also from high viral titers.
If either is elevated they will prevent you from attaining maximum health. Ask your doctor if he has or can test you for these.
Best regards,
Julia
-------------------- Please consult your LLMD before making any changes to your treatment regimen. Posts: 641 | From NJ, USA | Registered: Oct 2001
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posted
I've been tested for viruses and have really high EBV titers, and a fluctuating HHV6 level. I've never been tested for heavy metals, but I don't have any metal filling-not that this is the only source of heavy metal exposure. My carnitine levels are REALLY, REALLY low too. Maybe this explains the weight gain?
-------------------- Mountaingirl
"What lies behind us and what lies before us are tiny matters compared to what lies within us." ~ Ralph Waldo Emerson Posts: 138 | From West Virginia | Registered: Sep 2007
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Low Carnitine levels may suggest a metabolic myopathy, not Lyme. Is your plasma carnitine low or muscle cells?
A postive WB certainly does suggest Lyme. Have you seen a neuromuscular specilist for the low carnitine issue? I am going through exactly the same issue right now.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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I have no doubt this is lyme...a physician confirmed EM rash, positive improvement from abx treatment, and now the positive WB IgM. I'm curious though, what is the connection between vitamin deficiencies, carnitine deficiencies, and the rest?
-------------------- Mountaingirl
"What lies behind us and what lies before us are tiny matters compared to what lies within us." ~ Ralph Waldo Emerson Posts: 138 | From West Virginia | Registered: Sep 2007
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