posted
I have to admit I am completely confused at this point.
I went camping last week and removed 2 ticks on the 19th. On the 26th I noticed a rash around one of the bites (the bite was still visible in the center and I clearly remembered where the ticks where) and got myself to my regular doctor. I didn't have any other symptoms (it itches now).
We didn't even bother with any kind of test he put me on 2 weeks of 100 mgs. doxy ii/day. I want to make sure it never comes back.
I have read Dr. Burrascano's treatment guide and I'm not sure first of all that I'll be taking medication for a long enough time period. It seems unlikely. It might also be difficult to have my doctor prescribe it for longer given the CDC endorses 2 weeks.
I'm also confused by the information to take the Doxy with food as the information I was given from the pharmacy says specifically to NOT take it with food and to either eat 1 hour after taking eat or take it 2 hours after eating so as not to interfere with absorption and efficacy.
Lastly I'm epileptic.... should I be concerned? I don't see any drug interactions, but could the Lyme affect things neurologically enough that I need to monitor the epilepsy even more closely?
It's difficult to even sort through the info on the internet when it's so contradictory (the site will itch - it won't itch, treat for 2 weeks.. no 6 weeks.)
At this point help in communicating with the doctor without sounding like a fruitcake is appreciated. I've had plenty of experience with that (I'm tired of having things that they don't know WHY I have it that way - it's just the way I am).
I get the feeling there isn't anyone here who understands that frustration Posts: 1 | From Virginia | Registered: Jun 2008
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bettyg
Unregistered
posted
welcome mom; so glad you found us promptly and youARE on antibiotics.
2 wks. is NOT ENOUGH; we recommend 6-12 WEEKS; 2 months symptom FREE before stopping antibiotics.
so glad you found dr. burrascano's 05 lyme guidelines!
call your dr. and DEMAND MORE! you are now in the LYME WAR CONTROVERSY ... another thing you didn't ask for!
please see activism and the posts about ACTION ALERTS....CALLING 4 WASH. DC PHONE NOS. GIVING THEM YOUR FULL NAME/COMPLETE MAILING ADDRESS AND TO "PUT LYME DISEASE ON THEIR AGENDA!"!!!! ******************************************
short/sweet version is this:
IDSA, infectious disease society of america, are infectious drs. who:
.. do NOT believe in CHRONIC LYME;
.. treat from 1 day to 3 weeks MAX ANTITIOBICS, AND YOU ARE "CURED"! HOG WASH!!
ILADS, intl lyme associated disease society, are our LLMDS, LYME LITERATE MDS, and they:
... believe in chronic lyme AND TREAT US AS LONG AS NECESSARY!!!
... another controversy; various STATE HEALTH DEPTS. FILING CHARGES on our llmds for treating antibiotics longer than 4 weeks!!!
example: see activism; read about DR. CHARLES RAY JONES, KIDS NO. 1 LLMD IN CONN! starting his 3rd year of charges trying to take away his license!!!
*********************
WELCOME, would you like a FREE copy of my newbie package of 124 pages info galore sent by LYMENET'S PRIVATE MESSAGE system here; includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?
I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY! The part NOT organized yet is the last 30 pages of SSDI, ss disability insurance benefits tips/forms!
also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
most of mine is very DETAILED info on certain things: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR/no infrared SUNGLASSES, etc. and how to use this board!
If you would like my newbie package, please send me a PRIVATE MESSAGE. PMs are the 2 people standing together icon to right of your name. Just ask me to send you lyme package, and I'll get it to you promptly. Thank you!
**********************
Also, if you are needing a LLMD, LYME LITERATE MD, please post on board in SEEKING DR. forum. Go to FORUM HOME, right corner click, and then chose seeking dr.
We ask that ALL members post in seeking dr. and START THEIR OWN ``NEW'' POSTS vs. adding on to someone else's because we can NOT keep track of who has been answered and who NEEDS to be replied to ok!
Many of you have been sending me a private message asking for llmd names and have NOT posted on the board. I require you to post online because when you show the state and largest cities nearest you; others from YOUR STATE WILL JUMP IN and give you the MOST CURRENT info that they have.
We have nationwide lists do NOT have most current info! We do what we can, but we depend on members to share all updates, deletions, phone nos. not working or changed, etc. with us. Then we let the others know promptly who have lists!
So thank you for starting YOUR OWN POST in seeking dr! We/I will help you as much as possible over there! Betty *******************************************
When you post or reply, please break up your solid, continuous block text
welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.
specifically, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy.
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bettyg
Unregistered
posted
mom,
i forgot to comment on this one,
have ALL your prescriptions, over the counter, supplements/herbs written down,
and give to your pharmacist; have them do a cross check to make sure NONE INTERACT WITH EACH OTHER.
i'm sure i have somethign in my newbie package about this too.
i'd use edit, find, and type in drug interactions to find the link where you can do this yourself online!
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