"I've had EDTA suppositories before and they nearly killed me"
I just started today taking EDTA for 2 days, and then DMSA for 3 days in a 2 week cycle. Would you mind explaining more about your experience?
I would appreciate knowing what to look for if there's something I can prevent. Or maybe you meant it was very unpleasant.
Hope you see this, and don't mind answering...
Posts: 552 | From New Mexico, USA | Registered: May 2007
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Keebler
Honored Contributor (25K+ posts)
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posted
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Detoxamin suppositories - the product I used. EDTA - but I don't recall which type of EDTA - there is a sodium and a calciuim.
You can probably search the name.
There are complicating factors with my makeup that you may not have.
1. I have adrenal stuff
2.. I deal with 2 kinds of chronic porphyria - that means my liver does not detox well through the Cytochrome P-450 pathway (and heavy metals are hard on anyone with problems with that pathway's clearance due to the creation of excess porphyrins which are very toxic themselves.)
3. I am no stranger to seizures
4. I've never had a real treatment plan for lyme/TBD treatment (but did have positives for 3 in '97). My treatment is in bits and pieces as best I can gather.
When the 3 metals test still came back elevated in mercury and cadmium after just regular stuff that was meant to help detox metals, one ND suggested Detoxamin.
the first day I felt great. I could see better and think better. From there it went downhilll - or - I should say I became a human rocket and literally flew off my feet from the slighted startle. So I stopped the Detoxamin.
However, being persistent, and not knowing about DMSA at that time, there were at least 3 other times I tried to do the Detoxamin again (as all my symptoms were still bad and mercury still elevated.) Each of those times, the same reaction.
This tx nearly sent me through a plate glass window on the streets downtown when a car honked. Clearly, there was no way I could take this and my body was going through major reactions.
I did all the other supplements around it that I had been informed to do, Fish oil, etc. but it was no protection. [editing for clarity: I was not told about binders, though]
I am not, nor have I ever been, in line for an IV treatment for this. Those who do the IV's might have different experiences. - and those w/o all the complexites might do okay, too, with oral or suppository EDTA.
I also have never been in the market for an infrared sauna, but that treatment sounds wonderful and safe. I did get a infrared lamp, but it burns me before it makes me sweat. One more brilliant idea that just didn't quite work out.
For myself, the EDTA also taking out magnesium, probably put my seizure threshold way too low as magnesium is my main seizure preventative (with schizandra). And there is way more to EDTA and metals removal that I did not have the guidance for.
However, I do just fine with oral DMSA and green powders, now and then and never two days in a row - never.
Incidentally, DMSA has lowered porphyrins in a study with autistic kids (you can search on PubMed for: "porphyrins, austistic, children" and that abstract should pop up.)
That is very good news as it illustrates 1. it does not hamper the C P-450 pathway and 2. that it does lower heavy metals that stress that pathway.
Well, hope that helps. Some may do just fine with stuff that sends me to the moon. I hope you find what works for you.
take care
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[ 24. June 2008, 04:34 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Thank you, Keebler, for answering. As it is, I'm waiting for the compounding pharmacy that sent the EDTA to call me back.
I left a message asking about the ingredients that make up the material that contains the EDTA.
I did fine with DMSA also, but it only did away with the mercury, and left the lead intact.
Hopefully, this will do the trick. Hope you are finding success in what you are doing now too.
Posts: 552 | From New Mexico, USA | Registered: May 2007
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lymie_in_md
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I'm finishing a course of 15 detoxamins. I had previously chellated quite a bit of mercury/lead already. I was using the detoxamin for getting rid of biofilms in my intestinal tract. And it seems to be doing a good job of it. If any more metals are removed, all the better.
I did it in three 10 day cycles with a week in between. Allowing my body to remineralize. I have 8 days left and figure I'm done.
I'm fortunate, I was able to get rid of most of the metals. I used a product recommended by my doctor from "extended health".
It did a good job of bringing my metals way down, and it took about two months. After I got the metals down enough, I started chelating with metal magic for one 7 week course. I've since started eating a lot of chlorella and some cilantro pesto's every now and then.
One comment GiGi had for chellating mercury is to use lots of binders, chorella, apple pectin, activated charcoal, zeolite... My doctor thought it was very important to provide a herbal to drain the kidneys, I ended up using Nestmann Pharmaceuticals "bucco". Its only ordered through a practioner.
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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Keebler
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Thanks, Bob,
your reminder to "use lots of binders" might just be the key.
That piece of advise was not given to me at the time I did my treatment. It was, in fact, like I just had fresh doses of toxins.
I am trilled to see that the product does well for others when all measures are addressed.
lymie_in_md
Frequent Contributor (1K+ posts)
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posted
I know the most powerful binder to me is activated charcoal by far. I notice if I don't use it, I have symptoms. Like dizzienesss, lightheaded, fluelike stuff, we all know the drill. I really like apple pectin too. Zeolite doesn't do as much for me. I haven't bothered with chitosan (forgive me if i spelled it wrong).
By the way it's also important to be doing ABX or MMS or lots of Garlic to kill the bad guys as they are being released. Detoxamin doesn't just bind to mercury, it binds to the biofilm the bad guys live in and destroys their biofilm home.
If your doing a dmsa or dmso or what ever. You'll just bind to the mercury. EDTA does more because of biofilm and practioners should be more careful using it in the body.
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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Keebler
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daisys -
You might want to find "The Klinghardt Neurotoxin Elimination Protocol"
- I'm looking for link, but it can be easily found on Google.
- Also search his work "Healing the Brain" Applied Neurobiology 2008
I have a pdf on file in my computer and I've put (prophyria) next to the title - an no link. This may, then, offer some insight into the C P-450 detox pathway.
This is set up with great color illustrations, like a lecture presentation.
about the 8th page or so, he speaks to NaEDTA and Biofilm.
I don't recall more and have to run for cover right now as there is a team of leaf-blowers heading through the apts. right now.
posted
Keebler, Thank you very much. I'll follow up on that to the best of my ability--I'm not really computer literate, but will keep at it.
I'll also bring this up to my LLMD, who really likes to get new information. (Of course, he may already know about all this stuff.)
OK, I already found it, and added it to my favorites, thanks again.
Posts: 552 | From New Mexico, USA | Registered: May 2007
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Keebler
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posted
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You just copy and paste into Google, advanced search, the term "The Klinghardt Neurotoxin Elimination Protocol"
This was among the first results:
[DOC] The detoxification protocol
File Format: Microsoft Word - View as HTML The Klinghardt Neurotoxin Elimination Protocol. Approved by: American Academy of Neural Therapy and Institute of Neurobiology (Bellevue, WA, USA) ...
Healing the Brain 2008 - Applied Neurobiology. A PowerPoint presentation given by Dr. Dietrich Klinghardt, M.D., PhD. at the 2008 Healing the Brain ...
posted
Just curious... I was told by a local compound pharmacist not to use EDTA whilst using ABX...
Said it binds and cancels esp Doxy's level in the Blood Stream.
If someone knows different please let me know... I am Recently Diagnosed w/ Lyme. with EM's under both arms after having been on Doxy for 10 days 200 mg... 3 hours after a tick bite...
I did 3 oral EDTA Liposomal Lipoflo's in this 10 period.
Perhaps thats how I was able to get EM's while on Doxy..(weird)
I pray the information is wrong as I thought I caught it early enough... I am devastated and need a glimmer of hope......
Posts: 60 | From Annapolis MD. | Registered: Jun 2008
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Keebler
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Cooper,
As I think I recall from some recent posts of yours, your doctor thought the rash under each arm was not an EM and I thought you were pretty sure she was correct.
Have the rashes since started to look more like a something that was not caused by deodorant ? Hope you are still taking some photos.
I can't answer the question you asked, though, but I hope you do very well and find hope and hints for success.
lymie_in_md
Frequent Contributor (1K+ posts)
Member # 14197
posted
With the suppository it is inserted just before bed. So taking doxy might have to be sheduled around the 8 hour window it's in your body. You could talk to you doctor about it. Or better yet contact the detoxamin vendor, I'm sure they have answer to this question. It occurred to me, don't just trust the doctor. Its better to get two points of view, so you can make a better decision.
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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