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» LymeNet Flash » Questions and Discussion » Medical Questions » neuro lyme

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Author Topic: neuro lyme
bcox
LymeNet Contributor
Member # 2604

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What supplement will help with the neurosymptoms.
Flare up consists of severe burning hands and feet as well as numb tingling sensations in hands.
Thanks

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bc

Posts: 327 | From Tampa.Florida,usa | Registered: Jun 2002  |  IP: Logged | Report this post to a Moderator
webmeg
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Many people here say Magnesium supplements help with neuro stuff.

Burning sensations are many times associated with Babesia - have you been tested for that? You might not be dealing with just Lyme.

Also, are you on Doxy? If yes, Doxy will cause burning skin when you are out in the sun - it's a sunburn, but NOT like a normal sunburn - really stinging/burning like a chemical burn.

~webmeg

Posts: 257 | From Connecticut | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
darla135
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My doctor is having me take Acetyl L-Carnitine and SamE for neuro symptoms. I notice that my brain fog has been a little better and the burning in my feet is not as bad. Usually the burning gets worse with my antibiotics.

Magnesium is good, but my doc suggests Magnesium lactate (not magnesium with calcium). I ordered Mag-tab SR from Niche Pharmaceuticals off the internet. Received it in 2 days. Hope this helps!

Posts: 96 | From Ft. Worth, TX | Registered: May 2008  |  IP: Logged | Report this post to a Moderator
Clarissa
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sublingual b12

hot baths with epsom salt and baking soda

these help with nerve/aches and pain symptoms but I'm really not sure what helps with the burning! Perhaps more detoxing:

water with lots of fresh-squeezed lemon (wash lemons thoroughly)

I take cholestyramine to bind toxins and get them out of my body more efficiently.

There are other toxin binders that do not require rx's. Do a search for welchol and cowden protocol has a product that I can never spell...chlorella? Someone else will probably chime in.

Sorry for your pain...

--------------------
Clarissa

Because I knew you:
I have been changed for good.

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Posts: 1625 | From Florida | Registered: Oct 2003  |  IP: Logged | Report this post to a Moderator
Marnie
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http://www.wipo.int/pctdb/fr/ia.jsp?ia=GB2006%2F002908&IA=GB2006%2F002908&DISPLAY=DESC

It absorbs nearly everything...including all your drugs too!!!

But...Find the "Universal remedy" of old. Mg oxide is the first of three components (that triggers diarrhea)...

Too many inflammatory cytokines really do a "number" on the nerve endings and can damage them.

Unfortunately when we reduce the inflammatory cytokines via NSAIDS/aspirin and the like (which ARE serving a function)...we inhibit COX-1 *AND* COX-2.

What we have been aiming for is: INCREASING COX-1

We need it to be activated.

COX-1 -> PGE-1 -> HO-1.

Another possibility:


These data indicate that Pycnogenol can prevent adverse myocardial remodeling induced by L-NAME, through modulating TIMP and MMPs gene expression, MMPs activity, and further reduction in myocardial collagen degradation rate.

PMID: 17646678

Pycnogenol is expensive. A retired infectious doc here (Sarasota) swears by it for lyme (along with HBOT - which is outrageously expensive and does not seem to "cure"). Nice try though.

Pycnogenol is supposed to be taken once a day, with mgs = #s.

In other words, if you weigh 150 #s, you need 150 mg. once a day.

Go here and into the search window, type in

Pycnogenol.

http://www.ncbi.nlm.nih.gov/sites/entrez

Lots of med. research summaries explaining how it works. Focus on reading their "conclusion".

I take it...and I don't have lyme, but do have pain post 2 back surgeries...and almost no disc left between L4-5. It definitely helps.

Posts: 9426 | From Sunshine State | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
   

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