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» LymeNet Flash » Questions and Discussion » Medical Questions » HBOT Update..

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Author Topic: HBOT Update..
sonicbmx
LymeNet Contributor
Member # 12949

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hello brothers & sisters..

i'm 24 days into 30 consecutive days of HBOT treatment and i feel great!

rode the bmx track WED night and for the first time in 2.5 yrs, i had NO thigh muscle fatigue (4 days prior i did elsewhere).

i sprinted 40 yards at least 12x and rode the entire track effortlessly (compared to my last track outing in April).

did a beach street ride SUN from South Mission Beach to La Jolla Cove.. never took a break or slowed my roll.

didn't have this energy on my last beach outing (Sep07).

this is not an ordinary ride.. it's aggressive and i ride at a rapid pace, do a lot of jumping, and coaster wheelies.

OUTSTANDING DAYS OF HBOT:
day #3: left wrist pain.. similar to arthritis. the pain passed 2-3 days later.

day #5: pelvic/low back/tail bone pain. this pain continued for several days.

day #17: right ankle sore. this may be related to trauma from broken foot and poor physical therapy due to illness.

i felt pretty flat at times during weeks 2 and 3.. was probably herxing a bit.

seeing my sports massage therapist 4x (every 10 days for 1.5 hr deep tissue rubs).

seeing my AK Specialist 2x (every 15 days). followed by my sports massage therapist.

i find massage and chiro care highly effective and beneficial throughout HBOT.

i'm doing my treatment in San Diego at:
http://www.hboinfo.com/Lyme_disease.htm

FYI.. there's a HBOT conference in Los Angeles on 24-26July.. Lyme appears to be a topic on Day 1. details here:

- http://www.hbot2008.com
- http://www.hbot2008.com/day1.php

i'm still in appeals with insurance on HBOT but i'll keep you posted. also going in for State Disability appeal 03Jul.. wish me luck!

all for now.. best wishes.
--
sonicbmx

--------------------
"The hell with Drs.. we have each other!"
My story began here:

http://forums.wrongdiagnosis.com/showthread.php?t=16210
http://forums.wrongdiagnosis.com/showthread.php?t=7833
http://forums.wrongdiagnosis.com/showthread.php?t=6873

Posts: 127 | From Van Nuys, CA | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


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hi there sonic,


thanks or the updates on yourself!! good deal.


BEST WISHES ON APPEALS; both of them!


since you've had good luck so far; how about copying this to SUCCESS STORIES IN "SUPPORT"? we've got so many newbies daily 20-45 the last 2 weeks!


they need some encouragement, and stories like yours, provide that incentive for them.


wishing you better days, months, and years ahead!! [group hug]

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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831

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Sonic, I also had a great response to hyperbaric but relapsed slowly off it. I highly recommend you do maintenance of 2x week for a few months. After my second slow relapse after hyperbaric, I got a home chamber. If I had to do it over I would do 2 to 3 months of hyperbaric in a clinic and immediately shift to a home chamber.
Posts: 2276 | From united states | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
chootik
LymeNet Contributor
Member # 11221

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Hi There.

So did any of you guys experience any bad side effects from the HBOT???

Also just a question, is it possible to get State Disability if you're doing so well? I thought you mentioned you went out running and I was thinking they only give disability to really really sick people and even then you get rejected. The reason I'm asking is I feel not so good but have to continue working to pay the bills, if I can get disability, that would be so much easier to get better.

If you get a chance let me know more about the whole process..

Thanks,
Chootik

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WildCondor
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great!
Listen to oxygenbabe, and keep up the maintenance! very important!!!

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sonicbmx
LymeNet Contributor
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Oxygen.. how much time did you spend in chamber daily? what level were you at? did you do 30 consecutive days?

i'm in for 1.5 hrs every day at 2.8 ATA (approx 60 feet below sea level).

the reason i ask is b/c home chambers appear to have low pressure and i'm wondering if that's why you relapsed.

let me know, thanks.
--
sonicbmx

--------------------
"The hell with Drs.. we have each other!"
My story began here:

http://forums.wrongdiagnosis.com/showthread.php?t=16210
http://forums.wrongdiagnosis.com/showthread.php?t=7833
http://forums.wrongdiagnosis.com/showthread.php?t=6873

Posts: 127 | From Van Nuys, CA | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831

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Sonic, I went to 2.4 ata. I'm curious why you're going to 2.8 ata? That's not standard practice and I'm not sure the extra .4 makes a difference but maybe.

The first time I did around 30 sessions at 2.4 ata, once a day for 60 minutes. The second time I did 2 months worth at 2.4 ata once a day for 90 minutes with a 5 minute "air" break.

I did not know about nor have a mild chamber.

There was a study in guinea pigs I believe where they built them little hbot chambers. Gave them borrelia infections. Gave them hbot for...I"m not sure if it was one month or three months?--sacrificed them--no or low numbers of lyme bugs. Another group, gave them hbot, but let them live another 3 months, sacrificed them, lyme bugs back.

HBOT is really a wonderful treatment for some of us but it simply does not KILL all the ketes. It probably kills some, suppresses replication/growth of others, and it also is very good for healing tissue and keeping brain function etc. Wildcondor used it extensively as an add-on to her aggressive abx treatment. I used it without abx.

I was hoping I would keep my gains but in both cases, over time, I lost them slowly until I was back at square one or worse. Well I didn't have the time or moneyt o keep leaving home for months at a time to live somewhere else and do chamber sessions. Then I found out about mild chambers and I bought one.

It is very useful but not as powerful as clinic chamber as it goes to less pressure. It is nonetheless my lifesaver.

As I said if I had to do it over, I'd do two-three months of sessions in the hardchamber, and really get the ketes down. Then I'd switch to the home chamber simply because, eventually I had to come home! Now some people have clinic style chambers in their home that go to higher pressures. I think there's something called the Fortius 420. But it wouldn't fit thru my apartment door anyway.

My point is, you can lose these gains over time and that is really disappointing when that happens. One gal I dove with in Great Barrington, had lyme and babesia for 20 years, was pretty darn sick, had done abx for 8 months at one point and did not want to do them again, so she did 4 straight months of daily sessions and then switched to 2x week for the next year. I don't know how she's fared over the last five years but she regained her health and held it for at least a few years, even off the oxygen. Now, the chamber was a mile from where she lived so that was easy for her. She was lucky that way. And now that clinic closed down and again I don't know if she held the gains.

To the other poster--side effects--if you start to notice *ANY* eye changes, keep your eyes closed in the chamber (if its a monochamber or you're using a hood) or switch to a mask. That way you lessen though don't eliminate the amount of oxygen being forced into the lens. With eyes open your cornea is bathed in 100% oxygen under pressure and a lot goes into the lens.

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BOEJR
LymeNet Contributor
Member # 1734

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Hi Folks,

I have to chime in on the 2.4 vs 2.8 ATA.

2.4 ATA is based on the study done by Dr W. Fife he found that within three subsets of patients 2.0, 2.4 & 2.8 ATA the largest number of positive responses was in the 2.4 group.

However, there is at least one or more clinics that will treat at 2.8 ATA for the first few dives until the "herx" response is noted.

I have been known to do it at patient/Dr request only. This pressure is rather deep and the potential for oxygen toxicity is greater. It is best done in a facility that is well staffed in the event of an emergency...

Hope this helps,
[hi]
Julia

--------------------
Please consult your LLMD before making any changes to your treatment regimen.

Posts: 641 | From NJ, USA | Registered: Oct 2001  |  IP: Logged | Report this post to a Moderator
   

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