posted
Is pain always a symptom in all Lyme infected people?
The reason why I ask is because I have almost
all of the cognitive complaints along with major
fatique and dizziness, sleep issues and joint
aches more than pains especially after any type of exertion.
Mike
Posts: 103 | From New Jersey | Registered: Jun 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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the list can long and each symtpom can come and go a bit - here and there - on and off.
It's truly a wandering set at times.
Many find the cognitive stuff worse, especially early on.
check out the NEWBIE links and the LDA site (link to the left of this page. And, above that, here at lymenet are some medical abstracts in the menu.
also www.ilads.org ILADS see their articles and presentations. etc.
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If you are dizzy, check out the TINNITUS thread.
I'm not at my home computer, so I don't have the link. You can search it here, though under the medical forums. Search feature is at the top of the page. It will have been w/in the last 30 days. that will speed your search.
Hubby did not even have pain on his list of symptoms for probably the first 5 years he was sick. And he was on disability from work all that time.
Hubby's main symptoms have always been gastrointestinal (nausea, vomiting, dry heaves) and neurological (Parkinsonian tremors, myoclonus, "seizure-like" episodes).
He has had headaches some and back pain from bulging discs, but has never had the arthritic pain. Pain is not a consistent problem for him.
I always think that Lyme attacks your weakest body system.
That is one of the hallmarks of Lyme and tick-borne illnesses. Usually, especially the longer you have been ill, multiple different body systems are involved. Hubby has seen both pulmonologists (lungs) and cardiologists as well as gastroenterologists and neurologists.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
Thank you so much for the quick responses.
Posts: 103 | From New Jersey | Registered: Jun 2008
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
I don't have much pain myself either. Never really have.
Most of my problems are also brain fog, lyme brain, fatigue, dizziness and wooziness, feeling "off" and out of it, headaches, feeling like my head is full of air or like it could burst at any moment (which isn't painful; it's hard to describe), finger and joint stiffness and popping, hot flashes, chills, feeling like I may lose consciousness, shortness of breath, palps, tachycardia, etc. Those are some of the symptoms I have most of the time and they don't usually include pain (except for the headaches, of course). These symptoms can be just very scary and uncomfortable!
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
I have excessive excruciating pain.
However, my son has what I call cognitive Lyme, that can include, feelings of being disconnected, off balance, strange/scary thoughts, nausea, anxiety, feelings of walking on rolling hills. He will have a "shot" of pain once in awhile, a cramp or an odd sensation but that is not his main issue and he has mentioned once or twice joint aches..but not "pain".
My sister with Ld has aches and pains, like muscle soreness from time to time - no biggie.
There are so many symptoms of Lyme - no two people share the exact symptoms.
Lyme can be pain - lyme can be in the brain and misdiagnosed as bipolar or schizophrenia and more.
It manifests in so many ways - that is one reason why Md's can't figure it out - we are all different and respond to different medications differently.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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As you mentioned vertigo (I don't know how to spell dizzy + ness) as a problem, you might find this thread of some help.
while vertigo is very common with lyme/TBD, it also has other causes and you might talk with your LLMD (if you have one) to see if s/he thinks you should see a specialist in the field of vestibular disorders (inner / middle ear / balance).
Ginger helps some. Gingko, too - but both can wire me a bit, so be cautious.
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Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links
quote:Originally posted by disturbedme: I don't have much pain myself either. Never really have.
Most of my problems are also brain fog, lyme brain, fatigue, dizziness and wooziness, feeling "off" and out of it, headaches, feeling like my head is full of air or like it could burst at any moment (which isn't painful; it's hard to describe), finger and joint stiffness and popping, hot flashes, chills, feeling like I may lose consciousness, shortness of breath, palps, tachycardia, etc. Those are some of the symptoms I have most of the time and they don't usually include pain (except for the headaches, of course). These symptoms can be just very scary and uncomfortable!
I have many of the symptoms that you are experiencing and I also read your story and I am glad that you found a LLMD and that you are finally on the road to recovery.
Your story gives me the motivation and the strength I need to move foward on this hard long road to recovery.
Mike
PS Thank you all for your responses. God Bless you all!!!
Posts: 103 | From New Jersey | Registered: Jun 2008
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As you mentioned vertigo (I don't know how to spell dizzy + ness) as a problem, you might find this thread of some help.
while vertigo is very common with lyme/TBD, it also has other causes and you might talk with your LLMD (if you have one) to see if s/he thinks you should see a specialist in the field of vestibular disorders (inner / middle ear / balance).
Ginger helps some. Gingko, too - but both can wire me a bit, so be cautious.
--
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links
I have had the Tinnitus-(Ringing in between ears) like symptoms for several years now but they have gotten worse over the past year.
Mike
Posts: 103 | From New Jersey | Registered: Jun 2008
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
My daughter is in horrible body pain all day. She had some relief after a couple of months on minocycline, but after six months, it came roaring back.
She used to have almost all symptoms. But, the pain has been tenacious.
I only have fatigue, memory issues, and a few fleeting other symptoms.
Posts: 2903 | From AZ | Registered: Feb 2006
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posted
My main symptoms are also the brain fog, fatigue, lack of motivation and blunted emotions. Right before starting meds a couple of weeks ago I had shooting pains, prickly feelings in my arms, and sensations of something biting me and things crawling under my skin.
The main pain I experience is in my joints in the hands and burning in my left foot. It kills sometimes!!
Posts: 96 | From Ft. Worth, TX | Registered: May 2008
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