disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Are you on Levaquin for Bartonella? If so, the only other thing that I know that is also good for Bartonella is Rifampin. I took Rifampin for my Bartonella for four months. Helped me get to 70%, but I am pretty positive it did not get rid of my Bartonella totally as I still have symptoms of it.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
yep, it's for the bart. my tests have not come back yet, well at least, i haven't gotten the word yet.
i don't know anything about pulsing, so i think i will just discontinue and see what he says when i go in in july.
hmmm, could i relapse if i stop now and don't take anything for this bart until july 15th?
there has to be something better, just has to be...
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
My legs are achey but not that bad. I initially had some tendon pain took 5 days off and then took 1/2 dose (250 mgs). I was able to tolerate the 250 mgs and after about 5 weeks on that upped it to 500 mgs. I'm making some gradual improvements so I want to stay on for a while longer.
How long can one stay on Levaquin? I see my new LLMD (Dr. S in MD) in 2 weeks so its a question I'll be asking him. I started in early April and began taking full doses on May 9th.
Chris
-------------------- dx in Dec 2003 tested 2x positive for bart Lightly Chelating 3 weeks off abx and 1 week on:
10 day course a month: Plaq/Ceftin/Rifampin/Biaxin with Tindamax on last two days Posts: 187 | From PA | Registered: Apr 2008
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Randibear, Well, one thing about having severe leg pain...your husband wouldn't insist on you going on a road trip.
Carol
p.s. Regarding the trip, also tell him that his daughter would probably enjoy seeing her dad more without the step-mom being there.
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
LOL-- carol, you bad....
but true....
lyme moment -- i forgot to tell ya'll that i'm on 750 mg per day...that seems pretty high compared to what others have been taking...
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Your LLMD just had knee replacement and is in the hospital, recovering.
I have sent you his direct contact info, should your discomfort get to the point that you need to speak with him directly.
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
I assume you are after Bart. My LLMD believes the macrolide kill Bart and I have found in my studies at pubmed for this to be absolutely true over and over there abstracts that prove it.
Rifampin/Septra or Rifampin/Doxy, Biaxin or Zith/Rifampin...all bart killers.
It is wise to stop Levaquin with what sounds like "tendon" pain - tendons can rupture from Levaquin and other quinolones.
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
just wanted to clarify about this fabulous doctor.
he's so busy his phone message is full and i couldn't leave a message and i'm so brain dead i couldn't figure out how. it just said to return the call. i kept getting a recording and it said something about a cell phone and i was too stupid to understand.
this is NOT the doctor's fault. it's mine, so please don't think he is uncaring, cause he ain't.
he's a godsend and he's very very busy....
again, this is not the doctor's fault. it's mine.
his office is probably just swamped right now and i'm calling at crazy times.
not his fault, again, new doctor and i have to figure out his system.
i wouldn't trade him for a new puppy....well maybe a chocolate lab...
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Just wanted to let you know I left you a reply under your other thread about this, which is titled much the same.
Love, Light, & Health, Jennie
-------------------- My Lyme dx:11/05. My Mom's Lyme dx:5/16. ISO ASAP-Lyme Literate Dr & Neurologist-Prefer IL, IN, KY, MO, OH, TN. Can travel farther. Finances limited. Prefer Drs take Medicare or Payments. Need great list to find best fit. Tyvm. Posts: 701 | From Owensboro, KY | Registered: Sep 2005
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