LymeNet Flash: TEST RESULTS-CONFUSED!

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»	LymeNet Flash » Questions and Discussion » Medical Questions » TEST RESULTS-CONFUSED!

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Author

Topic: TEST RESULTS-CONFUSED!

mamam
Member
Member # 16246

posted

OKAY-I HAD ONE WESTERN BLOT BAND ON 5/30/08 THAT

CAME BACK POSITIVE SO MY DRS DECIDED TO TREAT FOR

LYME, ONCE I STARTED THE ANTIBIOTICS MY SYMPTOMS
GOT WORSE. I WAS ON CEFTIN FOR 18 DAYS AND THEN

THEY SWITCHED ME TO 200 MG/DAY OF DOXY WHICH I

HAVE BEEN ON FOR 8 DAYS NOW AND FEEL TERRIBLE. I
HAVE OVER HALF OF THE SYMPTOMS OF LYME. MY DR RAN

MORE TESTS......CD57, C4A, C3A ON 6/30/08 AND

THEY CAME UP NEGATIVE. I STILL FEEL TERRIBLE, DO
I HAVE THE LYME OR NOT? DID THEY ABX GIVE THESE

LATERS TESTS A NEG READING. SHOULD I CONTINUE MY
ABX FOR THE 1 MONTH THEY PUT ME ON IT. SINCE I

ONLY HAD THE ONE BAND OF WESTERN BLOT DID THAT

MEAN I HAD SOMETHING ELSE? MY DR WANTS TO REFER
ME TO INFECTIOUS DISEASE. WHERE DO I GO FROM

HERE?

Posts: 12 | From Farmington, MN | Registered: Jul 2008 | IP: Logged |

sixgoofykids
Moderator
Member # 11141

posted

If you had a positive WB and symptoms, you have Lyme Disease.

It sounds as if your doctor is following the IDSA guidelines. The IDSA was recently brought up on anti-trust violations for those guidelines and they have to rewrite them .... so an ID doctor will not be a help with Lyme.

I would post under seeking doctors to find a Lyme Literate physician (LLMD) near you.

You are supposed to get worse on meds ... it's called a Herxheimer Reaction. If your doctor knew about Lyme he would know that. Please find another doctor!

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007 | IP: Logged |

mamam
Member
Member # 16246

posted

raally just wanted to be sure it wasn't something

else. Even if only one band came up positive? My

Dr didn't seem to be to sure.

Posts: 12 | From Farmington, MN | Registered: Jul 2008 | IP: Logged |

SForsgren
Frequent Contributor (1K+ posts)
Member # 7686

posted

CD57, C3a, C4a do not come up "Negative". Sounds like the information you have is not accurate. Do you have copies of the tests?

--------------------
Be well,
Scott

Posts: 4617 | From San Jose, CA | Registered: Jul 2005 | IP: Logged |

mamam
Member
Member # 16246

posted

not yet, they are sending them in the mail. I

will post when i find out.

Posts: 12 | From Farmington, MN | Registered: Jul 2008 | IP: Logged |

sixgoofykids
Moderator
Member # 11141

posted

Sorry, the way you had it posted the first time in a block in all capitals, I misread. I thought you wrote that you had a positive Western Blot.

I agree with Scott, I'd get a copy of your test results.

Also, you might want to get retested by IGeneX. All the do is Lyme testing, so you will get more accurate results.

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007 | IP: Logged |

mamam
Member
Member # 16246

posted

sixgoofykids - i did have one positive band of the western blot test. my dr made it sound like

you needed 2 or more positive bands.

Posts: 12 | From Farmington, MN | Registered: Jul 2008 | IP: Logged |

Geneal
Frequent Contributor (5K+ posts)
Member # 10375

posted

I only had one band positive via Quest Western Blot.

IgM band 23. That band and my symptoms were enough to get me diagnosed by a local doc.

Then found a LLMD through this site and Lymetoo. [Smile]

My LLMD added in the diagnosis' of babesia and bartonella to the Lyme.

Sounds like you are herxing which is another indicator of Lyme.

Please find yourself a LLMD. Your health depends on it.

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006 | IP: Logged |

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