posted
I just had a test done that strongly indicated I have cholecystopancreatitis... i need to have an ultrasound of my bile ducts and pancreas. Myself and the dr believe it is from toxicity from all the meds and toxins in my body....
if you do have this... what is treatment and how do you detoxify if your pathways are not working? I am afraid to take anything detoxifying because of it.
Thanks so much!!
-------------------- "Grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to hide the bodies of the doctors I shot when they said "You're perfectly healthy, It's all in your head"
Hope and healing, Nancy Posts: 26 | From originally from NY- now living in AZ | Registered: Nov 2005
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ArtistDi
Frequent Contributor (1K+ posts)
Member # 2297
posted
I have chronic pancreatitis because of drug combo, and my pancreas is permanently damaged. The things that help are digestive enzymes, eating low fat foods (no caffeine, chocolate, peppermint, fatty red meats). Clear liquids only with an attack, when your amylase numbers are high (these denote the workings of the pancreas).
I have taken activated charcoal, but I think I would be very careful about trying to pass stones until the cause of your pancreatitis is evaluated. Lots of fluid is helpful, and you can do castor oil packs with white flannel over the gallbladder area. You will have to do a search for the correct procedure.
Try doing gentle detox in a dry sauna or Epsom salt baths.
Best. Di
Posts: 1567 | From Hatfield, MA, USA | Registered: Mar 2002
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
*Severe* pancreatitis associated with gallstone disease and its complications require emergency surgery.
PMID: 12943049
Which enzyme levels to watch:
The activity of lactate dehydrogenase, gamma-glutamyltranspeptidase, alkaline phosphatase, 1-antitrypsin was studied in 30 patients with acute cholecystopancreatitis of different severity grades.
It was found that changes of activity of these enzymes depending on the severity of the disease may be considered as a criterion of regression of the inflammatory changes in the biliary-pancreatic zone as well as a criterion of recovery.
PMID: 1362026
I am very surprised that Pubmed has very few *recent* abstracts on this condition. Most are old and abstracts (summaries) are not available.
Stones in the common bile duct are extremely painful and do require immediate surgery....followed by a second surgery (next day) to remove the gallbladder sometimes (my mom).
Posts: 9424 | From Sunshine State | Registered: Mar 2001
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can anyone tell me.. what exactly IS cholecystopancreatitis? I look up pancreatitis but all i find is acute and chronic and my lyme brain can't understand scholarly articles, which is the only place i see reference to the condition
thanks so much!!!!
-------------------- "Grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to hide the bodies of the doctors I shot when they said "You're perfectly healthy, It's all in your head"
Hope and healing, Nancy Posts: 26 | From originally from NY- now living in AZ | Registered: Nov 2005
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also can a regular gastro diagnose? i have a great gastro from mayo but she doesn't do hepatology
thx
-------------------- "Grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to hide the bodies of the doctors I shot when they said "You're perfectly healthy, It's all in your head"
Hope and healing, Nancy Posts: 26 | From originally from NY- now living in AZ | Registered: Nov 2005
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posted
Yes, I'm seeing a regular gastro. You'll have to Google MRCP, because I can't tell you much of anything!!
It is an MRI specifically for dxing problems with the bile duct.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
I had my gallbladder removed two weeks ago because I suddenly developed an elevated lipase level (amylase remained normal) and the lipase remained elevated for a few months (although did go up and down, but always above normal - but not enough to qualify for full-blown pancreatitis). I eventually developed mild gallbaldder-area pain.
My ultrasound of the gallbadder showed no stones and was normal. I insisted on a HIDA scan of the gallbladder and it showed the gallbladder was not contracting and bile was only trickling out.
I had a CT scan of the pancreas with contrast dye and it showed the pancreas did not have any inflammation or tumors. The MCRP was another test they were considering.
Given that I developed mild gallbladder pain and my HIDA scan was clearly abnormal, all my doctors and I decided that my gallbladder was most likely causing the pancreatitis.The surgeon said he had seen cases like that, where the gallbladder isn't working, and then it refluxes back on to the pancreas.
He also originally thought that problems with my vagus nerve (which is common with tick-borne diseases) could cause the gallbladder and pancreas not to work properly.
Sure enough, the morning after gallbladder surgery, my pancreatic lipase levels dropped to normal. In my case, it was the gallbladder that was stressing the pancreas.
My gallbladder showed extensive scarring and indications of repeated past infections. The surgeon had never seen anything quite like it. I said it had to be due to tick-borne infections because they are the only chronic infections I've had.
While removing the gallbladder, he checked the bile ducts which were all fine.
Prior to surgery, my internist had suggested I have the ERCP to see if there were any bile duct blockages. However it can be a risky procedure if you look it up because it can actually cause pancreatitis in a few cases. The procedure is also used to open up bile ducts or gallbladder sphincters if they are narrowed or blocked.
I'm just passing along my experience to make sure that the gallbladder is considered as a possible cause of pancreas issues. However, I do know another Lyme patient in my area who has full-blown pancreatitis and she believes it's from being on antibiotics for years.
I have detox problems too. Even the tinest amount of anything to detox makes me violently ill.I worked with a naturopath weeks prior to surgery in an attempt to help my pancreas and gallbladder, and used a homeopathic pancreas detox tincture among other things, and was extremely sick from even a couple of drops.I was able to tolerate castor oil packs over the gallbladder/liver until a couple of weeks before surgery, then any little thing made me sick.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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lymie_in_md
Frequent Contributor (1K+ posts)
Member # 14197
posted
The product I used for pancreatic drainage is called "RUBUS" it is from nestmann pharmaceuticals in germany. The distributor is Marco Pharma Int'l of Oregon.
I was prescribed and energetically tested to use it because I was clogged with mercury both in the pancreas and the kidneys. It is specifically for precreatic drainage, when the pancreas is allowed to drain it will detoxify. Took me about 3 months.
I was taking a lot of digestive enzymes which I find unneccessary now.
The product for kidney drainage from the same company was "bucco" again used it for 3 months.
I think they are absolutely great!
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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