12 replies including pam's ... 2 mds i think and me! post above me from dr. i had to SOB 1 huge long page of comments with NO PARAGRAPHS! *****************************
To all who post here, please think of us NEURO CHRONIC lyme patients,
and please have SHORT paragraphs of 2-3 sentences max UNLESS it is something very technical.
then 1 sentence is a paragraph. we'd like to be able to read and follow the comments. ************************
pam, i look forward to reading your book in near future; i've been reading rave reviews about it. it complements UNDER MY SKIN beautifully.
It was a good article, but I'm so tired of reading the MISINFORMED Shapiro quotes from a man who claims he treats lyme patients, and appears to be 1 of the 06 IDSA lyme guidelines panel who was involved "CONFLICTS OF INTEREST".
BUT he does NOT believe in chronic lyme; treats for 3 weeks and under .... UNDERTREATING a lyme patient so they then become a CHRONIC LYME patient for years or decades!
I've had CHRONIC lyme 38.5 years; 34 years MISDIAGNOSED by 40-50 drs/specialists.
My entire body has been effected and especially my cognitive skills, lungs, heart, and kidneys all showing something wrong with them.
I was angry with ALL drs. who had seen me for 34 years, and who had NOT figured out the correct diagnosis since lyme mimics 300 OTHER illnesses/diseases!
To all reading this, I encourage you to talk to your public libraries in each city about buying Pam's new book which covers so many areas.
Also, for your libraries to buy the DVD, UNDER MY SKIN, from www.undermyskin.com web site!
Then they can also have TICK/LYME/CO-INFECTION AWARENESS movie showings!
Crazy as it sounds, but luckly, I was on SSRIs for most of the time of my infection, and they help the body fight diseases like this.
But I have a clump of something in my right brain, and I am dissolving it, but boy, its slow to go, and making me fatigued, I am sure of it.
IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[cussing]](graemlins/cussing.gif)
Printer-friendly view of this topic