METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
I'm almost done reading his book. This seems like a good direction to go once I receive my test results back. I know definitively that I have Chronic Lyme. If I can confirm a co-infection, it will strengthen my resolve to combine treatments.
Either way, I will combine them, but since my current doctor is taking me off antibiotics, and I'm in a state of limbo while finding another doctor, this might be a good combination for me.
What are your thoughts -- those of you who have had treatment failure with long term antibiotics? I've done 72 months worth of antibiotics so far. I have gotten 'better' -- but I'm far from well, and all my progress occurred during the 3rd year with IV Vancomycin and a few other drugs. Since then I have only slid downhill, but it took about a year for things to turn sour. My best day was maybe 60% functional, which was pretty good -- but it was only a few days after the IV. The rest of the time I was around 40-55%, and now I'm sinking back down to 35% most of the time, with some occasional 40% functional days.
My doctor won't return to the medications that helped me. Think the Zhang is of value to patients who don't respond well?
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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When I could afford it, this was the best thing I've ever done. In fairness, I think the price is fair and far less than abx, etc. It's just not in my budget any longer. I did it about 2-4 months a year for the past 4 years or so. Had I been able to stick with it, I may have seen better progress. Others have.
(Bb, babesia, HME dx '97 - only 2 months of doxy several years later - no other treatment as there are no LLMDs in my state - but also I don't do well with drugs as I have a couple kinds of chronic porphryia.)
Even the alternate to allicin plan was so good for me although the allicin protocol really helped most.
I just didn't have the money to continue. Still, the products are top quality and better than any of the less expensive ones I tried from other places.
I went to a seminar of his a few years ago. It was for Chronic Hep. C but since it was in my town, I was sure to go. Dr. Z actually CHANGED the presentation to include lyme information for myself and one other lyme patient there.
The two of us learned a lot about the liver (and now valuable it is to healing in general) and the others learned some about lyme because, as Dr. Z put it, everyone should know about that anyway as it will be a rare life that won't be touched by it - whether personally or from others they know.
Also - at this seminar of about 30 hep C patients - they all were doing so very well. They flew in from up to a thousand miles away and most had been under his treatment for a while. They had only good things to say and to report.
For me, the brain fog is much less on the protocol. I'm not so easily startled and tossed to the ground and when I'm on Dr. Z's protocol I simply don't have seizures. Off of it, I do.
If one can only afford so much, I talking to Dr. Z and he can list the most important. Support herbs may be able to come from elsewhere - but -again top quality matters.
I have used herbal formulas for nearly 20 years. I have never found a brand that is so consistent and good. I also love the research gathered in the book and you can (as you know) look it all up on PubMed for confirmation.
I will say the allicin was a bit too speedy for me and increased tinniutus to unbearable levels - but no one else seemed affected in that manner. Still, I'd had mouth ulcers for 4 years and the allicin took those away.
So, for me the coptis and others helped. Also, if odor is a problem you might ask Dr. Z about rotating.
Be sure to schedule a consult with him through his site when you finish the book. He offers this at no charge and periodically, I'd call him and he was always available to answer questions.
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You might also consider whether Cpn is a player (or HHV-6, etc), but you've done a ton of research, so I'm sure you've thought of that.
Porphyria - or excess porphyrins - can also contribute to all this. Beta carotene is the best helper.
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Does Dr Z actually talk to Lyme patients/do consults?
Posts: 3528 | From US | Registered: Apr 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Yes. Many LLMDs also incorporate his work. He also has an office where he sees patients in NYC. And he is a visiting professor at UC, Davis. I don't know if he sees patients there or not.
He also has a web site where he answers questions each Wednesday. It's a private web site, though, not open to the public. It's just for his patients at no cost.
I just sent you a PM with details.
He does ask that the book is first read and that is a reasonable request.
CD57, as you are in California, you might ask about when he's to be out there next.
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[ 11. July 2008, 07:37 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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