LymeNet Flash: cd57=204!

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»	LymeNet Flash » Questions and Discussion » Medical Questions » cd57=204!

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Author

Topic: cd57=204!

lymer
Member
Member # 16352

posted

Hi everyone,

I wrote about this already, but didn't get too

many replies. I was diagnosed with lyme, babs,

and erlichia four months ago. About two months

into treatment, I had a cd57 test done. It came

back at 204! My lyme doctor says this is the

highest she's ever seen with any of her lyme

patients. In my previous discussion, some

people replied that their cd57 was high, but then

declined with treatment. Another told me that

my coinfections could be causing the number to

be high. My LLMD thinks lyme just has genuinely

not supressed my immune system. I know I've had

lyme for five years now (undiagnosed and

untreated until recently). Is is possible

that I somehow got really lucky and my immune

system is handling lyme well or is this

number really worthless? Many say "don't worry

about the number, worry about how you're

feeling". I agree with this, but I also feel

that it's nice to have other pieces to the

puzzle as well. Has anyone had experience with

either having a high cd57 and then it declining

with lyme/coinfection treatment or the opposite

and it staying high or getting even higher with

treatment? Any info. would be great!

Posts: 63 | From Humboldt County | Registered: Jul 2008 | IP: Logged |

NanaDubo
Frequent Contributor (1K+ posts)
Member # 14794

posted

Glad to hear your body seems to be handling it well [Smile]

I've only had one CD57 done early on and it was 168. Not real high but not too bad. I don't know a whole lot about how the numbers change.

I haven't had it checked again after 5 months of treatment. I might at some point.

Hope you continue to do well.

Posts: 1129 | From Maine | Registered: Feb 2008 | IP: Logged |

disturbedme
Frequent Contributor (1K+ posts)
Member # 12346

posted

When I first started treatment and I was very ill, my CD57 was 18. After almost a year of treatment, I had it tested again and it was down to 9. I had it tested again just recently (the last time it was tested was four months ago) and it is still sitting at 9. Let me tell you that it's been kind of upsetting for me to be way down to 9 and for such a long period of time.

Right now, I'm feeling much better, especially compared to a year ago. I still have good days and bad days, but the level is still only 9.

I can tell you, even though I am feeling okay some days, my immune system is still pretty weak. I have a very low white blood cell count so that in itself makes me immunocompromised.

Not sure what the CD57 means. I've heard many things about it. Lots of people believe it's flawed, because some people have high counts and feel very ill, while others have very low counts and feel fine.

For some, the levels rise according to treatment and gaining health, but for a lot of people, it doesn't or doesn't seem to. So it's a test that needs more research...

--------------------
One can never consent to creep when one feels an impulse to soar.
~ Helen Keller

My Lyme Story

Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007 | IP: Logged |

CD57
Frequent Contributor (1K+ posts)
Member # 11749

posted

My LLMD says that if someone has a high CD57 then they are likely more ill with a co-infection rather than Lyme. In other words, the co-infections(s) are what are causing your symptoms, not Lyme.

Posts: 3528 | From US | Registered: Apr 2007 | IP: Logged |

adamm
Unregistered

posted

Hopefully this means your making progress against the bugs.
Wishing you continued success.

IP: Logged |

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