Basically looks at patterns in brain waves- compared to norms. Then looks to train and or regulate patterens more toward norms.
Just completed full brain scan using EEG (wires and cap) in front of the class. Clinician was able to clearly show me and the class SIGNIFICANT pattrens for;
> Fatigue & Sleep > Memory
Told me he has never in 15 years seen such significant deviations from standard patterns for fatigue and memory. Never told him a word about my history w/ Lyme before the class.
Have Nuro Lyme. Sound familiar.
More to come....
-------------------- Positive 10 bands WB IGG & IGM + Babesia + Bartonolla and NOW RMSF 3/5/09 all at Quest
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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I did three QEEG (neurofeedback) tests for seizures and did a year or two of neurofeedback training.
Myra Preston, Ph.D., in Charlotte, NC has a special technique or settings for patients with Chronic Fatigue Syndrome and in one of my QEEGs done by someone she trained.
Dr. Preston reviewed it and noted that the abnormalities were consistent with chronic encelphalopathy, common with brain infections such as lyme disease.
Bottom line: for me, this was tremedously helpful in identifing seizures as 3 EEGs had missed them.
Neurofeedback treatment was not enough without also treating the infections (and that tx was not possible for me to obtain).
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QEEG is FAR more sensitive and encompassing and it studies the brain in action, unlike the EEG.
And the EEGs - all 3 missed the seizures but the techs said they'd never seen anyone's brain so sensitive.
Three neurologists all said I was fine - although I had had severe seizures during the testings in all cases (usually from an overhead speaker/page - or flash).
The EEGs all through out slow brain wave notes, but that is really important. All the technicians kept telling me that something was showing but they shouldn't tell me but that the MDs would say it was nothing.
The world of MDs usually discounts QEEGs. A functional EEG, however, may come a bit closer.
But the QEEGs - all 3 - each done by a different Ph.D. or audiologist - they all showed the seizures coming from the same place in the brain when I tried to solve a math problem.
the neurofeedback training helped a lot, but the place I went was so noisy that it was a wash and I often had seizures when someone even opened a door 50 feet away. The taxi ride there usuallly did me in, too, with their "air fresheners" and race car driving.
So I am not the best person to comment on this.
However, I had not gotten treatment for lyme (due to funds). I could do about 1/4 of a alternative protocol and the Ph.D. who worked with me the longest felt that unless the infection(s) could be successfully addressed, that continuing treatment - in my case - would not be effective.
Two different PhDs who both also had worked years with autistic kids, indicated that they'd never seen a brain like mine, either.
That's when I got the 3 QEEG as per Myra Preston's parameters and that explained a great deal more about infection's influence on brain waves.
You might google Dr. Preston from above and see what all she has out regarding research as she focused entirely on the CFIDS population, of which many deal with chronic stealth infections.
I hope notes from my experience with this helps. I had my last treatment about five years ago, in case you need a time line.
Although it did not have the complete effect I had hoped for, I actually very much enjoyed the sessions and know this is a valuable tool, along with treatment for any infection.
It will not take the place of treating the infection but I think it should go hand in hand and recovery - regaining skills - could go more quickly.
And, a note about seizure drugs. I can't take them. Also, most of the slow down the theta brain waves and make anyone more sleepy as a result.
The idea with neurofeedback is the train the brain so it does not have to break through with bursts to try to wake up (and that's when a seizure happens - when it tries so hard to active alpha or beta alert brain waves).
For anyone who has seizure and does not have brain infections such as lyme, I can see that this could be a great tool.
The book: Symphony in the Brain (Robbins) is a good one for reference.
Good luck with this.
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[ 26. July 2008, 04:57 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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bettyg
Unregistered
posted
hrconn,
good deal; they used to experiment on as a classroom exercise!!!
did you tell them all afterwards you have lyme?
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