LymeNet Flash: herx or side effects?

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Medical Questions » herx or side effects?

UBBFriend: Email this page to someone!

Author

Topic: herx or side effects?

randibear
Honored Contributor (10K+ posts)
Member # 11290

posted

i am still on flagyl and amoxy but i'm thinking i may have to stop.

i am getting bad muscle pain. it's in the large hip joint, wrists and ankles. also my skin is itching, but it's mostly left leg from the hip to my knee. it's not broken out but, man, the itching is bad.

i used calamine last night to help. also the palms of my hands itch. my eyes are dark red in the morning but it clears up.

i am having burning abdominal pain, some loose stools in the morning. no temperature.

i'm also on diovan and nadolol for blood pressure and i understand diovan has a lot of side effects.

the flagyl dosage is 1500 per day but i had to cut it down to 1000.

i just don't think i can take it.

anybody got any ideas?

i'm pretty much on water and liquids.

how in the world do you treat other illnesses when you have lyme?

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007 | IP: Logged |

Cockapoo1996
LymeNet Contributor
Member # 14238

posted

I totally understand what you mean. I stayed on the Flagyl until I could take it no more! It was sooo hard - the bad taste in your mouth and all that pain. Wrists, ankles and hip definitely and fingers too for me. I guess we have a lot of cysts to kill.

I had to ramp up to the full dose. Did you try that? I know some doctors pulse it. Mine said no for some reason but I didn't completely listen. I gave myself a break of a day or so every so often and that seemed to help a lot.

I didn't notice itching skin from it. I hope you aren't allergic. Of course it could be Lyme in the skin - so hard to know.

The good news is that when I came off, I felt better than I had in years. Then I starting flaring again and I am on Clindamycin and Bactrim.

Hang in there! I hope you get some relief soon!!

Posts: 472 | From New Jersey | Registered: Dec 2007 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

1500 and even 1000 a day was too much for me! UGH... you must be dying over there. (not literally, of course!)

How much longer are you supposed to take it?

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

Sammi
Frequent Contributor (1K+ posts)
Member # 110

posted

Maybe you could switch to Tinidazole? It is similar to Flagyl but is supposed to be easier to tolerate.

I hope you feel better soon.

Posts: 4681 | Registered: Oct 2000 | IP: Logged |

randibear
Honored Contributor (10K+ posts)
Member # 11290

posted

i took it for 10 days then the gastro gave me another 10 of 1500 per day.

i have one week.

i'm going to stop. i feel like i'm dying.

can't eat without pain, meds making me sick.

i don't know what's herx or what's meds or what's lyme or diverticulitis.....

aarrghhhh

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/