posted
In August of 2007, I stated to feel as if something was wrong. My stomach was always upset and my neck and back were in so much pain. Of course, the doctor knew what was wrong before I even walked into his office. After several visits to my doctor, my pain just got worse and I did noting but sleep. My Mom became so concerned see took me to the ER. After hours of test, they concluded that I had meningitis and that this was the cause of all my problems. Everything seemed okay for the first couple of months after leaving the hospital, but I never felt 100% and I still do not. I have been seeing a specialist for the fast eight months and still no answers. I stated to think that maybe I have fibromyalgia because I have so much muscle pain, headaches, what feels like bone pain, never ending stomach pain, and my vision has become blurry at times. It seems that everyday a new symptom comes and goes. I was reading about fibromyalgia and it said that the symptoms of fibromyalgia and Lyme disease are often the same. The thing that really got me was the link between Lyme diseases and meningitis. I have not felt any relieve since the meningitis. The doctors do not listen to a world you tell them. Because the pain migrates all the time, they treat me as if I am a liar. Does this sound like Lyme disease or I am I just looking deeper than I need to? Thanks so much. Jarrod
Posts: 2 | From Lancaster Pa | Registered: Aug 2008
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
The reason fibromyalgia and lyme disease have the same symptoms is because 99% of all fibromyalgia and chronic fatigue ARE undiagnosed lyme disease - but I won't get on that soapbox right now.
My OPINION is that yes, you do have Lyme disease, but you've got to get tested to know for sure. Please go to "Seeking a Doctor" and post for a dr. in your area - I believe there are several.
Most Dr's don't know anything about Lyme and unless you find an LLMD (Lyme Literate Medical Dr) you won't get the proper testing or treatment.
Hurry! This stuff is nothing to play around with!
Lauren
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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bettyg
Unregistered
posted
welcome jarrod; so glad you found us.
please go back and break up your entire solid block post into SHORT paragraphs and triple space between each paragraph for us neuro lyme patients so we can comprehend and read in order to help you. directions below....
please EDIT subject line and show what you post is SPECIFICALLY ABOUT and show newbie, plus SPECIFIC SUBJECT!! then you will get readers and replies....
Welcome; so glad you found us!! xox
Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying so we all must manage our time well; so specific titles get our time/replies. NON-SPECIFIC ONES, I SOB, SCROLL ON BY! *************************************************************
Also, please be VERY SPECIFIC in subject line what you will be discussing.
Example:
PLEASE show your positive, +/-, and IND numbers from both western blot IGG AND IGM blood tests; do it this way please!
IGM ... do same thing for IGG below IGM *******************************************
18 + 41 +/- 78 IND
When you post or reply, please break up your solid, continuous block text welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.
specifically, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy.
LYMETOO'S DR. C'S EXPLANATION OF WESTERN BLOT TESTING!
PRINT THIS OFF the full explanation, and then CIRCLE the numbers that coincide with your positives, IND! That will explain your no. results! -----------------------------------------------------------------------------------
also, please see below, TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/