posted
I finally made an appointmet with Dr P in Ct and was wondering if anybody has seen him what kind of test does he use does he know what he's doing does he use alot of supplements, what labs does he use. I need as much info as I can get. I already wasted thousands on DR K in CT, HELP
Posts: 200 | From Massachusetts | Registered: Apr 2007
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posted
You will be in very good hands.....he will be very thorough, and he definitely knows what he is doing. No money wasted on dr P.
He is treating 3 members of my family, and if it's any consolation to you we travel from Il to see him.
Posts: 554 | From Naples, Italy | Registered: Jun 2006
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
My husband and I have been seeing him for over a year. He is a great LLD.
1. He doesn't use many supplements, does recommend probiotics, but he isn't as into alternative health as some other LLDs.
2. He won't order tests unless they are going to change the way he treats you; but does use IGENEX, CD 57 test, does lots of labwork, MRIs, etc. He does monitor you very closely with bloodwork.
3. He is very cautious, and will require you see him about every 2 months in order to get your treatment. He is very protective of his patients.
4. He is very laid back, you will feel very comfortable with him. He is extremely approachable and easy to talk to.
5. He returns calls promptly. I have almost always gotten a return call within an hour or two from him.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
He is a very, very good doctor, the best I have ever seen in my life. He is insanely knowledgeable, a walking encyclopedia of medical knowledge. At the same time, he is still humble and will admit readily when he does not know something. An ultra-rare breed of awesome doctor.
As an example of his demeanor, I asked if he thought Lyme was sexually transmitted (with my fiancee present). He said he is not certain but leans toward no, and ran me through every piece of scientific evidence both for against sexual transmission so we could see how he arrived at his opinion. However, he said urine was more likely to be infectious than semen, "so I just tell my patients not to pee on each other" (with a completely straight face). While we laughed hysterically he eventually cracked a grin and said, "yeah, you really shouldn't do that". Posts: 195 | From Manchester, CT | Registered: Jun 2008
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I'm not completely "cured" but I feel as though I'm seeing the light at the end of the tunnel. I'm doing very well--completely functional, have been for a while. I do have a few lingering symptoms that pop up sporadically but they are entirely manageable. My husband and I just hosted a party for about twenty kids and almost thirty parents this weekend--I couldn't have dreamed of doing that this time last year.
My last appt. with Dr. P. was a phone consult last week and I don't have to see him again for another three months.
Everyone is different, but I'm beyond happy with him. Posts: 237 | From Rhode Island | Registered: Jan 2008
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
I agree with everyone here. I drive 4 hours to see him.
Very good at answering questions and returning calls. His staff is very nice and very good at what they do. I always get a call back and usually from the doc himself. I have never had a doc call me in my life unless it was my dogs vet!
Posts: 3905 | From USA | Registered: May 2007
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posted
Thank you everyone for responding I just am so nervous about wasting money again, My daughter also has lyme/bart/babs and is being treated but Dr J he is so smart, I want someone like that. do you know if Dr P believes in IV.
Posts: 200 | From Massachusetts | Registered: Apr 2007
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
I know he treated my sister on orals, but do you know if he uses supplements/herbs for treatment besides antibiotics. My son also went to Dr. J. and is doing great now.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
No. Initial consult is $725 but they will give you paperwork you can submit to your insurance
Posts: 59 | From stratford, CT | Registered: Feb 2008
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Patient reports: Dr. P charges $625.00 for his initial one hour appointment, and then $300.00 for every half hour follow-up after that. From what I've been able to gather, that seems pretty middle-of-the-road cost-wise. He doesn't take insurance but you can leave his office with paper work that you can submit to your insurance. His front office ladies are very sweet and helpful. And he absolutely takes co-infections seriously. No concerns there. He is BEYOND thorough though and you will have more blood taken out of you and more tests done than you would have believed you needed. He's just making sure every other diagnostic avenue is covered before he concludes "symptom A TBD." Which I think is very smart--protects him, protects the patient. He's not into alternative treatments but is not against them either. I know he's heard of rife. I do some treatments on the side and he has no issues with them, but they are not the focus of our appts. He does need to know what supplements you are taking--CoQ10 is a big no-no if you have babesia."
The Marshall Protocol website Dr. List states "Has expressed a willingness to work with the Marshall Protocol 8/20/04 Patient coment: Dr. P' nurse said that he was not planning to use the Marshall Protocol. It is unknown at this time whether Dr. P is still supporting the MP.
[04-24-08] Patient reports: "I see Dr. P in CT. He charges $600 for 1st visit and $300 for following visits and does not take insurance. He has been a great help getting me much better but I think I am making his job really tough lately. He doesn't know anything about natural healing but is not against it at all. He does stress using probiotics. I don't know what co-infections I actually have although I have all the symptoms. My lingering problems are neck pain, eye troubles, sore joints and numb/painfull legs/feet. These are way worse while herxing but the leg issue remains constant especially while exherting. Dr. P tested my for heavy metals but the lab didn't do a full panel as he asked and they only did mercury which was negative. As far as my co-infections, Dr. P has never tested me for them. But he has treated me for all of them and I always have great herxes. I have been on just about every antibiotic that are being used for lyme. I have never had IV Rochefin (sp?) since Dr. P thinks the risk is greater than the fix. He did tell me (I just saw him yesterday) about a new IV antibiotc called tigercycline (sp?) that is helping people like me. He said that an infectious desease doctor must administer it and he hasn't found a doctor in CT (so far) that will do it."
[05-13-08]Patient Report: "He is a caring and compassionate man. Dr. P is probably the most intelligent person I have met. His knowledge of Lyme treatments is complete and current. I highly recommend Dr. P. About $600 for the initial appointment, $300 for follow-ups. I go about every 6 weeks. He does test for co-infections. He uses Igenex and Labcorp. I have been on many antibiotics in the last year and a half. I know that he has stated to me that he would not prescribe more than 6 weeks of abx at a time. If you call his office to make an appointment, you should ask his office administrator, Joanne, what Dr. P' policy is on how often he has to see you, since it can be so expensive after awhile. If you have insurance, his office does not process it. But they always print out 2 copies of my bill, and I submit it to Blue Cross myself and get their (partial) reimbursement."
P.S. I have a list of some of the antibiotics he uses as well. You'll have to PM for that part as that's an actual private between patient and doctor, not public knowledge.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
I would have gone to Dr. P if I was able to travel as I only have heard GREAT things about him.
Posts: 128 | From MICHIGAN | Registered: May 2008
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posted
Dr. P is EXCELLENT - my son went from "Lyme Drs" to "Lyme Drs" here in RI & MA - and only got worse. He was out of work for about 2 years. He was so sick at one point he was near suicide. Finally someone recommended Dr. P - 7 years later son is back to work - feeling GREAT and NO meds! He does take milk thistle 3X as that is a good cleanser for the liver - and I do the same. He also watches his diet and exercises regularly. Has become at top bowler in his league.
-------------------- Carol Posts: 8 | From RI | Registered: Mar 2004
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