posted
Hi there. I apologize if this topic or question has already been brought up and answered a thousand times.
11 years ago I had Lyme's and several courses of antibiotics. I test negative, I thought because the treatment worked.
However, I have major joint pain and fatigue that has been called fibromialgia, and neuropathy in my face and scalp that is excruciating (thank goodness it comes and goes and there are breaks).
I ran into a lady today, and my doctor said the same before I was tested, that it sounds like lymes. Can I be suffering from lymes? I've been feeling crazy and really need some help with this. I've had to cancel all meetings for two days because of face/throat/ear pain that just kills! If you have any info or can direct me to a doc or some literature that can help me sort this mess out I'll be ever grateful...
Best, Carolyn
-------------------- Carolyn Phillips Posts: 1 | From Cottage Grove, Oregon, USA | Registered: Aug 2008
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
It is highly likely that you do indeed have Lyme (no s at the end) and/or co-infections. The test used by most doctors for Lyme (ELISA) is highly inaccurate. In fact most Lyme tests are.
Most Lyme Literate MD's (LLMD's) rely on Igenex labs for testing. A diagnosis is then made using test results and a history because the longer you are ill the less likely it is that you will show up positive on a test.
You will have the best chance at improving your health if you see a LLMD. To find a LLMD near you go to the Seeking a Doctor Forum and post the state in the title.
Meanwhile, read as much as you can here. There is a wealth of information.
Welcome to Lymenet.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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bettyg
Unregistered
posted
please copy this and post in SEEKING DR.
subject: show N., S., LA, or BAY area, CALIF...show the area YOU LIVE in on the 4 areas listed ok!!!
we'll help you. yes, it soundslike lyme.
other info to help you here....
Welcome; so glad you found us!! xox
Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying so we all must manage our time well; so specific titles get our time/replies. NON-SPECIFIC ONES, I SOB, SCROLL ON BY! *************************************************************
Also, please be VERY SPECIFIC in subject line what you will be discussing.
Example:
PLEASE show your positive, +/-, and IND numbers from both western blot IGG AND IGM blood tests; do it this way please!
IGM ... do same thing for IGG below IGM *******************************************
18 + 41 +/- 78 IND
When you post or reply, please break up your solid, continuous block text welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.
specifically, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy.
LYMETOO'S DR. C'S EXPLANATION OF WESTERN BLOT TESTING!
PRINT THIS OFF the full explanation, and then CIRCLE the numbers that coincide with your positives, IND! That will explain your no. results! -----------------------------------------------------------------------------------
also, please see below, TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. ![[Frown]](frown.gif)
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