posted
Im pretty sure its happening now.. I increased it from 1 to 2 doses recently..I am very tired so Im gona lower it back to one for now so i can function... It really has cleared my fog though
Posts: 245 | From East Brunswick, NJ | Registered: Oct 2008
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posted
Thank you hezzer. I just started a week and a half ago. I am at 1 tsp one time a day. I am supposed to get up to 2x per day.
I don't even think that's as high as many ppl take, but I'm not sure.
I am herxing (I hope... and not relapsing) pretty badly. I just hope it stops soon so I know it's a herx.
Any idea on how long before it gets easier?
Hope you get over it soon!
Posts: 453 | From TX | Registered: Aug 2008
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
According to Dr. S of Mold Warriors, this is common in lyme patients. He recommends that actos (a prescription med for diabetes) be given first - before starting cholestyramine because it downregulates some of the hormones that may be causing the symptoms. If I recall correctly, actos can downregulate cytokines.
My LLMD put me on actos first, then cholestyramine and I felt better, not worse.
Terry I'm not a doctor
Posts: 6286 | From Oregon | Registered: Jan 2006
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posted
Thank you Terry... I have heard about the actos too. My LLMD did not prescribe this for me though and apparently did not know about the herx that cholestyramine would cause... or if he did, he didn't tell me about it.
I'm already over a week in so I'm wondering if I should just deal with it. If it's going to be over soon, or if it doesn't get any worse, I think I'll just suck it up.
I was interested in other people's experiences with it, to see if they were similar and how long before their herx ended.
It doesn't help that I'm also adding probenecid (trying again), and that makes me herx like crazy too.
I'm not very patient, obviously, and I have this habit of changing all variables at once, so I never know what's causing my issues... or if I'm just getting worse.
Posts: 453 | From TX | Registered: Aug 2008
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