posted
I tried to do a search on this site, but I didn't find anything
Well ya know the popular Lyme questionare from Dr. B.?? I have to circle almost all of they Y, but have been able to pass the one 'incontence', until now!!!!!
Now I have lost cotrol of my bladder at night while sleeping twice this week!!! I do not wake up until it's too late. This happened one time during the day about 2 months ago, and I was pretty upset then. But it never happened again until now.
I called Dr. J and was told to get a med. that over the counter, but it's not; it's percription only. I'll call him back tommorow for that. He said that this is a propregression of my Lyme.
I'm married and although my husband has been so supportive about this; I'M DEVASTATED!!!!
Has or does this happen to anyone else?????????? Posts: 351 | From Georgia | Registered: Feb 2008
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posted
I do know a man who never had any health problems until he had Lyme and this was indeed one of his problems. Since he has refused to get LLMD help, instead relying on regular docs to patch him up as he falls apart (now he needs heart surgery) I cannot tell he got over this with Lyme treatment.
ESG
Posts: 424 | From Connecticut, USA | Registered: Nov 2003
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while this hasn't happened to me (yet), i've read that it does happen to others. My son has more night time accidents when he is herxing.
look into yeast as a cause as well, as i think that is what makes my son worse.
i hope someone posts with some natural supports you can try.
Posts: 368 | From freehold, nj | Registered: May 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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This happened to me a lot when I was first very ill - my "coma" year.
I think my bladder just could not deal with all the toxins AND the nerves were irritated / short-circuited.
This can get better. Really. In the meantime, a plastic liner and one of those travel towels - microfiber - that is easy to wash and fast drying - or POISE pads.
Temporary, temporary . . . really. Any sort of sleeping pills can make it worse as they relax muscles and you don't want that.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Oh . . . I assume you don't have any processed foods in your diet - even check breath mints.
Especially troublesome is aspartame/nutrasweet/Equal or MSG (you can google for any of its many names).
These are neurotoxic and can trigger all sorts of reactions, including bladder problems.
Artificial dyes and preservatives, too, are irritants of the nerves and the lining of the stomach and bladder.
Although natural, many teas can irritate the bladder, too. Many of us here may use small amounts of very dark chocolate. that might be somewhat irritating, so you'd want to consider that.
Spicy foods, too, can irritate the bladder lining and contribute to this problem.
I also find herbal tinctures with alcohol base to make it worse for me so most of my herbal products are in capsules or I take them long before bedtime, diluted in lots of water.
And, while you may think avoiding water will help, it is best to still drink a lot of water - only maybe not so much after 8 pm.
You can search "bladder" here for good suggestions and a better understanding of what is going on. This is not at all a book about lyme, but it is still very valuable.
=========
And -
This book, by an ILADS member LLMD, has a lot of good information (although there no direct references in the index regarding this problem). Much about nerve repair here:
posted
Once again----thanks to you all so much!! Your all always there, and I'm very thankful for that!!!!!
Keebler--Oh I pray it's temporary!!!! Thank you for sharing that you went through this too; I know that's a pretty personal subject. But to hear you say TEMPORARY gives me hope. Has this completely stopped for you now? Did it start happening during the day also? I will look into everything you mentioned.
Besides it being just devastating waking up to that with my husband looking at me, but thankfully so understanding and supportive; My fear is that it's just the beginning!!! Ya know what I mean????
Like with every sx of this hateful disease. The brain starts with one or two sx, and then it just started getting worse and worse.
Trying not to be so negative--sorry. All of reponces help A LOT!
Thank You
Posts: 351 | From Georgia | Registered: Feb 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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This is a most humbling of situations - and remember - it's a human function that just is a little out of kilter right now.
Yes, it has happened to some degree during the day but mostly when I've tried seizure drugs. They are just too relaxing for me !! Even sedative herbs can cause me to loose muscle control.
But, mostly temporary and sometimes it can go in spells if I get far too exhausted.
Be sure to check all your labels and stay in communication with your doctor about this.
Cranial-sacral therapy also helped me as I think the nerves that run from the spine really needed some adjusting.
Lymetoo, I just wanted to thank you for you support!! I AM THANKFUL TO ALL OF YOU FOR YOUR SUPPORT; I REALLY AM. I just wanted you, Lymetoo, to know how much we all appreciate you. Although this hasn't happened to you, you're still there. I wanted to mention this because I see your post for everyone here; no matter what the need.
I see all of you posting with support or advice; I just wanted y'all to know it's so very special of y'all Posts: 351 | From Georgia | Registered: Feb 2008
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with a smile and a few tears, Janet
Posts: 351 | From Georgia | Registered: Feb 2008
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Yes! My daughter had this problem when she was at her most ill. It lasted a while, but has not been a problem since.
She was 17 when it was happening. She was a bedwetter until 12, so it was devastating to start that up again.
She also had the problem where she COULDN'T go! She would sit on the toilet for nearly an hour.
I think it's called spastic bladder
I tried something over the counter once for this issue, but it caused me a lot of bladder pain. So, be careful of those.
Don't be embarrassed.
Posts: 2903 | From AZ | Registered: Feb 2006
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bettyg
Unregistered
posted
janet,
i'm just seeing your post! i'm the member who used ENABLEX, prescription, and it started working right away!!
for 11 months after my left hip surgery last year caused this to happen 24/7 !! talk about expensive buying all the things to wear!!
after 6 months i got into see a uro/gyn who did thorough testing of me .... SPASTIC BLADDER! she prescribed enablex, and i noticed wonderful changes but it still took 5 full months and one day it finally stopped!!
so check into this! what a relief!!
best wishes; been there done that! what a mess to clean up constantly including bedding.
so i got a plastic cover for that and had one in recliner i sat in too.
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posted
You're welcome, janet! Thanks for the kudos!
Betty, glad you found this thread! I didn't think you'd mind my stating your name, but just in case... I didn't.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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scared:
thanks for your PM.
I will post what you requested here so that others can see it, too. My hands can only take so many painful hits on the computer keys, so conservation.
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Cranial-Sacral Therapy
There are several styles of this. Do not see anyone who has not had advanced training specifically in this. some massage therapists do this. Ask what course work they did for this. If it was just part of their LMT training, it may not have been specific enough and it may be too abbreviated or altered.
I strongly advise against any work on the spine - even just on the neck - that is quick, startling, snapping or crunching. There are gentle methods.
I've had work with a DO for years and it helps a lot.
Some PTs have extra training for bladder issues, but I find most don't understand also the nerve connection weakness that can go with lyme. All the keggels in the world may not always work, so try to find someone who is LL.
And, conversely, this could be something not related to lyme, so you need someone who can evaluate and teach what is necessary. Sometimes, just adjusting the lower spine can work miracles for the bladder.
Upledger is just one place that trains many MD's, DO's (doctor of osteopathy), DC's (Chiropractors), PT's, LMT's, etc.
You can contact them for professionals in your area. Some may be on your insurance.
For other methods, say if you already know a DO or DC, etc., who says they do cranial-sacral, ask what the name is of the style and do some research on it.
I have been damaged from some of the sudden neck adjustments that many chiropractors use. I've never been damaged from Upledger techniques used by my DO or my PT.
I also find most chiropractor treatments to be far too short. By the time I'm out the door, they've "undone" -
Most Upledger techniques take full sessions and address the entire spine and, usually, the entire skeleton. There is a more healing atmosphere than that of a cattle call at some other bodywork offices that I've found. That gives time for the treatment to settle in before easing off the table.
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The Upledger Institute, Inc.
Founded by John E. Upledger, they offer workshops and clinical services in craniosacral therapy and other techniques.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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