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» LymeNet Flash » Questions and Discussion » Medical Questions » seizure medications

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Author Topic: seizure medications
abbyjo
LymeNet Contributor
Member # 16073

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I'm taking Lamictal 175 mg. per day for my partial seizures. Since starting lyme meds I

have had two seizures within a month. Just wondering if any one has had great luck with any

seizure meds? For me, this is the worst part. I can't stand social situations right now because

I'm extremly dizzy and always feel like I'm on the verge of a seizure.
Thanks for the help.

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abbyjo

Posts: 255 | From Southern CA. | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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Member # 11141

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Sorry, I don't know, but didn't want this post to get lost with no replies.

I know someone who had seizures due to babs. With your dizziness problems, have you been diagnosed with babesia?

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sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-

Sorry to hear of what you are dealing with. Seizures are actually quite common with lyme and other tick-borne disease (TBD).

For many, good treatment in clearing the infection - AND good liver support is the key. I hope you can not be driving for a while until this settles down.


ARE YOU SEEING A LLMD ? That is the key here.


for now, ginger capsules or ginger tea can help the vertigo. You can use a bit of ginger from your kitchen cooking herbs.

and - ANDROGRAPHIS is the new love of my life. I've just been taking it for a few weeks now and that feeling of always feeling on the verge of a seizure is gone. More info. about that is in the Buhner and the Singleton books below. I'd get both.


first: I assume all lyme patients are free of aspartame/nutrasweet/Equal and all forms of MSG (you can google for all its names). those are very toxic and will trigger seizures in an instant for me.

Check the labels on EVERYTHING, even breath mints.

---------

I've had seizures since around '95. Mostly triggered from sounds, light flashes, excessive heat or shivering temps.


Don't freak out, though as I have other inner/middle ear conditions that contribute to this and I never had official treatment with a LLMD. I've tried to figure most of this out on my own - due to the politics and finances involved. I've also lived in very noisy settings and that drains the adrenals.


Much of this has to do with the adrenal function, too. that is explained in the Singleton book - I'll post link after this set of info. You have a better chance if you get good treatment for the infection(s) and address the liver and adrenals, etc.


Still, MAGNESIUM and B-6 are the best seizure drugs for me. Fish oil, too.

MASSAGE also is very good to help the body detox and to help the various nervous systems calm down.

Tai Chi or Qi Gong also helps the brain part of this.


I can't take ANY of the seizure drugs due to the increase they cause in dizziness, etc. the seizure drugs also trigger more seizures for me - many more. AND, I can barely walk at all as they relax the muscles too much.


Most of the seizure drugs are very toxic and that's a huge problem for those with lyme. Also, lyme seizures are often from the toxicity of lyme and seizure drugs just add to that.


And, nearly anything that is supposed to help increase energy also can lower the seizure threshold for me. You may be different, but I'd advise being very gentle with any supplements that are meant to increase energy. Why will become clearer.


=======


www.ncbi.nlm.nih.gov/entrez/query.fcgi

PubMed Search:

Hypomagnesemia - 1584 abstracts

hypomagnesemia, seizures - 89 abstracts

magnesium, seizures - 714 abstracts

seizures, gotu kola - 2

Alan Gaby - 13 abstracts (see Natural approaches to epilepsy.)

seizures, gluten - 22

andrographis - 214


-

www.vrp.com -

I'm not sure this URL will actually connect, but if not, the search bar in upper right, scroll down from products to articles and search "seizures"


www.vrp.com/articles.aspx?ProdID=art1734&zTYPE=2


Vinpocetine: Cognitive Enhancer's Role Expands to Incontinence and Epilepsy -- By: Kimberly Pryor


====================================


www.vrp.com/articles.aspx?ProdID=art1066&zTYPE=2

Seizures: A Nutritional Approach -- By: Ward Dean, MD


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If you can use a low-heat infrared sauna, that is excellent.

Also -- heavy metals can cause seizures. Many lyme patients also have elevated levels of mercury, etc. that requires a complex treatment plan - and one that is GENTLE.


Best of luck to you.


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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-


http://tinyurl.com/2dmvs2


From the May 2007 issue of Clinical Advisor (home page: www.clinicaladvisor.com )


CONTROVERSY CONTINUES TO FUEL THE "LYME WAR"
By Virginia Savely, RN, FNP-C

*****

As two medical societies battle over its diagnosis and treatment, Lyme disease remains a frequently missed illness. Here is how to spot and treat it.

Excerpts:


" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."


`` . . .Patients with Lyme disease almost always have negative results on standard blood screening tests and have no remarkable findings on physical exam, so they are frequently referred to mental-health professionals for evaluation.


"...If all cases were detected and treated in the early stages of Lyme disease, the debate over the diagnosis and treatment of late-stage disease would not be an issue, and devastating rheumatologic, neurologic, and cardiac complications could be avoided..."


. . . * Clinicians do not realize that the CDC has gone on record as saying the commercial Lyme tests are designed for epidemiologic rather than diagnostic purposes, and a diagnosis should be based on clinical presentation rather than serologic results.


- FULL ARTICLE AT LINK ABOVE.


Co-infections (other tick-borne infections or TBD - tick-borne disease) are not discussed in the Savely article due to space limits. Still, any LLMD you would see would know how to assess/treat if others are present.


=====================
=====================

`` . . . the immune system does not begin to repair itself until the beginning of the fourth month of antibiotic treatment. . . . ``


http://www.ilads.org/goldings.html


CONTROVERSIES IN NEUROBORRELIOSIS

Audrey Stein Goldings, M.D.


Updated October, 2002

excerpt:---


IV. WHAT'S WRONG WITH ``CURRENT GUIDELINES FOR TREATMENT'' OF NEUROBORRELIOSIS?

First, read the fine print.


- Full 2-page article at link above


==========================
==========================


AFTER reading the Savely and Goldings' articles (links above) this will make more sense and, sadly, shows the state of treatment:


www.ct.gov/ag/cwp/view.asp?a=2795&q=414284

Connecticut Attorney General's Office

Press Release

Attorney General's Investigation Reveals Flawed Lyme Disease Guideline Process, IDSA Agrees To Reassess Guidelines, Install Independent Arbiter

May 1, 2008

Attorney General Richard Blumenthal today announced that his antitrust investigation has uncovered serious flaws in the Infectious Diseases Society of America's (IDSA) process for writing its 2006 Lyme disease guidelines and the IDSA has agreed to reassess them with the assistance of an outside arbiter.


- cont'd at link.

Printable version: www.ct.gov/ag/cwp/view.asp?a=2795&q=414284&pp=12&n=1

===============
===============


TESTING

You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. One of the top labs is:

www.igenex.com

IGENEX

-----

Fry Labs also is said to be good for certain tests.


===========


www.ilads.org

ILADS

The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases.


- 2/3 down the page, you can download Guidelines for the management of Lyme disease


=====================
=====================

www.lymediseaseassociation.org

Lyme Disease Association


=====================


http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=029917


treepatrol's - Topic: Newbie Learning Help Links 5/21/08


=======


http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=069262


Topic: BettyG's NEWBIE PACKAGE, 7.19.08, with TABLE OF CONTENTS FOR ALL!


======
======


Find your local SUPPORT GROUP for help in finding a doctor, etc.

www.lymenet.org/SupportGroups/UnitedStates


======
======


Post in: SEEKING A DOCTOR

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=forum;f=2


-

#######

-


This book, by an ILADS member LLMD, hold great information about pharmaceutical and complementary treatments:


http://tinyurl.com/6lq3pb (through Amazon)

THE LYME DISEASE SOLUTION (2008)

- by Kenneth B. Singleton , MD; James A. Duke. Ph.D. (Foreword)

You can read more about it here and see customer reviews.


=================================


http://tinyurl.com/5vnsjg

Healing Lyme: Natural Healing And Prevention of Lyme Borreliosis And Its Coinfections - by Stephen Harrod Buhner

www.gaianstudies.org/lyme-updates.htm

==================================


http://tinyurl.com/5drx94

Lyme Disease and Modern Chinese Medicine - by Dr. QingCai Zhang, MD & Yale Zhang

you can access his web site through www.hepapro.com or try www.sinomedresearch.org and use "clinic" and then "clinic" for the passwords or call Hepapro.


======================

http://tinyurl.com/5crsjv


Cure Unknown: Inside the Lyme Epidemic - by Pamela Weintraub


======================

www.lymeinfo.net/index.html

WELCOME TO LYME INFO

---

www.lymeinfo.net/alt.html

LYME DISEASE ALTERNATIVE THERAPIES

================================

poster's note: while few get well without attention to nutrition and supporting the liver and adrenals with specific supplements, anyone considering complementary approaches should be sure to have first read the abx protocol for a better grasp of the task at hand.

Basic, supportive herbs to "get the body stronger" are NEVER enough to get over lyme or coinfections. Very specific attention must be paid to the nature, life-span and forms of each tick-borne disease (TBD).


Each infection is treated differently and it is no minor undertaking. It is best to seek guidance with skilled professionals who are truly lyme and TBD literate. They will know, specifically, how to proceed.


-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
   

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