posted
Just wondering how many folks here have also been dx'd with this and what co-infections you have.
I have lyme, babs, bart, EBV, and HHV-6. From what I understand, any of those could cause this. Is that right?
What was your treatment?
Could definitely explain why I've been having daily chest pressure/pain, shortness of breath, lightheadedness, and other things going on,
especially since these have been getting worse in the last month since the pericardial effusion was first found.
Am calling to schedule a second echocardiogram and yet another EKG today.
Thanks for your input!
P.S. - The picc's out so PM me if you want any IV supplies. They're still up for grabs.
-------------------- If you don't know where you are going, any road will take you there. - Lewis Carroll Posts: 356 | From Body-PA, Mind-elsewhere | Registered: Dec 2007
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-------------------- If you don't know where you are going, any road will take you there. - Lewis Carroll Posts: 356 | From Body-PA, Mind-elsewhere | Registered: Dec 2007
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
I have lyme, potentially babs, high EBV and HHV6 titers and have had something very much like a pericardial effusion on two different occasions although the echo didn't find anything. From what I've read, lyme can cause these "under the radar" so-to-speak by way of vegetative growths of some sort... I have had symptoms similar to yours and they are very scary but have been temporary for me fortunately...
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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posted
Lymeorsomething, Thanks for getting back to me!
The pericardial effusion was first found on an echocardiogram. They ended up doing one when I was in the hospital last month for heart-related problems.
They still don't know if I had a heart attack or threw a blood clot (from the picc) or if it was something else.
The pericardial effusion isn't very big, but I'm wondering if it can cause symptoms anyway. Hrm.
I'm sincerely hoping it's all temporary and the new abx protocol will take care of this problem. It really is scary!
-------------------- If you don't know where you are going, any road will take you there. - Lewis Carroll Posts: 356 | From Body-PA, Mind-elsewhere | Registered: Dec 2007
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
This is quoted from Burrascano's 2005 guidelines:
"Vegetative endocarditis has been associated with Borrelia burgdorferi, but the vegetations may be too small to detect with echocardiography. Keep this in mind when evaluating patients with murmurs, as this may explain why some patients seem to continually relapse after even long courses of antibiotics."
Some of my first symptoms were heart symptoms. I continue to have palps once and a while and my pulse is a little too low but I'm hoping treatment will correct symptoms...
I think my pulse issues are related to infection on the pituitary/hypothalamus level.
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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