I am an aussie girl under no LLMD (we don't have any) and have desperately been doing my own reasearch to work out what is the best way to treat lyme and I am SO CONFUSED!!!
I am going for cure over symptom improvement. I have 2 small children and am only 27. I want my life back and will do whatever it takes. I know it will take time, but I don't want to waste years doing the wrong thing.
I feel that the only way I am ever going to get better is by reasearching things myself as nobody here knows much about it.
I don't have the worst case of lyme going around I'll admit. I can still work, but have bad days with neurological symptoms, joint aches, brain fog, anxiety, fatigue, etc.
Currently doing ABX doxy and amoxil at burrascano doses. Also taking garlic, pau d arco, probiotics, omega 3 and doing lyme low carb diet.
I am currently reading Bryan Rosner's top 10 lyme treatments and this sounded promising. He recommends the marshall protocol mixed with rifing plus some natural supplementation and speaks high praise of salt/vit c. (Plus have also got the Lyme Disease Solution & Coping with Lyme)
This gave me new hope, but when I read the lymenet posts these are not spoken of that highly.
It says that amoxil as a cell wall inhibitor shouldn't be taken. Am I doing damage by taking it? Should I stop?
I feel that there is nobody here to help me and that the only person who really wants to do the legwork to find a good treatment plan is myself!! Knowledge is power, but I am feeling a bit defeated.
Thanks
Kelly
-------------------- Sx Start Jan 08 (test neg, but herxing)Susp Lyme, Bart + Babs??
ABX Doxy 400mg + Amox 1g Jun - Sep 08 Rifampin 600mg + Biaxin 1000mg Tinidazole 1000mg/day - Sep 08 to June 08
Currently taking Salt/C 15g (himalayan salt)
85-90% better Posts: 231 | From Australia | Registered: May 2008
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My LLMD prescribed Probenecid to help the Amoxy penetrate better. At 123 pounds, I was on 2500 mg. three times daily. He did a peak level blood test to be sure my levels were optimum.
I also took it with Plaquenil, which busts cysts.
At some point you may want to switch things around .... you can try something like omnicef/probenecid instead of amoxy/probenecid. You can take something like Zithromax instead of Doxycycline.
Familiarize yourself with Dr. B's guidelines. (I'm not a doctor )
You might check out the book Healing Lyme by Buhner. He is balanced .... he doesn't say herbs only, but he has good info on herbs.
I don't agree with restricting sunlight/vitamin D with Lyme, so I personally disagree with the Marshall Protocol for Lyme Disease, though it may work for the disease it was originally intended to treat.
Some have seen benefits from rife.
There is no magic bullet, so beware when anyone claims to have one. Maybe there will be someday, but right now we just don't have one. There are some studies going on with infrared light that are promising. Time will tell.
If there were a CURE, none of us would be here struggling. That's what we all want.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Yes, we're ALL going for the cure... if there is one.
I agree that salt/c and marshallp are not my idea of cures, but maybe they work for some.
I think Bryan's best book is his first one: Lyme and Rife Machines.
It's hard to say if amoxy is good or bad. It never did much for me though.
I got the greatest help from Biaxin.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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bettyg
Unregistered
posted
kelly,
have you tried to make contact here with other AUSSIE MEMBERS?
here's how you can find them...go to top; click on DIRECTORY
go to left side, 2nd blank line and type in Australia line below that, chose LOCATION using arrow
click send
it will bring up all aussie's that showed australia; people on bottom of list are most current members you might try to make contact with, etc.
as you stated above, YOU MUST DO YOUR OWN RESEARCH; KNOWLEDGE IS POWER.
have you also out treepatrol's newbie archive links below??
also, please see below, TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
I feel frightened there is never going to be a way out and its hard to know if you're doing the right thing when nobody knows anything about this here.
I have made contact with some other Aussies. Will check the list to see if I've missed any.
Does anyone know if you can get Rife Machines in Australia?
-------------------- Sx Start Jan 08 (test neg, but herxing)Susp Lyme, Bart + Babs??
ABX Doxy 400mg + Amox 1g Jun - Sep 08 Rifampin 600mg + Biaxin 1000mg Tinidazole 1000mg/day - Sep 08 to June 08
Currently taking Salt/C 15g (himalayan salt)
85-90% better Posts: 231 | From Australia | Registered: May 2008
| IP: Logged |
Does anyone know if you can get Rife Machines in Australia? [/QB]
Most likely. If not, they can ship from the US.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
high dose amox and zith for 2 yrs got me over the hump. then switched the zith to biaxin and pulsed a year. then detoxed and buitl up immune a year.
i got a lot better. worked sick at a teaching job for 20 yrs
maintained with herbs 5 yrs until phys and emot trauma brought me down-back on tx
the other therapies didn't help me except sauna for detox...abx was the key-then clean up and maintain with herbs
remember there are different strains and different coinfection s so the combo probably determines what will work
what i have seen first hand over 20 yrs is zap it with abx-take care of your body-maintain with herbs and supps
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Thanks for the information on directory. I have wanted to converse with Texans, too.
Posts: 31 | From Central Texas | Registered: Sep 2007
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
There is no "cure" or complete erradication known to be possible with current approaches.
Also, most of us have heavy metals, parasites, viruses, etc. that also must be dealt with. Once we have chronic Lyme, we cannot get well just by a focus on getting rid of the Lyme infection. There are many other factors including thyroid, adrenals, immune dysfunction, etc. that require attention as well.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
Rife machines are available in Australia. As in the U.S. you have to be careful not to buy a scam device.
They are officially considered "quack medicine" so the obstacles that exist here for manufacturers are also in Australia.
I would consider joining the Rife Forum as there are members from Australia that can recommend a decent Rife device.
D Bergy
Posts: 2919 | From Minnesota | Registered: Aug 2006
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posted
Thank you everyone so much for all the advice.
Kelly
-------------------- Sx Start Jan 08 (test neg, but herxing)Susp Lyme, Bart + Babs??
ABX Doxy 400mg + Amox 1g Jun - Sep 08 Rifampin 600mg + Biaxin 1000mg Tinidazole 1000mg/day - Sep 08 to June 08
Currently taking Salt/C 15g (himalayan salt)
85-90% better Posts: 231 | From Australia | Registered: May 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Personally, I was disappointed in the book about the top 10 lyme treatments. I felt much of importance was omitted. But, as with all books, it's just a piece of the puzzle.
Be very careful if you try the salt techique. And do more research beyond the book about it, too.
I do think Rosner's book about rife is fabulous and I learned a great deal about why lyme seems to eat up all our magnesium, etc.
Lyme Disease and Modern Chinese Medicine - by Dr. QingCai Zhang, MD & Yale Zhang
you can access his web site through www.hepapro.com or try www.sinomedresearch.org and use "clinic" and then "clinic" for the passwords or call Hepapro.
posted
While this is a very caring and supportive community on this site, remember that all of us on here are sick. No one wants to think, talk or post about Lyme when they are well - they are going on with their lives. It might seem hopeless when you are reading so many postings from people who continue to be sick, but there ARE people who are cured once and for all from ongoing Lyme. I know a few myself. It can happen!
Posts: 144 | From Connecticut | Registered: Sep 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
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