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» LymeNet Flash » Questions and Discussion » Medical Questions » sunlight- lyme symptoms

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Author Topic: sunlight- lyme symptoms
maureen2174
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Hi all,

I pretty much have no lyme symptoms at all when I am able to get out in the sun. Does anyone else feel this way?

It is as though my body craves sunlight. I live in NJ and went to Florida for a week in early April and had no symptoms. All the days I am able to go out in our boat, etc. I feel great.

Maybe I have a vitamin D deficiency? hmmmmmm.....

I think I would tank if I were to ever try the Marshall protocol.

Just looking for some thoughts. I never did have my vitamin d levels tested. not sure what tests to ask for concerning this.

thanks!

Posts: 871 | From NJ | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
ptbrisa
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I agree,

I feel much better in warm, sunny places. I just started taking Vit D3. My test results were low in Vit D. But after reading newby info by treepatrol I am not sure the testing was done correctly. Anyway, the vit D isn't making me feel worse.

Posts: 21 | From california | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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I bought a Dr. Mercola tanning bed so I could feel good throughout the winter, too. [Smile]

I never, ever thought I would fake bake .... but he has addressed some of my concerns (EMF's) and I get the real sun when it's available. I also don't use it for great lengths of time, so I never have a really dark tan.

But for the past few months, I've been outside getting the real thing.

You are fortunate, when I first started treatment, the sun would make me feel worse instead of better.

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
Parisa
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The sun makes my husband worse but I think it's some type of secondary porphyria reaction.
Posts: 984 | From San Diego | Registered: Nov 2006  |  IP: Logged | Report this post to a Moderator
Clint31
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i have to say since i've had this and been on doxy it is hard for me to stand the sun. I just wilt.

--------------------
DX'ed Lyme Disease: 7/7/2008
DX'ed Babesia, Epstein Barr, Liver Parasite 8/15/2013.

Posts: 739 | From Columbus, Ohio | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
ICEiam
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The sun used to make my daughter feel better. She fake and baked once a week in the winter and she always felt better for a few days.

Then something changed and now she is heat sensitive, her already bad headaches get horrible when out in the sun. Go figure.

This is the strangest disease there is. The way it changes all the time.

HUGS,

--------------------
ICEY

Posts: 468 | From Las Vegas NV | Registered: Jun 2005  |  IP: Logged | Report this post to a Moderator
Piegirl
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Maureen,

YES! I feel so much better in the sun. I also notice that when we go out on our frind's boat, I feel good the entire time.

Or when I'm inside my house all day and I feel out of it, if I go lay in my hammock outside in the sun...I suddenly feel better.

It's been this way since I got sick four years ago. When I was at my worst, sitting in the sun was pretty much the only thing that helped.

I often wonder why this is. I really have no idea what would be the cause. The vit D thing sounds like a good suggestion though.


I'm very interested in hearing more comments.

Mary

Posts: 161 | From AZ | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
LymeMECFSMCS
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I feel SO SO SO much better in the sun. It makes a huge difference for me.

Earlier in my illness, I had more of the porphyria-type reaction people are talking about -- light would often make me feel sick and my circadian rhythms totally reversed so I was rarely awake in daylight.

But now, I am craving sun like nobody's business. When it is sunny, I spend all day lying in the sun. I get much worse when it is cold, damp, or overcast.

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DakotasMom01
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I too am much better in the summer sun, than in the winter months.

I crash on the on the dark, rainy days though.

--------------------
Take Care,
DakotasMom01

Posts: 371 | From NJ | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
nwisser
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In the hot sun I get extreme brain fog. I guess it's different for everyone.

--------------------
Just because it' s not nice doesn' t mean it' s not miraculous.
--Terry Pratchett

Posts: 121 | From Nazareth, PA | Registered: May 2008  |  IP: Logged | Report this post to a Moderator
randibear
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i get really sick in the sun. the perspiration starts literally pouring off me, in my eyes, runs down my neck, i get soaked within minutes.

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
Cold Feet
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Is it possible that sunlight is palliative? Or suppresses the effects of intracellular bugs?

This is the stuff that many debates are made of...search for the Marshall Protocol and you will find all kinds of good stuff on this subject!

I am an MPer in the final phases and doing great. Went hiking and biking today. No, I am not a fanatic -- I believe in the best remedy for YOU.

But I am grateful to Marshall and all of you who supported me through some tough times.

--------------------
My biofilm film: www.whyamistillsick.com
2004 Mycoplasma Pneumonia
2006 Positive after 2 years of hell
2006-08 Marshall Protocol. Killed many bug species
2009 - Beating candida, doing better
Lahey Clinic in Mass: what a racquet!

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Cass A
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I used to get very exhausted if I was out in the sun--would need to sleep for about as much time afterwards as I was in the sunlight.

I've been wearing the NoIR sunglasses from the Marshall Protocol for about two years, and do find that I have less mental symptoms and less brain fog.

I'm still treating for Babesia, then we'll see which direction will work the best for me.

Best,

Cass A

Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
   

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