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» LymeNet Flash » Questions and Discussion » Medical Questions » Relapse after 2 months symptom free.

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Author Topic: Relapse after 2 months symptom free.
yanivnaced
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My wife was doing well after a year of treatment (6 months abx and 6 months herbs).

She was totally symptom free for about 2 months from late June to late August.

Then out of nowhere it hit. Her old pre-treatment symptoms came back: heart palpitations, panic/anxiety, extreme fatigue.

She has been on the full Lyme/Babesia/Bartonella herb protocol all the time.

Is it common to cycle between several weeks 100% symptom free and fully symptomatic?

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pamoisondelune
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I hope someone answers you; i'm just curious--- what herbs or which protocol-- Buhner, Cowden, both, or what?

--- from pamois.

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sixgoofykids
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I would call her LLMD. It may be time to cycle in some meds to nip it in the bud.

Sometimes a protocol can be used cyclically. For example, if a woman flares during menstruation, she can take meds during that time of the month only.

So, it might be worth either tweaking the herbs or adding in some meds. From my experience, don't deny it's a problem and delay. That cost me a couple months.

It also might just be a matter of trying different herbal protocols to find out which one will keep her symptom-free. It might be something she has to "manage."

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Ticktoxic
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It has to be a relapse if she was symptom free for 2 months. There could be some ups and downs in the beginning when someone is going off meds, but this would be completely different. What is your wife's screen name....tabers?
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seibertneurolyme
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My guess would be a Babesia relapse. Hubby has been trying on and off for 4 years to get rid of his babs. He has had it appear to go away for several months and then come back more than once.

Bea Seibert

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tdtid
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I agree with Bea that the symptoms sound sort of babs with the relapse, but something my first LLMD told me that has stuck in my brain, but have no truth to the real validity of it is:

He said that if you relapse a few days to a week after stopping treatment that it is usually a co-infection relaspe.

He said if it takes a couple of months, it is quite often a lyme relapse.

Again, I have NO CLUE if there is any truth to any of this, but that was what he use to us.

No matter what the reason for the relapse, I agree with sixgoofykids that you want to call the LLMD asap and get her back on some meds before it gets too far out of control again.

The faster you catch it, the better your results. Good luck and please keep us posted.

Cathy

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yanivnaced
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My wife's going to contact her ND hopefully in the coming week.

She is on an elixir containing Andrographis, Uncaria, Smilax, Artemisia, Dipsacus, Hydrastis. She was also doing some Myco tincture from Raintree, which contains around 10 herbs from South America. And she's also taking extra virgin coconut oil daily. This is as broad spectrum as you can get!!!

And no, she is not tabers. I haven't seen tabers here or on another board of late - I think she's doing well.

We are hoping it's a massive die-off reaction rather than a slide back, as she is on such a broad spectrum treatment right now. The ND mentioned that every 2-4 months one can expect a worsening of symptoms due to cyclic die off. Hope to confirm this with the ND soon.

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CD57
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Cathy, I've heard the same thing. This makes sense due to the bugs' reproductive cycle (babs is every 12 hrs, bart every 5-7 days, lyme is 28 days or so).
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pryorka
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I'm not sure about babesia only taking a week or so to relapse. The CDC and Schallers book both say you could relapse from babesia weeks to years later, same as malaria. I guess it's because it could be asymptomatic for a long period while you're thinking you've killed it all. I know I was asymptomatic for two years before I actually got sick (thanks to the flu-shot)
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pamoisondelune
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I'm no expert, my idea is not worth much, but it just seems to me that the herbal dose she is taking is not very strong. I know it wouldn't be anywhere near strong enough for me!

Is this a custom-made elixir? Does it provide the Buhner treatment dose equivalent of Andrographis 1600 mg, 4 times a day? Is there a reason it does not contain the Astragalus that Buhner recommends for prophylactic protection?

The Dipsacus (Teasel) may not do anything at all if the lyme is not susceptible to it. Some kinds of lyme aren't.

If it's for treatment, how come she isn't using the Polygonum, which is so harmless (apparently) and easy to take? Buhner says it can be taken every 10 minutes if necessary.

It just seems to me that there are a lot more things to take; but then i don't know how high her dose is.

---from pamois.

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yanivnaced
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Hi Pamois:
Not sure what the dosages are. It's just a bottle of liquid extracts all mixed together - it's custom made for each patient but I think that's his base formulation for Lyme + Bart + Babesia. He does switch up the herbs in case of a plateau. I think Buhner has some commonalities with other herbalists, but each has their own specifics.

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