posted
I have made an appointment with one of the LLMDs given to me (thank you) and in talking with him for the first time I was amazed at how much time he was willing to give me (his office was closed for the day). While we were talking, I was having to get my kids off the bus. He asked how my children were healthwise. I mentioned that they were both developmentally delayed. He asked if they had a diagnosis. They have gone through much testing, but we have never had a diagnosis. They have both had issues since birth and through Early Intervention, and therapies across the board (speech, physical, occupational) we're getting by, but it is going to always be an uphill battle. I can't remember exactly what he said as I was having a panic attack, but it was along the lines that Lyme has been associated with developmental delays.
So, has anyone heard of this? I found some articles by googling, but not a lot. If their delays are at all associated with Lyme, are they reversible or at least improved if similar treatment is obtained?
To say the least, I am sick to my stomach, and going through major mom guilt. Thanks.
Posts: 11 | From Eastern Central, PA | Registered: Sep 2008
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adamm
Unregistered
posted
Yes, and sometimes to a very great degree. You'll see what I mean
if you do a search for Lyme-induced autism.
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The older one is almost 17 and has been sick for 2 years (orig dx'ed with CFS) She is undergoing treatment for LD....finally.... and the results have been wonderful. She began having cognitive issues, when she first got sick. Thankfully, that is resolving, along with the other symptoms.
The little one, received services for speech when she was 2. She seemed fine until this summer when she was having odd symptoms and was dx'ed with babesiosis and lyme, which apparently she has had for awhile. Mind you, I never would have even had her tested had I not gone through hell already with the first one. She also was dx'ed through the school district with "auditory processing" problems and is now receiving a ton of services.
Both of them went for SPECT scans of their brains and are going in for MRIs of their brains as well. Lyme can cause all sorts of cognitive problems. Things like auditory processing issues are supposedly reversible with treatment.
I took my kids to see Dr. J. He is the best for kids. I would encourage you to make an appointment with him (3+ month wait) soon. In the meantime, try to see if you can get your LLMD to test your kids for lyme through Igenex, and also have them tested for coinfections. Maybe your LLMD could also treat them.
I understand the mom guilt, but please, don't dwell on it. Really, how could any parent have suspected this???
And, my friend, who walked around w/CFS for over 20 years, was dx'ed with lyme. One of her biggest symptoms was/is panic attacks. Those have diminished greatly with treatment for lyme.
Good luck to you and your kids. I know it's very tough. Hang in there!
Posts: 214 | From where ticks flourish | Registered: Dec 2007
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