posted
hello all, im wondering if anyone has been on LDN, and if it helped you at all. very interested about it doc said i can try it once im off narcotics. any imputs appreciated
feel well, brian
Posts: 217 | From Everywhere | Registered: Nov 2006
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posted
hi, brian--i just left a query about 4-6 msgs below yours--title is 'herxing'--i mention my ldn experience in it. see if that helps answer your question. if not--let me know.
what have u been diagnosed with?
-------------------- grape
*DX w/ MS March 1987 *Tested + for several lyme bands and erlichea July 2007 *Full Cowden protocol 7/07 - 4/08 *2000mg tetracycline since May 2008 Posts: 18 | From maryland | Registered: Jan 2008
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posted
my bad, brian---i posted at 8:09 and the topic is 'herx question' or 'herx query'---my memory is slippin' a bit tonite!
-------------------- grape
*DX w/ MS March 1987 *Tested + for several lyme bands and erlichea July 2007 *Full Cowden protocol 7/07 - 4/08 *2000mg tetracycline since May 2008 Posts: 18 | From maryland | Registered: Jan 2008
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
i started 4 days ago it seems to be helping me a lot.
im sleeping for the first time in years.
its all i want to do infact!
cheers
derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Awesome Derek!
Brain, Have you tried this yet? Doctor said ok to me too, but when he said insomnia was a side affect, made me think twice.
Like Derek, I have trouble with sleep.....
Interesting to see that it made you sleepy Derek.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
The insomnia only lasts for a week or so.
I take LDN for Crohn's disease. It can help boost your immune system, but it is not likely to get rid of Lyme on its own. I have no experience in using it for Lyme disease, but I would think it could help quite a bit.
Since the side effects are minor, it surely cannot hurt.
D Bergy
Posts: 2919 | From Minnesota | Registered: Aug 2006
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
i had terrible insomnia the first 3 nights, followed by what i now refer to as the great sleep...
seems ill be sleeping tonite as well. ill take it as long as i can!
cheers
derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
I actually discovered that I had Lyme because of LDN. I tried it to see if it would resolve digestive symptoms and fatigue, and it provoked many classic symptoms of Lyme to begin. I couldn't handle continuing the LDN, but clearly it is a very powerful immune stimulant. I'd like to try it again after I've been on antibiotics longer and hopefully the overall bacterial load is lower.
Posts: 195 | From Manchester, CT | Registered: Jun 2008
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
was on it 2 yrs for "MS" prior to finding out Lyme.
I had similar response as Funky...woke up immune system got all the lyme stuff...pain, joint swelling, and increased MS like stuff.
Even had increase in brain lesions. (no new or enhanced since lyme treatment.)
Founding Dr. in NYC was my MS doc at time. He was thrilled I found Dr. P. & that Lyme was the cause of my "MS".
I can't take LDN while on abxs, feel like I'm dying 1 hr. after.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
now this has me worried if some of what i have been experiencing lately is actually from the ldn or causing the immune response to overwhelm.
i will take a break soon and see.
thanks all
derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
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