CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
I'm curious.....duration and intensity? I thought that they were all bad, and all long?!
Posts: 3528 | From US | Registered: Apr 2007
| IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Bumping you up for hopefully some who got immediate relief.
I am on month 8 of mepron/biaxin/cipro.
Had drenching night sweats about 2 days ago.
Good news is that they are coming farther and farther apart.
Herxes only lasting 2-3 days in duration.
I think there are some resistant strains out there.
I must have one of them.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Oh Geneal! is it getting any better as far as the other symptoms? One person I know did 2 yrs of babesia tx. My LLMD says 10 months minimum for b. duncani. did you get headaches and vertigo and palpitations? what did you do for those?
Posts: 3528 | From US | Registered: Apr 2007
| IP: Logged |
Rianna
Frequent Contributor (1K+ posts)
Member # 11038
posted
[QUOTE]Originally posted by DizzyUp:
Do it you just have to..... I had immediate relief when startig Malarone 3 pills with breakfast and then had a herx from hell for a wek 3 weeks in but its your only way of getting better if you have it.
CD57: you are right 10 months minimum I believe although the intensity of the herxing normally goes after month 4 i am told - Lets hope so as i have experienced Lyme Herx's before but this is like HELL
Rianna
[ 04. October 2008, 05:15 AM: Message edited by: Rianna ]
Posts: 1172 | From UK | Registered: Jan 2007
| IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I rarely get headaches anymore.
Still get palpatations, but then I also have POTs and sometimes
It is hard to tell what issue is which one.
I think after month 10, I go back to malarone.
My air hunger continues to be present. It is better though.
Problem is the biaxin just doesn't do it for the Lyme.
I feel my symptoms slowly creeping back in on me.
Joint pain yesterday. First time in months.
Stabbing pains, breast pain, etc.
I tested via Igenex Fish test but was negative.
Yet was so highly symptomatic for babesia, that my LLMD diagnosed me.
This is my 3rd round of babesia treatment.
Hopefully, my last.
My LLMD says there is a 90% occurrence of babesia with Lyme in our area.
Lucky, lucky me.
I hope to get my POTs symptoms more under control.
I think this will help me with the air hunger issue as well.
Try not to look at a time frame.
It is hard to do.
I am going on 2 years of treatment next week.
I am still going and still making progress.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/