Any thoughts?
Posts: 472 | From New Jersey | Registered: Dec 2007
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adamm
Unregistered
posted
The folks at Stony Brook exclude a lot of important bands because we're an inconvenience to them and they thus need to make it appear that we don't exist.
posted
Do you know if you can find out the other "cdc nonspecific" bands? Its seems strange to me that your tests show completely different bands at the different labs, especially being done so close together????
Stonybrook showed more bands for me than my local labs. I guess all labs are going to get different results although I've never used Igenex. I also had "cdc non-specific" bands in both serum and csf at stonybrook.
-------------------- -Love and Gratitude Posts: 69 | From another planet far far away | Registered: Oct 2008
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gemofnj
Frequent Contributor (1K+ posts)
Member # 15551
posted
Cockapoo,
Read Dr. C's explanation of Igenex western blot.
IND are considered weak positive. Think of it as a very faint line vs very dark line.
Igenex is considered the best lab by far for LYME. There number of bands is much more comprehensive.
Posts: 1127 | From atlantic city, nj | Registered: May 2008
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posted
My LLMD tests through both Stonybrook and Igenex. However, if you write "Request all bands" on the Stonybrook test- they test for everything, even 31, 34, etc. non-specific bands, and other bands the CDC excludes.
On a personal note, I have found my Stonybrook tests to usually have the same basic 6 or 7 bands (1 or 2 might be different) each time.
My Igenex results change each time, with each test.
I don't know what to think about that.
Posts: 371 | From CT | Registered: Jun 2008
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Igenex is considered the best lab by far for LYME. There number of bands is much more comprehensive.
Ditto
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
That's a huge issue to me if Igenix's bands change on every test you've had. Something seems really wrong about that? That'll make me start questioning stuff.
quote:Originally posted by JKMMC09: My LLMD tests through both Stonybrook and Igenex. However, if you write "Request all bands" on the Stonybrook test- they test for everything, even 31, 34, etc. non-specific bands, and other bands the CDC excludes.
On a personal note, I have found my Stonybrook tests to usually have the same basic 6 or 7 bands (1 or 2 might be different) each time.
My Igenex results change each time, with each test.
I don't know what to think about that.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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jamescase20
Unregistered
posted
I was informed by someone who would know that the deal with stoneybrook is this.
The doctor has to call for the test results...and then they "whisper" wether or not the test had bugs.
posted
But, the strange thing is the consistency of the Stony Brook tests and then the difference in the IgeneX.
I am thinking that possibly the labs perform their tests differently so that the results come out different. I am confused.
Not about that I have lyme. I know I do. My herx reactions have been very consistent with lyme. Maybe that is the best test?
I started Flagyl about 1 month ago with the new LLMD, herxed horribly, but now for the first time in about 6 months, I have been able to get out and have some fun. Posts: 472 | From New Jersey | Registered: Dec 2007
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