posted
Ok so for a year now I have been tired in a way that is unbearable, that started out as the only symptom then i developed a nausea that I still have to this day. My docs can't figure out why I'm weak and dizzy all the time. I feel so exhausted and out of it literally all the time. I'm 24 and have 3 hours of energy a day. I can't drink, it's hard to work full time - I get anxiety and can't figure it out.
My western blot test came back negative.
Two years ago I lived in a house with cats that turned out to have flees. There was a major bug problem and an outdoor porch. We flee bombed and figured it was all ok. After moving a month later I got a bullseye rash that itched like CRAZY it looked like giant baseball sized bruises. I went to the ER and 3 doctors came in and couldn't figure it out. They told me to take benadryl and charged me $1500.
If my western blot came back negative twice am I in the clear?
I have high DHEA and very low Vitamin D and Biotin. That's all that's really come up in bloodwork. Any ideas???????
Posts: 4 | From nyc | Registered: Oct 2008
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adamm
Unregistered
posted
Nope--the tests are worthless.
You'd so well to check out lymeinfo.net and lymecryme.org
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gemofnj
Frequent Contributor (1K+ posts)
Member # 15551
posted
If you had a true bullseye rash you have lyme disease. Do take pictures of it if you havent already. If you search online, you can get lots of samples of the bullseye.
I would QUICKLY find an LLMD in your area. He will have you take a blood test from Igenex which is a lab that specializes in lyme disease. Do not waste your time with MD's or Infectious disease doctors as they are not knowledgeable in the diagnosis or treatment of lyme.
Diagnosing lyme is clinical, which means treatment is based on symptoms not test results.
Along with lyme you could also have coinfections. Tests for that may also be suggested.
Take the time to read it, especially the section on symptoms.
Also you can do a search at the top of this page for a really GOOD LLMD in your area. There quite few people on this website that can recommend one if you private message them. I urge you not to WAIT, as the longer you have lyme, the HARDER it is to treat.
Others will also be along to offer other good informative information.
Good luck and keep us posted.
Posts: 1127 | From atlantic city, nj | Registered: May 2008
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posted
I have had so many symptoms and for a year I've been a mess. The rash was ruled a mystery. A dermatologist couldn't tell me and three ER docs just scratched their heads.
It was not a "typical" Lyme rash - Blue and Brown it literally looked like someone threw 50 baseballs at my legs they did have a bullseye look and they itched to the point of tears.
I've been to a dermo a GI 5 pcps an endo and in two weeks I'm going to a neuro. I cant do this anymore.
I also right now have H. Pylori so I've been put on Biaxin and Doxy. Would that have an effect on me if I do have Lyme.
Posts: 4 | From nyc | Registered: Oct 2008
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posted
Oh and I have NO money to pay a llmd what do i do is there a clinic?
Posts: 4 | From nyc | Registered: Oct 2008
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bettyg
Unregistered
posted
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying; so specific titles get our time/replies. non-specific ones, i sob, scroll on by!
Also, please be very specific in the subject line what you will be discussing so more people will be able to assist you.
Dr. Burrascano's most recent "Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @ http://www.ilads.org/burrascano_0905.html suggests that you discuss with your doctor continuing treatment until you are symptom free for 2 months.
please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you! @ http://tinyurl.com/58eyou
***************
in my newbie package above, please copy it all to ms word and then look for FINANCIAL BURDENS by melanie reber, pages 54-93 ??,
print it all off and use it to help you ok!
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WildCondor
Unregistered
posted
You had the rash...then you have Lyme...thats clinical evidence, and you should have been treated when you got the rash! Read up on this..NOW, and get to a LLMD and on treatment, may or may not be a tick borne disease.
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posted
What do I do if I can't afford a LLMD??? I really and truly cant. Is there some kind of clinic?
Posts: 4 | From nyc | Registered: Oct 2008
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posted
I am someone who suffers with a great deal of nausea...it has been my number one symptom since day one. It was so bad a one point that I couldn't function, nevermind eat. I was in really bad shape and doctors were thinking I was going to need a feeding tube.
Do I believe your symptoms could be lyme, yes.
Fast foward a year into treatment and my nausea is much more tolerable. I've gained almost 25 much needed pounds. I still have the nausea but it isn't nearly as bad.
When you say your western blot was negative, does that mean you had NO antibody response? It would be interesting if you found out that you did in fact have some kind of exposure.
Posts: 561 | From mass | Registered: Jul 2007
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