note: TAKE 6TH/duff west ................................
AMES, IOWA
Discussion will be led by me, Bettyg, afterwards.
This is a free event. *********************
IOWANS COMING,
please reply below with your 1st name and how many will be attending please.. --------------------------------------
so handouts can be printed and enough be present; thank you!
BettyG
will print rest of info when I can talk to head person at library. **********************
hi all,
last night i finally was able to get some action from our Ames, Iowa public library to have UOS dvd to air there on Sunday AFTERNOON, Nov. 2, 2008.
time to be announced ASAP
more details to come; she had to leave for weeklong library conference so we couldn't make more details when she called.
my request sent over 2 months ago got lost in the transition of new duties being reassigned!
i've worked over 2 months also with our hospital; again, new people coming on board and my request was lost in tracks! sounds just like lyme doesn't it?
so for those living in AMES, IOWA area, please mark your calendars to attend this FREE event! thanks.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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bettyg
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posted
tracy, so glad YOU got it! SOB .....
we've got iowan's joining daily this week and i'm making sure they see!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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bettyg
Unregistered
posted
tracy, yes, you were rude; apology accepted
posted
I am sure that most Iowans involved and receiving the LDA of IA newsletter know about the free Under Our Skin screenings organized by official LDA of IA happening in Davenport, Council Bluffs, and Sioux City Iowa as well.
If you are from a surrounding state in close proximity to those areas, you may want to consider attending those screenings instead if it is shorter than driving to Betty's. Just wanted to make sure everyone knows about all the options available to them for convenience sake.
-------------------- **Eat Chocolate** Posts: 942 | From USA | Registered: Mar 2005
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
Bummer....I'll be taking poll watching class.
Trout
Betty.........next time co-ordinate with me and we'll do a power point and multiple victim speech I have a very powerful way to tell the Lyme story
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
Betty,
I am so confused.
You are showing the actual movie today?
If so, how did you arrange this?
Mo seems to need this movie for some Virginia doctors to watch to help her son.
Any thoughts on how to get her a video or showing?
Thanks,
greta
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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quote:Originally posted by troutscout: Imanurse....there are two organizations in Iowa.
I currently belong to the one that YOU mentioned and was a former board member of the other.
Let's not cast aspirtions on the other....the original Lyme Association of Iowa...(Iowa Lyme Disease Association)
I left it because of its inneffectiveness....Judy runs a much better ship and has better mental function the the current President of the other. (Judy founded the Lyme Disease Association of Iowa, Story City, Iowa)
The president of the original association suffers horribly from this disease...is isolated by her family...and has been isolated by others in the Iowa Lyme Community due to her Lyme induced problems...her torrets, etc can cause very harsh Lyme rages.
Please give this woman a break.
Judy...is a compassionate person that doesn't participate in this constant public lynching of the other group. (As do you.) Judy is an awesome marketer and her total dedication of purpose is beyond belief...so, watch out anti-lyme people...Judy Weeg is on you like a panther on the prowl!!
Imanurse....please refrain from attacking her in the future...she has done nothing but try to halp the cause...and deserves respect for her efforts.
Gotta love it.
So....respecting both groups...and participating in one........
Trout
Trout, I am disappointed, once again, that someone is trying to turn this into a disagreement when it is clearly not. I was called, by Judy, to post this information online. Because I have temporarily removed my personal website so that I can do an overhaul, I thought it was important to list the other locations here. Nothing in my post above is derogatory in any way, and is only meant to inform. I see no public lynching as you describe and only a pot stirrir. Yes, there are two organizations in Iowa, and both are having showings of Under Our Skin. If it works out better to attend one or the other due to location or logistics, why not make sure everyone knows what is available? I do not understand why I should hide this information from the public.
Give it a rest already.
-------------------- **Eat Chocolate** Posts: 942 | From USA | Registered: Mar 2005
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
Imanurse....by stating the word "Official" as a pre-context...you certainly showed that you... are implying..that the Iowa Lyme Disease Association isn't official.
When...it was in existance before The Lyme Disease Association of Story City, Iowa
Once again...Judy Weeg has done a WONDERFUL job with her organization...I LOVE that girl...good friend....always will be. (And I will personally defend her character.)
I am just saying...that YOU have implied that the organization that Betty deals with....isn't OFFICIAL> Stop targeting Betty's posts.
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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bettyg
Unregistered
posted
hi kent,
please delete your 3 posts here about what imanurse posted for judy. i deleted mine too.
i had the PLEASURE OF MEETING IMANURSE personally today at iowa's 1st showing of UOS! we had a nice visit afterwards.
to clear up the misunderstanding, when she said official, it was the concept that this was a lyme ORGANIZATION showing this vs. being in someone's home on a "personal" showing.
so we cleared up that misunderstanding and a couple of other things.
so kent, please delete your 3 posts; i don't want this turning into a lyme rage 2 iowa orgs fight again. **********
it was 70 outside so we had a small attendance of only 8 people!
5 had lyme 1 possibly 1 mother of lyme patient 1 library asst. director
no kids or babies there so we could hear this very serious film. many tears were shared today.
had a nice Q/A afterwards for those who wanted to share. our only man had just completed his rocephin.
i gave them the latest of iowa politics who had signed on co-sponsoring our lyme disease bill and also that obama had as well.
we had some 1 on 1 and i appreciate shaz's help in things of being organized for this event.
all wanted to see this or something like this again in the future; all POSITIVE FEEDBACK COMMENTS!!
ALL were impressed by the magnitude of what was discussed, shown, and editing job involved in this huge project!!!
Way to go ANDY WILSON/OPEN EYE PRODUCTION STAFF!! ******************************************
our librarian was saying their library will NOT let dvds be lent out on INTER-DEPARTMENTAL loan. i didn't know this until now.
hope all your showings go well and you have a FULL HOUSE; all took their handouts i had available for them.
we were small, but had plenty of quality time where all would NOT have been able to talk afterwards before library closed.
imanurse/i were walking out the door at closing time!
[ 03. November 2008, 12:41 PM: Message edited by: Lou B ]
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posted
Thanks Betty for the nice chat and the hug too! Yes, Betty and I had a nice chat about this and that. She understands me now and why I do what I do... I hope!
I am taking a break from driving and am enoying a turkey panini at a local hot spot. Kewl! (I totally feel old with all the local college hotties doing homework here and jamming with their Ipods. Geesh.)
Anyway, it was certainly a wonderful film. ANDY and STAFF did a wonderful job showing the complexities of the issues at hand. Very emotional. So many injustices. I wanted to throw my purse or sunglasses at the screen when I heard those evil ducks on film.
I was shocked when I saw myself on the film, even if it was only briefly. I didn't think I would be there. Kind of glad they didn't put the kids in, it would have been too hard of a reality for me to see. Brought back a flood of memories from the memorial service and why we are all trying to fight for our rights of adequate treatment.
Someone asked about the biofilms and MacDonald's latest research. I was embarrassed to say I am not current on the status of his research work since I have not had a lot of time lately to do research on the web.
People.... this movie is soooo important. It needs to reach the masses. We MUST get this on public television and documentary channels, theaters, etc.
I am going to buy a personal copy of the DVD now that I have seen it in its entirely and will definitely be lending it out to those I know that really don't understand what all the fuss is about.
Thanks again BettyG!
-------------------- **Eat Chocolate** Posts: 942 | From USA | Registered: Mar 2005
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
As far as I can tell......no post has been reworded....from imanurse.
I will not remove my posts as imanurse has kept hers up.
Sorry.....until they are removed....mine will stand.
there have been too many....hey, its Ok's when something is not stated correctly on here.
Its a simple fix...go in and remove the word official.
One word...changes the whole meaning of a sentence/paragraph and discussion.
this is not Lyme....I am protecting the legacy of a great person....I would hope that one day some one would do the same for me
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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People.... this movie is soooo important. It needs to reach the masses. We MUST get this on public television and documentary channels, theaters, etc.
Imanurse, glad the showing went ok today and that you and Betty got to chat.
It's my understanding that what you are asking for here is being worked on!
Posts: 13116 | From San Francisco | Registered: May 2006
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bettyg
Unregistered
posted
yes, i agree with imanurse that we need to be writing more emails or calling PUBLIC TV PRESIDENT.
in activism, kris kraft putting all the info awhile back, so if someone has time, please show it here again since many do NOT leave medical forum vs. going to activism...
thanks; i need to email them also!
kent, EMPTY YOUR FULL MAIL BOX please; i've seen many requests in various forums asking you to do this.
i removed premier from ALL my posts; thanks; i didn't know that word was NOT to be used by us.
also, kent, i did pay $95 plus 6 S/H for $101.00 for ames public library to ADD to their collection and loan out locally.
[ 03. November 2008, 12:40 PM: Message edited by: Lou B ]
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bettyg
Unregistered
posted
. imanurse, i've UNBLOCKED you from my ignore list; please remove me from yours and we can communicate this pm way again ok.
also, sorry, i forgot and used your given name in my feedback! i would have sent this privately but i'm on your ignore list too.
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bettyg
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posted
one of our members asked me how i contacted our local library, and that i put my notes on my posts; so this is why it's being added now!
Nancy,
Here's what I did, and I'm capitalizing to put it on my posts about UOS.
1st, if you have a HOME copy, it can NOT be shown at library; only their COMMUNITY copy can that you pay $101.00 total for dvd/postage/handling.
Below is what I sent to our public library and also to our hospital's CEO: Below you will find details galore I wish to share with you.
I'd like AMES PUBLIC LIBRARY to buy 1 copy of UNDER OUR SKIN, 104 minute DVD, and then have one "FREE" viewing.
So a total time of 2.5 hours would be needed for Aud.
This documentary has all the latest news of what is happening in the Lyme world that has been shoved under the rug by the majority of doctors.
I was bitten by a tick that came off my folks' LIVE Christmas tree 1969; I never saw it nor did I have a bulls-eye rash. I got quite sick and went to a local dr. in town who had an opening that day. He diagnosed me with mono/Epstein Barr virus and confined to bed for 2 weeks.
That was the beginning of my chronic Lyme being misdiagnosed for 34 years by 40-50 McFarland Clinic doctors out of 38.5 years I've had this!!
Since I've kept a journal since becoming a teenager, I used that to pinpoint when and where I was bitten since Iowa is sub-zero weather; I was not a gardener then, and my roommates did NOT have pets who could have had ticks on them!
This would be a wonderful "training" tool for the public since Lyme disease mimics 300 OTHER illnesses! I was very bitter at first until I began all the Lyme research I've done the last 4 years, and learned more.
Sincerely, BettyG
PS.. I ended up BUYING/donating this to our Ames library for showing and to be checked out! They currently did NOT have the funds and never pay $100 for any DVD! ****************
I'd like the hospital to buy 1 copy of UNDER OUR SKIN, 104 minute DVD, and then have TWO ``FREE'' viewings: one for public during a weekend afternoon and the other one: for hospital/CLINIC DOCTORS. ---------------------------
I also have in mind to ask the new infectious Dr. Kabbesch to be on a panel discussion AFTER the documentary ends with me and possibly one chronic Lyme literate MD, LLMD, if he is willing to do this.
So a total time of 2.5 hours would be needed for the Aud.
This documentary has all the latest news of what is happening in the Lyme world that has been shoved under the rug by the majority of doctors.
I was bitten by a tick that came off my folks' LIVE Christmas tree 1969; I never saw it nor did I have a bulls-eye rash. I got quite sick and went to a local dr. in town who had an opening that day. He diagnosed me with mono/Epstein Barr virus and confined to bed for 2 weeks.
That was the beginning of my chronic Lyme being misdiagnosed for 34 years by 40-50 McFarland Clinic doctors out of 38.5 years I've had this!!
Since I've kept a journal since becoming a teenager, I used that to pinpoint when and where I was bitten since Iowa is sub-zero weather; I was not a gardener then, and my roommates did NOT have pets who could have had ticks on them!
This would be a wonderful ``training'' tool for all doctors since Lyme disease mimics 300 OTHER illnesses!
I was very bitter at first until I began all the Lyme research I've done the last 4 years, and learned more.
Sincerely, BettyG ****************
ALSO, here is what SHAZDANCER wrote for me that was emailed to our library supporting the showing of the film!
``Under Our Skin'' was made by Open Eye Pictures, a professional documentary film production company with over 20 years' experience.
Back in the day, their work on AIDS helped raise awareness of the discrimination that patients were suffering in addition to their ills.
I personally contacted someone who was the subject of one of Open Eye Pictures' films (choreographer Anna Halprin) for information about the director's work before he even began the film on Lyme, and she gave him a ringing endorsement.
The film has been screened at several film festivals around the country, and has earned a ``Freddie'' award for its reporting on an infectious disease.
The film was underwritten in part by a grant from the Turn the Corner Foundation, a 501 ( c) (3) whose purpose is ``dedicated to the support of research, education, awareness and innovative treatments for Lyme disease and other tick-borne diseases'' (from their mission statement).
I had the opportunity to have the movie screened at our Public Library in Maine. Over 60 people attended, one of our larger audiences for a library event.
My director has noted it in her report to the City Council as one of the notable events of this year.
I recommend the film to you as quality (though controversial) information for your community. If you have any further questions about screening the film or about the contents of the movie, feel free to contact me.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
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