posted
I really can't stand this anymore. I was diagnosed with Lyme about 9months ago following bronchitis, pneumonia, and not responsive to levaquin. I have a wide variety of symptoms but those most severe include fatigue, fogginess, depression and severe mood swings, neck aches and headaches. After I stopped responding to zithromax and plaquenil after positve results intially, my md checked my CBC to find a low WBC count and switched me to mepron for 3 months to raise it?after achieving a 4.6 and still fatigued with headaches switched me back to a doxy regimen. I was also treated with Prozac to help with my extreme moodiness and sadness which helped a great deal. Now I just simply feel like a ridiculous hypochondriac and my pharmacy student friends couldn't agree more but I still have this exhaustion often not relieved by sleep and even on a normal healthy sleep schedule I can't hold my eyes open in class and the headaches and neckaches persist to the point I see as"normal" because I should be better now, but really? I'm so sick and tired, literally, of this and while some symptoms like the fogginess have subsided....I just feel so lost andstupid now. Anyone else have anything like this or ideas? Posts: 1 | From new england | Registered: Nov 2008
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posted
Yes. Been there, and doing that.. Currently 6 mos of abx, after being misdiagnosed for 18 mos. This past weekend was the 2 yr anniversary of when this crap all started, and today I feel like total ****. Sorry for the verbage.
But... if you can manage just a glimpse of normalcy, then it means that you can turn the corner, and eventually, God willing, your good days will outnumber your bad, and you'll eventually be back to normal.
For me, it was little things. Suddenly remembering something I couldnt remember before because of brain fog. Laughing again at shows I used to laugh at, but couldnt crack a smile with lyme. Sleeping longer and deeper with dreams instead of nightmares.
And this past weekend (which probably is why I feel miserable now), I ran on the treadmill for 15 minutes straight. The running was a major hurdle for me as I had ACL surgery 2 years ago, about 3 months before the lyme started, so my knee never completely healed up. And yesteday I pushed myself and it was the most Ive ran since June of 2006.
So, you see, it is possible, but, lyme is a very nasty, slow healing pain in the ....well...its a pain in the whole body.
So hang in there... you're not alone!!
Posts: 514 | From . | Registered: Apr 2008
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gemofnj
Frequent Contributor (1K+ posts)
Member # 15551
posted
Lou,
Sorry you are feeling so down and you are still sick.
Have you been tested for any coinfections?
Are you seeing an LLMD and what does he suggest regarding your symptoms.
I can relate to the fatigue and stiff neck, as many of us suffer with that terribly.
As far as the fatigue, are you taking a very good vitamin and supplements? Sounds like you need to boost your immune system.
Lymies are low in magnesium and b complex which can also help the fatigue and muscle soreness.
Also, make sure you are drinking lots of water because dehydration can also cause mean headaches.
Here are suggestions regarding nutritional supplements and other info from Dr. Burrascano who is the top lyme doctor in the USA. Print this for future reference.
You are not alone and NOT a hypochondriac at all! Having lyme and co's suck!
We all have lots of symptoms that affect so many areas of our body, especially if we have coinfections.
Most people dont understand the complexity of the disease nor do they comprehend how debilitating it can be.
Perhaps trying to educate them would help. If they dont understand, dont worry about it.
Just take care of your self and get the much needed rest your body needs to heal.
Do not feel discouraged as lyme takes a long time and hard to eradicate.
Posts: 1127 | From atlantic city, nj | Registered: May 2008
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Lou - I'm sorry you're still having aches and pains.
It seems to me what you're going through is normal with lyme.
And you shouldn't expect to feel better and completely healed from lyme within only a few months. This disease takes a pretty long time to eradicate or get down to a load that gives people no noticeable symptoms.
Most people have co-infections that have to be treated as well, and treatment for those can be much longer than a few months in themselves, just like treating lyme can take a year or even years to treat.
You're not a hypochondriac. You have a real disease that causes all these symptoms as well as the depression and anxiety and the thoughts you are a hypochondriac. For years and years I thought I was a hypochondriac because I had symptom after symptom after symptom and had no idea why.
You WILL get better. It just takes MUCH longer than a few months. Give it time.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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bettyg
Unregistered
posted
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @
please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you! @ http://tinyurl.com/58eyou
Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying; so specific titles get our time/replies. non-specific ones, i sob, scroll on by!
Also, please be very specific in the subject line what you will be discussing so more people will be able to assist you.
***************
please go to my newbie links, copy the entire thing, and then print this off....
financial burdens compiled by melanie reber pages 74 - 92; outstanding info there.
also in my table of contents, for FINANCIAL BURDENS, i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences. thoughts and prayers headed your way..
Betty's POSTING GUIDELINES
When you post or reply, please break up your solid, continuous block text welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.
specifically, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.
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adamm
Unregistered
posted
Classic case--everything about it.
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.
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