posted
I have tested very positive for Babesia, bartonolla and Lyme, 10 bands Wb.
After 5 months of treatment I am feeling better, but still not OK. Tired all the time and cognitive.
My LLMD suggested a FISH test to see levels of babesia,however my insurance will not cover this.
It's 200. Do others think it's worth it. What will it show me? And if I contine treatment will I need this a few times to monitor the loads in my blood.
To be starting bicillian shots next week, but am still concerned about babesia and bartonolla. Thanks
-------------------- Positive 10 bands WB IGG & IGM + Babesia + Bartonolla and NOW RMSF 3/5/09 all at Quest
posted
For us it was an important test. My son has been sick for 12 years--we knew he had Lyme and Bart, both pos. by PCR, and we suspected Babesia. He had been treated for a few weeks a couple of times.
His FISH came back positive in April. They visualize the organisms in the RBC's so it's considered very definitive. For us this is major, b/c now we know that we need to treat long term.
I don't know what the schedule is for re-testing, if there is one. It's just good to know that he has active infection so we can treat and not feel like we're shooting in the dark.
Nancy
Posts: 688 | From Florida | Registered: Aug 2001
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
I also tested positive in April for babs via the fish. I also now have confirmation for what many llmd thought i had. Its good for me to know what I have to treat now and how much money I need to shell out for the malarone.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
My Fish through Igenex was also positive as was one of the other tests. The other test was positive by IGENEX standards, not CDC standards.
If you get a positive, is it a good indicator or are there false positives? I was hoping this helped me realize I DO have this bug and others.
what are night sweats??? I haven't had those.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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posted
I tested negative twice at Igenex for Babs. The last one that I tried there was the FISH. I don't think that it's any where close to as accurrate as they claim that it is.
I almost gave up on checking for it after that, but when Dr F came along with the blood smears, I figuered that I better make sure, and it's a good thing that I did because it was a big fat positive.
If the $200 isn't a big deal for you, then I say go ahead and try it, but just don't be so sure that you don't have it if it comes back negative.
-------------------- You're only a failure when you stop trying. Posts: 945 | From U.S | Registered: Oct 2004
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
quote:Originally posted by micul: I tested negative twice at Igenex for Babs. The last one that I tried there was the FISH. I don't think that it's any where close to as accurrate as they claim that it is.
I almost gave up on checking for it after that, but when Dr F came along with the blood smears, I figuered that I better make sure, and it's a good thing that I did because it was a big fat positive.
If the $200 isn't a big deal for you, then I say go ahead and try it, but just don't be so sure that you don't have it if it comes back negative.
What do you mean, Dr F? I thought the blood smear was the FISH? My Babs FISH came back positive in July and I have been on Mepron and Azyth for 4 months. They are re-testing me next month. I am wondering if a positive is prettyaccurate, meaning could it be a false positive?
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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