Topic: LymeMD blog: says treating Lyme first works better
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
An interesting excerpt from LymeMD blog. He says to treat Lyme first but not for how long. www.lymemd.blogspot.com ---------------------------
How do you treat Babesia? If the gate theory is true, then Bb(Lyme) is the primary organism which causes immune suppression. Babesia in most cases can be considered an opportunistic infection. It seems, based on my experience, that very aggressive Lyme therapy should preceed Babesia therapy. The results are better. If the Babesia symptoms are very sever then a touch of of Malarone or Artenesin can be given to cool it off while Lyme is treated. Even this may cause unbearable Herxing and Lyme alone should be treated (my experience). The notion that co-infections should be treated before Lyme doesn't work well for my patients.
Posts: 3528 | From US | Registered: Apr 2007
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Jill E.
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I know there's all this talk about treating the coinfections first, but isn't the reality that most of us get diagnosed for Lyme first, then the coinfections get tested? That's how it was with me.
Granted I was put on Doxy first, which does work on Lyme and Ehrlichia (I'm positive for Ehrlichia and Anaplasma), but my Lyme treatment was not put on hold when the coinfections came back positive, because I was already doing better on Doxy.
So I wonder how many people really end up getting treated for coinfections first? At best, isn't it usually more simultaneously? I'd love to know how many patients are pulled off Lyme treatment to go after Babs and Bart first.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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Tracy9
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My LLD agrees with this, and feels that Lyme is the "worst" by far of the infections. He thinks it is the hardest to eradicate and the most troublesome.
I feel like Life with Lyme is just a rotation of treatments, well more like "Whack A Mole" really.
You hit one for a few months, knock it down, and another one pops up. You hit that one, and on and on.
I have lost sight of the hope that there is an end in sight, rather I find myself just looking onto which is going to be whacked down next.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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TerryK
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I've been treated concurrently. Lyme + a co-infection then on to the next co-infection - all the while treating lyme. That makes the most sense to me as well.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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CD57
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Seems like Lyme and babesia lend themselves to concurrent treatment. Not Lyme+bart though.
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Rianna
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My take on this after reading the latest stuff from Dr B is that although a co-infection must be treated Lyme must not be ignored, as he says some doctors go after the co-s and concentrate on those and forget the Lyme.
Personlly with my treatmnet I have been on antibiotics for Lyme IV for 5 1/2 months and then I was told 6 weeks in we MUST treat the babesia so we started with 4 x malarone and then the Clindamycin/Quinine as it treats babesia but also Clindamycin is exceptional for Lyme, so here we are treating Lyme and Babs together.
And yes many doctors are saying Lyme is the culprit so it must be treated 1st along with babesia treatment and when the load is down your body will start morpping up the rest.
So my take on this would be Heavy Lyme Treatment, babesia treatment if you can use a med that also treats lyme and then other co-infections alongside the lyme treatment.
As you know you can test babesia by giving them mepron as that seems to bring out the symptoms as with myself I had a negative babs test that went positive after Mepron.
He is so right in that blog when he says "My clinical experience confirms that when patients are placed on anti-Babesia therapy they experience massive Herxheimer reactions. The sweating increases. Pain and fatigue increase. Even cognitive dysfunction- brain fog and memory loss increases substantially. These reactions can be much more intense than those associated with initial anti-Borrelia (Lyme) therapies".
But I would add to that when you have done the babs herx's you make massive steps forward.
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