I've recently had a CAT scan of the abdomen for GI issues, which also incidentally showed "multiple sclerotic foci throughout sacrum and iliac bones. . . nonspecific."
I have to start the treadmill doctor hooha to figure out what this is. But my GP is behaving as if I already have metastatic cancer to the bone.
Well, it could be. But I'm hoping Lyme is the reason. I've learned to live with bone and joint pain, and really have not run to the doctors in a long while, just thinking, this is what life is like with Lyme.
I've just learned to live with the aches and pains, fibromyalgia, fatigue, depression, brain fog. I have thought to consider myself lucky and be of the glass half full mentality.
Anyone have any experience with bone changes seen on films?
Thanks for listening !!! Fingers crossed . . .
Posts: 90 | From New Jersey | Registered: Nov 2005
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posted
Why aren't you being treated? You can't just "man up" and tough this thing out -- its going to kill you eventually in one of a myriad of ways (heart failure, atherosclerosis that produces a stroke or heart attack, alzheimer's, parkinson's, ALS, cancer due to inflammation combined with immune suppression, etc). Seriously.
Posts: 195 | From Manchester, CT | Registered: Jun 2008
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posted
I was diagnosed 7 years ago (I had a bullseye rash and symptoms). I've been round the block and back again. Doesn't seem that anyone thinks I should be treated aggressively. In short, I've been given antidepressants and Flexeril. It seems like such an old story now. I do have a call in to my LLMD, who I haven't seen in 2 years.
Actually the person that's most helped me, was a massage therapist - massage work every week for 2 years, along with essential oils, Reikki, some spiritually-based work, practicing forgiveness, that kind of thing.
Over time, I was able to work out, ride a bike and play platform tennis. So for someone with Lyme, that does sound like I'm aokay, right?
I'm so tired of all of this, really. Hopefully we'll know more next week, but I am so not looking forward to dealing with these doctors who look at you with blinders on.
Thanks for listening !
Posts: 90 | From New Jersey | Registered: Nov 2005
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
I agree with Funk. You need to find a LLMD and stick with him/her. Why did you stop seeing him/her in the first place?!
An LLMD is the only doc who will understand and listen to your concerns of lyme and co-infections.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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