tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
I've been treating Lyme for over a year now and am starting to think I also have Babesia despite negative tests.
I have been having issues w/dark urine and blood in the urine and unsuccessful treatment for a UTI. The urinalysis also didn't culture anything. I recently read that Babs can cause this. I do also have some respiratory symptoms which I believe can be due to Babs.
I recently did 6 mos. of Biaxin and Plaquenil and the issues w/blood in the urine started very soon after stopping that combo so I'm wondering if the Plaquenil was keeping things at bay if I do also have Babs.
Anyway, I'm not at all familiar with what is involved with Babs treatment or the duration. If someone could give me a general idea I'd really appreciate it. Is it as complicated and varied as Lyme treatment?
Posts: 2541 | From Northeast | Registered: Jan 2008
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
The length of treatment for babs really seems to vary greatly for people.
I have heard from llmds that many can beat babesia with 5 months of treatment.
Others cannot, and unfortunately need to treat for longer. I have heard of people treating for a year or two.
Like with all TBD's, it probably depends on the strain of babesia, your health status and other co-infections, how long you have had babesia, plus other factors like the treatment you use, your genetic make-up, etc.
Posts: 2557 | From home | Registered: Aug 2006
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I wish I knew the answer to that question.
I know many have whipped it out of there in 5 months. My first LLMD had me on Mepron and Zith for 7 months with other abx tossed in off and on during those seven months.
Then I was referred to a more well known LLMD and he went my a different type of lab testing and told me I hadn't gotten rid of it and had to go back on the mepron along with my IV's and orals.
I was a bit discouraged and said, "but I was on it for 7 months". His comment was that it is very persistent in some patients and I just hadn't gotten rid of it.
So here I am with another 3 months under my belt and I see my LLMD next week. I feel like crap but not sure if it's the lyme or a co.
I guess some of us just want to be difficult patients and hang on to this babs. NOT!!!!!
Good luck.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
Laura, do you know your ferritin status? It may be low if you have babs....
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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