Topic: Anyone familiar with Neurologist Pearlmutter in Florida?
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
He calls himself the renegade neurologist. Has done lots of work with HBO, IV Glutathione for Parkinsons etc.
His CV is phenom!
Anyone have experience with him or his clinic?
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1Bitten2XShy
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posted
Is this the Dr. in SE Fla area?
If so, it is a she (I cannot think there would be 2 of em here in Fla with the same last uncommon name), and I have not heard ANYTHING at all good about this Dr.
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feelfit
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No, it is not the she, NP, who is supposed to be LLMD.
this is just a regular neuro who calls himself a renegade. He is in Naples. www.perlhealth.com
Feelfit
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feelfit
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Perlmutter, not Pearlmutter. Am I allowed to post non-LLMD names? if not, let me know and I will remove.
Feelfit
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seekhelp
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Don't see why you can't. Obviously the doc has no concerns about being anonymous with a resume that long and advertised website.
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feelfit
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Yeah, AND an Oprah appearance
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1Bitten2XShy
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posted
Thanks for clarifying....if it was who I thought it to be, I would have told you to run very fast the other way!
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feelfit
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Thanks 1bitten2shy.
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karenl
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Hi feelfit,
I was very unsatisfied with him. He made a wrong diagnosis, he missed very high bartonella, lyme, inflammation in the brain... I asked for a lyme test but he refused to do it.
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posted
Hubby and I liked Dr P. He was one of the early neuros we saw when he was undiagnosed. However, back in 2001 -- 2002 he was not Lyme literate.
He could not diagnose hubby, although he definitely agreed that he was sick and that he didn't have Parkinsons.
Dr P has a hyperbaric facility and there are probably some Lyme patients who utilize that, but as you mentioned his primary interest is Parkinson's. Last I heard he was doing an FDA study on the use of IV glutathione for Parkinson's.
Dr P was originally a neurosurgeon, but quit that because he wanted to go more into preventative neurology. He is an ACAM doc and believes strongly in nutritional supplementation for the brain -- has written a couple of books including "Brain Recovery.com" and "The Better Brain Book."
However, he is very much an allopathic doc in some ways. Won't do anything that isn't FDA approved. For example, uses IV glutathione, but not IV phosphatidylcholine as per the P.K. protocol.
Used to have an accupuncture doc in his office, a massage therapist and a general M.D. as well.
I would use him to rule out other neuro diseases, but not to make a Lyme or tick-borne diagnosis. If you see him, tell him Steve Seibert says hi -- I am sure he would remember hubby.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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I have an earlier book of his and thought of trying to see him a few years ago. Here are some links from my file:
THE BETTER BRAIN BOOK - By David Perlmutter, MD, FACN and Carol Colman
at the bottom of this page, you can see a video of Dr. Perlmutter on an "Oprah" program. David Perlmutter, MD, FACN is a Board-Certified Neurologist and Fellow of the American College of Nutrition . . .
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In posts above, are some good words of experience and wisdom. If lyme experience is limited, there's only so far even otherwise excellent doctors can go. Maybe he will expand in this area, though.
I have found that no matter how many great things I do to support (and those are important) that the underlying infection(s) demand my attention for progress to happen.
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Thank you Bea and Keebler,
I wanted to see him for a neuro evaluation only. I have a weird MRA. Suspected trouble with my large blood vessels in the brain. this can be a result of infection.
A repeat MRA 6 months after the first one showed unchanged results. Things remained status quo after IV abx and a month of orals.
I have not been evaluated by a neuro. My LLMD says the blood vessels are beaded and enlarged because of infection...vasculitis.
I have no indicators of inflamation: CRP,ANA,SED rate. I just think it would be prudent to get a neuro's view on this presentation.
Would Dr. P be good for this?
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As with most neurologists and especially neurosurgeons Dr P would obviously be more familiar with structural defects than infectious ones.
There are such things as Infectious Disease Neurologists -- few and far between though. Hubby saw one of these at Indiana University -- at that time we had gotten the Lyme diagnosis. She was useless -- wrote us a nice one page letter listig 4 or 5 reasons hubby could not have Lyme -- of course every one of them was wrong.
Things like he did not have a positive Western Blot -- but he did have a positive PCR. He got sick the wrong time of the year. Virginia is not an endemic area for Lyme etc etc.
I think if I was you I would be more likely to go to Columbia University in New York. Dr C I think is the name of the lady neuro there. Have heard mixed reviews about her, but at least she does work with Dr Fallon, so she should be somewhat clued in.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Bea,
My SPECT scan was clear as were my numerous MRI's.
Who knows though? My SPECT was done and read in rural Northern Michigan. My MRA was also done by the same rural Regional Hospital....the only one in Northeastern Lower MI.
A doctor (not LL) here in Florida, dx'ed me the other day with Arnold's Neuralgia (occipital neuralgia). He gave me a shot with a numbing agent to the back of my head (basse of skull).
It did help somewhat. My headache is 24/7 for one year.
Thank you for sharing all of your great info.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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Forgot to add that you should probably try to get a copy of either the film or CD (depends on the technology available) of both your most recent MRA, MRI and SPECT. It would be good to take those to an appointment along with the reports.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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