LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Iv starting

 - UBBFriend: Email this page to someone!    
Author Topic: Iv starting
cuffee
Member
Member # 18491

Icon 1 posted      Profile for cuffee     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi-
I am new to this forum and also am scheduled to start an IV on the 22nd. I understand that it will be in for 4 weeks and would love any tips on how people managed with a PICC line

Posts: 32 | From Southcoast, MA | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
dmc
Frequent Contributor (1K+ posts)
Member # 5102

Icon 1 posted      Profile for dmc     Send New Private Message       Edit/Delete Post   Reply With Quote 
Make sure to take your probiotics as well as keep hydrated...I drank water throughout the day.

Do not over use the arm the PICC is in.

I'm forgetting stuff. Others here will have more tips.

Best wishes.

Posts: 2675 | From ct, usa | Registered: Jan 2004  |  IP: Logged | Report this post to a Moderator
KS
LymeNet Contributor
Member # 12549

Icon 1 posted      Profile for KS     Send New Private Message       Edit/Delete Post   Reply With Quote 
First of all, having the PICC line inserted is no big deal. Seems like it might be but it isn't.

The PICC line is a little bit of an adjustment depending on your lifestyle. You have use of your hand but need to limit what you do in terms of lifting (I think the doctor had told me nothing over 5lbs with PICC line arm). I had a 1 year old at the time which was the most challenging part for me. Of course it is a little bit of a production with bathing as you aren't supposed to get it wet. A little tape and plastic does the trick.

BE sure to have your liver enzymes checked on a weekly basis. I'm assuming you are going on Rocephin (ceftriaxone) and it can be rough on your liver and/or gallbladder. My liver enzymes went through the roof at week 4 but resolved once I stopped Rocephin.

It is a bit of an inconvenience but it is worth the aggravation!

Good luck and hopefully you'll be feeling better soon!

Posts: 561 | From mass | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
designt1
LymeNet Contributor
Member # 16568

Icon 1 posted      Profile for designt1     Send New Private Message       Edit/Delete Post   Reply With Quote 
I got my PICC line in this last Thursday. I am the biggest chicken when it comes to stuff like that and was completely amazed that I didn't feel it at all.

The infusing is a tedious task since I have to use a pump vs. pressurized ball but it's not that bad. Just takes me about an hour and a half and by the time it's done my eyeballs are floating because I have to pee so bad. [Big Grin]

I've been doing IV Vancomycin for the past few days and it seems like it's helping out already. The benadryl I have to take before the dose is making me a bit sleepy though.

However, having doctors out of state and trying to set it up was a nightmare! I got denied home health services from my insurance company so we have to drive 40 miles one way to get the dressings changed, lab work, etc...

Overall, I feel it's an big inconvenience, but have to do it to get better.

Posts: 123 | From Georgia | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
sammy
Frequent Contributor (5K+ posts)
Member # 13952

Icon 1 posted      Profile for sammy     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you all for sharing your experiences.

My doc keeps telling me to consider IV Rocephin but i've been hesitant. The potential complications of having a PICC line scare me. Also, the limited use of the arm would impact my work. And cost is a huge issue. But the continued progression of my neurological symptoms is scary too, really scary. So, here I am stuck in indecision...

And accidentally hijacking of your thread, sorry about that Cuffee. I just wanted to express my appreciation for those of you who have been able to give your advice here. Your experiences are helping me too.

Thanks you all! And Good luck Cuffee [Smile] I hope that this will be a step towards renewed health in the new year.

Posts: 5237 | From here | Registered: Nov 2007  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


Icon 10 posted            Edit/Delete Post   Reply With Quote 
best wishes and welcome!


Welcome; i'm so glad you found us!! You've come to the right place for education and support!


Dr. Burrascano's most recent "Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @

http://www.ilads.org/burrascano_0905.html

suggests that you discuss with your doctor continuing treatment until you are symptom free for 2 months.


this link, making the most of your LLMD visit, may help you also.
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=020605#000005


please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you!
@ http://tinyurl.com/58eyou


Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying; so specific titles get our time/replies. non-specific ones, i sob, scroll on by!

Also, please be very specific in the subject line what you will be discussing so more people will be able to assist you.

***************

please go to my newbie links, copy the entire thing, and then print this off....


financial burdens compiled by melanie reber
pages 74 - 92; outstanding info there.


also in my table of contents, for FINANCIAL BURDENS, i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences.
thoughts and prayers headed your way..


Betty's POSTING GUIDELINES

When you post or reply, please break up your solid, continuous block text [Smile] welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.


please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.


now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.


if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.

NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.


IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.

specifically, delete the first 4 characters of 2ND LINE of a ""


[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox


then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND


we thank you for helping us; [Wink] otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.


LYMETOO'S DR. C'S EXPLANATION OF WESTERN BLOT TESTING!

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=042077

PRINT THIS OFF the full explanation, and then CIRCLE the numbers that coincide with your positives, IND! That will explain your no. results!
------------------------------------------------------

IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.