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Hi, I am a new member from England hoping to receive some help and guidance from other members and experts. We have NO lyme Paediatricians in the UK, and are having to learn about Lyme mainly from the internet!
Our issue is that whilst our UK paediatrician (he has NO experience of Lyme himself) has received guidance for our son's treatment from a US Lyme Paediatrician, and has agreed to follow it, he has NOT taken the US doc's advice for treating our daughter as her symptoms are less convincing to him. We are now considering self treating her by buying drugs off the internet, which is a frightening prospect! However, WITHOUT a UK docs agreement to treat, we are totally on our own.
Both children's history as follows: Our 5yr old son was bitten as a baby, we were given incorrect advice at time of bite by British medical profession and told to leave tick attached, cover with vaseline, and no abx prescribed. He has now been diagnosed with Lyme and Babesia with positive bloods from Igenex, iritis and neuro pyschiatric problems, among many other sypmtoms. He is receiving treatment now thankfully and is slowly improving.
My worry and questions relate to my 3yr old daughter. She has no history of tick attachment, however obviously same genetic make up and lifestyle/rural exposure. We recently had Igenex test results as follows for her: Western Blot IGM 31 IND 39 IND 41 ++
Western Blot IGG 39 IND 41 +++ 45 ++
Serum PCR Genomic Negative Plasmid Positive Positive confirmed by Southern Dot Blot
Her symptoms are mild and have only been noted by me since early October 2008. The most consistant being, dry cough, pale complexion and dark under eyes. Over Christmas she developed a rash that was mottled and spread up her right leg, down her left, then up her trunk, down her arms and finished by spreading across her cheeks and nose. She is off her food. On occasions she has mentioned her throat, leg and feet hurt. Frequently she complains of feeling sick, and has been on occasions, and generally she has become more irritable.
We desperately don't want her to get as sick as her brother, however, do not wish to treat her without UK medical help (or unnecessarily).
What should we do? We would welcome any thoughts on this. Many thanks
Posts: 7 | From United Kingdom | Registered: Oct 2008
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