glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Okay, Kelmo that wasn't nice. The only agenda I have as a medical professional R.N. is to help people get well.
GaryRN is also a medical professional and although I can't speak for him I know he feels the same way.
I never knew making people aware and trying to help them get well had an another agenda. I have to wonder why you would have a problem with that. Hmmm....Just sayin.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
...Maybe you could just title these threads 'VISUAL ALERT POO STRAINER'....
Next it'll be the 'sputnik' I suppose. those are real cheap used I hear.
Charlie
Posts: 2804 | From Texas | Registered: Oct 2000
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PumaOfTheWest
Unregistered
posted
I am really enjoying all the visuals. Of course my television set has been on the blink for some time.
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
LOL Puma, that's funny. Unfortunately, some of us are quite grossed out by the visuals to say the least. One of our Lymenet members actually today after viewing them, and now feels nauseaous just at the sight of Gary's posts.
Warnings in the subject line would be much apprecaited!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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PumaOfTheWest
Unregistered
posted
Now I can understand why warnings might be a good thing. Please warn me next time you are going to post those smiley faces spraying vomit too. I don't find them pleasant. I hope that nauseous member takes some charcoal or calls their MD for help and gets over their case of nausea soon.
I just checked to be sure and it appears Gary does a good job of labeling that they are pictures so I guess anyone with a weak stomach does not need to really take a peek inside if they don't care to.
Sometimes I get a fur ball and hack it up. Normally it is from over grooming and I only have myself to blame for it. I would like to blame it on under labeling of posts on lymenet but that would not really be fair.
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I do appreciate viewpoints as well as others' acconts of success on a protocol, but I agree there are way too many seperate posts on this topic now. they should be consolidated.
I'm also surpised at the new members joining that ensorse it so strongly (have under 10 posts). It's an off way to present when you get on Lymenet. When I was new, I wanted to learn more about Lyme/co-infections/general material that may help me. Yes, some could lurk for a year and then post, but very unliklely.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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tickbattler
Unregistered
posted
You can blame me for a some of the posts. My only agenda is educating myself. I have not yet decided whether to use this protocol.
I think it is "ridiculous" (spelled with an "i") that this comment has been made. How difficult is it to scroll on by? And I disagree that they should be consolidated, as there are different issues brought up in each post with regard to the protocol.
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I thought maybe consolidating photos to a single thread would be beneficial and interesting for comparison purposes.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
I was not for two boards previously and I do alternative medicine myself but I have emailed Lou just now suggesting two boards.
The new posters on salt/c are just salt/c advocates who registered on lymenet to push it.
But generally the threads on the first page would now look bizarre to someone newly diagnosed or considering seeing an LLMD to see if their illness (misdiagnosed by a traditional doc) might be lyme. If I came on here and saw all these posts about worms, being coughed up through my nose, or gluten, or a troubled daughter cutting her hair, or some russian device, etc, I'd run for the hills. I'm not saying there should not be such posts but probably none of them should be in medical. Medical should remain for those who want to understand diagnosis and treatment, mostly with antibiotics--which I unfortunately can't do but 80% of lymies can and should.
Posts: 2276 | From united states | Registered: Jun 2004
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Why do these members who take Salt/C push so hard? Rife machines have gotten people better. The Bionic 880. Antibiotics even with anti-malarials. Why does this subset of members feel the message needs to be so strongly advocated?
I appreciate all help as I've said many times, but the background confuses me. It seems like 99% of posts made by Salt/C advocates are well about...Salt/C. Gael and GaryRN have provided background on their health history, other treatment attempts, etc. That is very helpful.
Others join and it's all about salt, paraistes, worms, etc. I don't even know what they've been through. That's kind of scary.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
I had nightmares last night that I had worms coming out of my nose and you know where....
I think the posts regarding this should be lumped together but that is up to the poster I guess. I agree that a newbie would take this and run w/it when there are other aspects of treatment that are much more important.
A newbie may get the impression that salt/C is ALL they need to get better!!!! That has been implied.
I'm not saying there isn't something to this as I am thinking of trying Humaworm myself but the salt/C topic has become the main topic right now on LN which, if I was a newbie, I would probably think "Hey, this is the what I need to do" possibly instead of focusing on the proper abx treatment.
Posts: 2541 | From Northeast | Registered: Jan 2008
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
There are a lot of posts on this right now. It is dominating the board.
I have been reading these threads, and checking out their links.
It's a bit strange to realize that there are no names associated with Salt/C (just many "we" statements).
Yet there is an e-book, which apparently contains much-needed info to do the protocol, for $29.95.
I have no problem with people selling an e-book, but it would be nice to know the author's name, and who is receiving payment exactly.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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tickbattler
Unregistered
posted
cactus,
I agree that if there is an e-book, the author should be disclosed. I would want to know who I am paying!
Did you get WeRAll1's recent post that shared the article by Dr. K that mentions the salt/C protocol? This is what I have been looking for...some acknowledgement by a respeced LLMD.
My LLMD raves about how brilliant Dr. K is, but I don't know his cure rate.
cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Just saw that one - thanks tickbattler.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Yep Tickbattkler, I asked the same thing about Dr. K in another thread. No answers yet. I don't blindly follow reputations without proof. That's why I like to see the numbers.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
I agree. In fact, I was thinking of starting the same thread so I'm glad yopu started it kelmo.
I too voted for ONE board. But this many threads about salt/c is insane.
But then again, it will probably end up like ICHT or the MP or some others. Once the fervor dies down and it becomes apparent that this is just another therapy, one that helps a subset but is no miracle cure, and even hurts some patients, the mulitple postings will evasporate.
Posts: 845 | From Eastern USA | Registered: Jul 2006
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
I would just like to clarify a few things. First of all I have been here since 2006.
My computer crashed last year and couldn't remember what my user name was, so I had to register under glm1111.
I originally found the Salt/c information here on Lymenet posted on the lymephotos site.
I had previously done many other protocols like antibiotic, herbs, IVIG etc for yrs.
It wasn't until I started the salt/c (sea salt) protocol did I see any big improvement. It literally saved my life.
Ultimately because I found it here on Lymenet. So inadvertantly Lymenet saved my life.
I personaly experienced these parasites that are photographed on the lymephotos site pouring out of me.
I believe that all Lyme patients have these parasites/worms not just a "Select Few".
I saw Garys video and sent him a pm with the lymephotos site telling him that I thought he had these parasites.
Being another medical professional he decided to use the salt/c. Obviously from the pictures he posted he is having some profound results which he wanted to share.
Debaz, who used to post here also had similar results, so she got enthsiastic about it and also wanted to share. Instead she was harrassed and left.
When I come on this board and see people still struggling my intention as a nurse would be to want to help. Hence the posting of the lymephotos site.
I have repeatedly posted that I was not pushing the salt/c, but rather trying to make people aware that PARASIES and WORMS are a MAJOR factor in Lyme disease.
I am not against any protocol as long as it works. I do know that antibiotics will not kill parasites and worms. They can be an adjunct if you choose.
I am really on my way out of this nightmare. I don't have to stress myself out trying to wake people up, it's just that I care.
The person who is selling the e-book is Marc Fett the owner of Lymestrategies. That has never been a secret. I don't know Marc and I am not registered at Lymestrategies.
I have been posting the www.lymephotos.com for awhile to make people aware. There is no conspiracy of salt/c people, plain and simple.
If you want to blame someone, blame me for posting the info.
My only agenda is to help people get well. I am sure it is scary to think that these creatures might be in your body and that would make people want to go into denial.
I do know one thing and that is salt penetrates at the deepest cellular level and will go after these infections.
If you can find another antparasitic to do the job, great. I hope everyone can get well and heal from this awful disease,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Gary and Gael, I just want to say I am not attacking you at all. I really appreciate your help. I know both of you have good intentions. Gary, you have been nothing but respectful, helpful, honest, etc. I appreciate that.
It's the newer posters that concerned me a bit because they arrived and said absolutely nothing about their history. They just were pro salt/C from post #1. That's a bit odd way to present yourself on a public forum. I think most would agree.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
I am not sure what the big deal is here. Salt/C is like a radio station; if you do not want to hear it then don't listen. No one has to click on each thread on the LN discussion board.
(So you know: I am not on Salt/C. Part of me thinks it is insane and the other part thinks it is genius. I am glad I know where to learn more if I feel the need to though, just like I am glad to know that I can find information on antibiotics and supplements.)
-------------------- enjoy the day.
-jmb Posts: 208 | From Maryland | Registered: Dec 2008
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PumaOfTheWest
Unregistered
posted
I think I am just going to have to break down and call a television repair man. No one on The House Wives of Orange County has worms coming out of their nose. If the pics disappear I am frankly going to miss them. Television these days has become way too tame. It often makes me want to take a cat nap.
Maybe we could have a special gallery here for worm pics were only people with strong stomachs can take a look. I would like to find a website with mouse photos as well.
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
quote: Gary and Gael, I just want to say I am not attacking you at all. I really appreciate your help. I know both of you have good intentions. Gary, you have been nothing but respectful, helpful, honest, etc. I appreciate that.
It's the newer posters that concerned me a bit because they arrived and said absolutely nothing about their history. They just were pro salt/C from post #1. That's a bit odd way to present yourself on a public forum. I think most would agree
This sums up how I feel quite well. Thanks seekPosts: 2903 | From AZ | Registered: Feb 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
I have to say that if I were new to learning about lyme this board, as it is now, the numerous thread with all the worm photos, would scare me to death.
Even some of the headlines are very alarming. A thread saying something to the extent of "don't open if you don't want to loose your lunch" is still scary.
What a traumatic shock to a new poster! This site is starting to look like the main support site for the Salt/C protocol. It is not an accurate portrayal of what most of us are going through nor the best way to present an introduction into lyme education.
Streamlining these threads - or linking to a poster's external blog - would really help put this into perspective. It's the perspective that is out of balance with the vast number of posts and, yes, the shock factor, too.
No one wants to see hourly photos of what is scooped out of a toilet - each time, getting a whole new thread.
The original Salt protocol site has plenty of sharp photos. We get the picture. Anytime a link to a graphic photo can be used that would be so appreciated, rather than having it right in the thread.
-
[ 07. January 2009, 08:45 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
Gary and Gael,
I appreciate you both clarifying where you are coming from with this. I think you telling your stories in more detail is what a lot of us needed to hear to know what your intentions are and I feel you have good intentions.
My big concern was/is for the newbies that are so vulnerable and don't know where to start w/treatment. And, quite frankly, I guess I'm not really sure where anyone should start with treatment anyway. For all we know, this could be the answer. Who really knows anything for sure w/this disease?!
Posts: 2541 | From Northeast | Registered: Jan 2008
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Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
Dear Friends,
Thanks for the interesting discussion.
I was about to try the Salt/C protocol at one point, but did Buhner's herbs instead. That didn't work for me (had a very severe reaction), and now I'm taking Mepron/Zith.
As a "newbie" at one point, I wanted as much data about as many different options as possible!! This is the thing that Lymenet really provides! With over 400,000 posts that are searchable, you can find out about pretty much anything.
Sure, the main board tends to get focused on one thing every once in a while--the Bionic 880, a particular antibiotic, Babesia, the Marshall Protocol, Salt/C. So what? The huge package of newbie links is there for anyone who wants an overview.
The strength of Lymenet is that the people posting here want to help. Part of that is sharing our own stories, because the suppression of the facts of Lyme and its chronic effects renders medical "opinion" questionable at best. Part of that effort to help is sharing our enthusiasm about something that is working for us personally.
Cautioning people about things that haven't worked for some and wanting either documentation or first-hand experience is also part of the effort to help others.
Sticking to the facts of the situation helps to keep the fire of helping going.
Best,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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I'm confused. I haven't seen a newbie push salt/C whatsoever.
I've seen one asking questions about it than on her own research decided to start it and list her progress.
I don't have a huge amount of posts. I've been a member since 2002.
I also don't see a large number of threads On Salt/C. I see a huge amount on antibiotics. I can't take them. So I pass by them. Why can't other people do the same with salt C?
Makes no sense to me.
Posts: 258 | From San Diego, CA USA | Registered: Sep 2002
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today after viewing them, and now feels nauseaous just at the sight of Gary's posts.
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