richedie
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posted
Has anyone been folloeing the lawsuit in Connecticut concerning the legitimacy of the IDSA's current published (BOGUS) Lyme treatment guidelines. They aren't allowing any Lyme doctors on the panel! So, basically, the entire thing is fixed! A-holes. I would like to find where these inhuman people live, I want to meet these people, just once! I am so sick of everything coming down to greed and profit, nobody gives a f%#k about human suffering. I hope they all get Lyme and see for themselves what a HELL it is.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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TerryK
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I'm feeling the same way that you are right now. I am reading Cure Unknown and just finished reading about a baby who died of lyme!!
The baby tested positive for lyme, would improve greatly with lyme treatment and then would decline when taken off. This happened several times but they would not extend treatment. It is horrific to read of such an atrocity!!!
The book is great for bringing home the complicity of what they have done.
I am not one to wish ill on anyone, no matter how awful they are but this has brought that horrible feeling out in me and I really dislike the way it feels.
The IDSA has made statements that they are certain that no changes will be necessary to their guidelines. I pray to god that they are wrong and that someone who has half a brain and some compassion is part of the procedure.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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2roads
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posted
You have a right to rant.
INTEGRITY.....it no longer exists.
2roads
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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feelfit
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posted
It is called "cover thy a$$". They know what has been done. What is still being done. And what will continue to be done.
They have all the power and it stinks.
Posts: 3975 | From usa | Registered: Aug 2007
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seekhelp
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posted
Total BS.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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richedie
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posted
The IDSA! Where are they located? Can I go meet with the people who make these decisions? God, I want to meet these scum buckets face to face! Don't people see how some and many people are getting better on treatment? All they have to do is open their stupid eyes and read an Infectious Disease Text book and by the basic formula in their own books states you must treat for the life of the bacteria and beyond as they do for Syphilus(sp?) so why not treat for longer periods knowing that Borrelia and these other bugs are long lived organisms! Doesn't anyone talk about POOR testing? POOR Diagnosis? POOR treatment? The fact that various strains may not show up on a test and may require a different treatment regimen? It is SOOOO OBVIOUS something is being covered up, a child could see that!
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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posted
I don't want to bad mouth anyone cause after years of reading i'm just more confused than ever. These are smart guys who are not completely ignorant to medicine and just make this stuff up.
DO I THINK THEY"RE RIGHT?????? Absolutely not.
So of course there's a BIG problem. But let's not make them out to be stupid people. Corrupt, ignorant, selfish, greedy, sure...but they're not uneducated to science which frustrates me the most. (I sound nice now lol.. but yes i walk around wishing i could knock these guys upside their heads lol)
Here's something else i'm interested in if anyone knows. Is LYME even in their top ten things of concern so to speak. Fact of the matter is most people that have lyme take their meds and are fine. CHRONIC LYME is the problem.
But that's to us. A small group. These guys deal with a bunch of diseases i'm assuming. I mean how much do they really even care about lyme?
Posts: 105 | From east | Registered: Nov 2008
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richedie
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posted
But we aren't a small group! They say it is easy to treat...yes, if you catch it early! What about the poor saps like me who they took over a year to diagnose and I had to go out of state to find a doctor that could help. Now, I have it and it is HARD to get rid of - so much for easy treating! They may not be stupid, but they act stupid and make themselves out to appear stupid! All someone has to do is look through ANY Infectious disease text book and it will tell you a disease such as this is a clinical diagnosis! Even the CDC says their test is NO GOOD for clinical testing, period! And then you can further see the protocol for treating an infectious disease and they throw this out the window for Lyme! What the!?!? It makes noooooo sense, anyone can see this. Doctors tend to be drones just doing what they are told. I am so glad I found a smart, sharp and open minded doctor not far out of state.
They are so obvious and yet they don't get caught. IT WILL catch up to them, if I have to go beat the door down.
I wrote a long letter to the IDSA tonight and asked someone to call me! Cowards...
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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Not to worry, but at the rate that this disease is spreading they will all catch it or at the least someone in their immeadiate family will probably get it and then we will see how well their educated minds start working.
It does not matter how well your educated mind works if you have no ethics.
Karma is a scary thing.....
-------------------- aka: Lyme Warrior
In order to do "real" science, you have to have a "real" conversation with nature.
Well Behaved Women Rarely Make History!
"Just Demand your Rights" Posts: 869 | From nor - cal | Registered: Apr 2008
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Tracy9
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posted
I have been saying exactly that, liesandmorelies, for a while now.
I now I am Pollyanna, but with the oversight that is supposed to be in place for this process, how can they get away with more corruption? Anyone know???
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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bettyg
Unregistered
posted
go to ACTIVISM and read the post that KRIS KRAFT posted of Colorado lyme post, and IDSA panel is mentioned in there.
they will be ready to begin soon i think is perhaps how it was worded ??
address the fact that our LLMDS ARE NOT permitted to be on this board, and state WHY NOT!!
how about using your rant by providing accurate info on a REPLY back to letters to editor about this LONG, DETAILED article that i copied over here since i couldn't remember all the details i would have addressed in my feedback i posted.
it's a way of educating the public more !!
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TerryK
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posted
If you want to understand more about the history and politics of lyme disease, read Cure Unknown. It will make it crystal clear just how insane the accepted dogma on chronic lyme disease truly is.
mr al, Yes, I do think that lyme is in the top 10 concerns and maybe even one of the top concerns for the small group of academics who are responsible for chronic lyme being considered nonexistent.
mr al wrote: Fact of the matter is most people that have lyme take their meds and are fine. CHRONIC LYME is the problem. But that's to us. A small group.
I disagree. Lots of people who have lyme are never even diagnosed or treated for lyme disease. Especially if you live in States or in a Country where it is not recognized.
For example, my State is considered endemic by the CDC but the majority of doctors here say we don't have lyme disease. Instead we have way above the National average for MS. We have lots of fibromyalgia, CFIDS etc..
How many people with fibromyalgia, MS, CFS, ALS, Parkinson's, alzheimers etc. etc. actually have lyme at the core of their illness? I have no doubt that there are MANY!!! Many more than any of us could fathom.
As someone who has some training in logic, it has been clear to me that logic is lacking in the thinking of most Medical Doctors.
I must say though that I am flabergasted at the utter lack of logic that has been used from the beginning in the understanding and treatment of lyme disease.
The fact that those in control of lyme disease have been allowed to get away with such clearly flawed thinking indicates that there is something very wrong with science as it is used today.
After years of reading about lyme disease and trying to understand the opposing arguments, I couldn't help but think that I must have missed some big pieces of the picture.
I was sure that the opposition must have something to back up their adamant position on chronic lyme disease. Reading Cure Unknown has put that notion to rest.
They have nothing but their unfounded beliefs to back up their positions. They willfully ignore the fact that not enough is known to make the conclusion that chronic lyme does not exist and in fact they ignore the evidence that does exist.
All the while, their stance allows people to be denied treatment. The result is untold numbers of people who are living a life of horrific suffering and who are dieing of an illness that could be treated.
It really is disgraceful. Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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richedie
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posted
yes, I am referring to general Blumthal's case against the IDSA. My LLMD told me they will not be allowed to have anyone sitting on the panel, so the LLMDs now feel nothing will change since they will get their way. Apparently the IDSA is behind this new rule. If you have made a certain amount in your practice on Lyme treatment, you will not be considered on the panel. WTF! Betty, I will look at your post and write some letters.
I don't know if their family members or themselves getting Lyme will help, most of them end up writing it off as Fibro! Fibro, what is that? A bunch pain for which they have no explanaition, even though the number one theory in this are is that all such diseases are rooted in infection.
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posted
For a long time I wondered whether their position was based on ignorance or corruption. Finally, since they have had ample explosure to the facts provided from our side, I had to conclude that it was deliberate. Not stupidity, but deliberate and intentional harming of the public by their stance on lyme disease. Causing illness, death, and financial ruin to patients. This is pretty much the definition of evil.
And if you analyze their guidelines you can see just how intentional it is.
Posts: 8430 | From Not available | Registered: Oct 2000
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richedie
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posted
This is the response I received after emailing the idsa!
"I'm sorry to hear you've been sick, and glad to hear you're doing better now. Unfortunately, many doctors aren't aware that Lyme disease is the most common vector-borne disease in the United States. I've heard many stories like yours of people who were not diagnosed for a long time.
You mentioned treating syphilis vs. treating Lyme disease. While both are spirochetes, what works for one will not necessarily work for the other. Our Lyme disease guidelines--and all of our guidelines--are based on a careful review of the scientific evidence. So far, we haven't seen any evidence that longer treatment is worth the risks. (I'll get to the risks in a minute.) The National Institute of Allergy and Infectious Diseases--part of the National Institutes of Health--has sponsored several studies on the issue. There's a good summary of the results on their website: http://www3.niaid.nih.gov/topics/lymeDisease/understanding/chronic.htm
Now the part about the risks. We're already dealing with an epidemic of antibiotic-resistant bacteria in this country. You may have heard of a bad bug called MRSA--methicillin-resistant Staphylococcus aureus. It's now the leading cause of hospitalizations for skin infections in some parts of the country. Overuse of antibiotics is one reason we're seeing more of these infections.
Equally serious are the cases of people who have had horrible experiences on long-term antibiotic therapy. I've spoken with a man who had terrible reactions to the medications. One woman almost died because of a bloodstream infection she developed in the catheter delivering the antibiotics into her bloodstream. Both of them turned out to have something other than Lyme disease. An unscrupulous physician had taken advantage of their suffering in order to make large sums of money treating them unnecessarily with antibiotics. I think your charge of greed is misplaced--IDSA guidelines for treating Lyme disease recommend against this treatment. If we wanted to make money, we'd recommend FOR long-term antibiotic therapy--not against it.
Our physicians practice medicine because they want to help people feel better. If we believed long-term antibiotic therapy would help patients more than it hurt them, we'd be all for it. Right now, we don't believe the evidence is there. That can change. We'll keep an open mind.
I hear the frustration and suffering you've been through. I can only imagine what it's like. I wouldn't wish it on anyone. I'm glad you're doing better, and I hope you remain healthy."
Can you all say, BS!
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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seekhelp
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posted
Why on earth is the same nightmare story sited in their arguments? It's a broken record. How about inclusion of the person in a wheelchair Dxed with ALS now living a normal life? The person too ill to work who now can? So on and so on....
There is something very, very wrong here. That's all I know. I want to know EXACTLY how large their studies were. I believe strings are pulled at higher levels and they are just saying what they are told to or suffer consequences.
Just let them live 1 week or 1 hour in our bodies. That's all I want. Then, tell me 21 days of Abx is enough.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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TerryK
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posted
Thanks for trying. It is clear that this person is clueless as to the horrific illness that is chronic lyme. Steere considers these symptoms to be the "minor" symptoms of lyme disease.
Of course he would change his mind if he himself experienced these "minor" symptoms. Does the doctor who responded to your letter have a clue that suicide is a high risk for lyme patients due to the unbearable suffering that these "minor" symptoms cause? I doubt it.
Years ago, the CDC had evidence through tissue tests that they themselves ran that lyme disease could survive hefty doses of IV abx.
Their response to you is pure BS.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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richedie
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posted
Seekhelp,
Interesting your comment on ALS. I know a guy who's good friend from Connecticut was just diagnosed with ALS. He is a big outdoorsman in New England. Could it be? I believe most of these type disease are bacterial infection based so who knows. They won't listen to me when I tell them to look into Lyme and/or coinfections. I stopped trying with people and instead concentrate on taking care of myself and hopefully continue some activism work.
Also, one of the tests they sight that supposedly provided evidence that long term treatment does not help was a study where they gave patients abx for 2-3 or 3-4 months with no significant improvement! Heck, it took at least 5-6 months before I noticed a small improvement.
Terry, you said, that years ago, the CDC had evidence through tissue tests that they themselves ran that lyme disease could survive hefty doses of IV abx. Did they do any similar studies for oral abx? A lot of people get better on oral so there really are varying degrees of this. Either way, they need to recognize this and stop lying and denying.
Oh, and I did mention the suicide. I mentioned I have been suicidal many times as a result.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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bettyg
Unregistered
posted
RICHIE,
WHO signed your letter? at least they acknowledged it even if it was full of HOG WASH!
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One woman almost died because of a bloodstream infection she developed in the catheter delivering the antibiotics into her bloodstream. [/QB]
What does this have to do with treatment????????/
Sounds like an IV problem not lyme treatment problem. I'm gonna go bang my head against a wall.
Posts: 105 | From east | Registered: Nov 2008
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posted
I've seen the early papers of these IDSA guys written in the '80s and '90s where they recognize Lyme to be a relapsing disease. They know what's going on and they're not willing to do anything about it.
Posts: 13116 | From San Francisco | Registered: May 2006
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lymewreck36
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Member # 4395
posted
I think someone needs to point out to these IDSA people that the treatment for cancer can kill you too, but we don't tell cancer patients to go home to die without trying.
So what's the difference. It is informed consent from the patient that matters, not what a doctor decides to impose on us.
They even say that x-ray can cause cancer and other problems, but every little bump and bruise can get an x-ray.
And are really saying that because there is a possiblity of someone getting an infection in a hospital, all lyme patients need to suck it up and die slowly, for the good of the hospital.
Such lame excuses and no one shines the light on the stupidity of them.
Mary in Switzerland
Posts: 1032 | From North Carolina | Registered: Aug 2003
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
Bettyg, it was this guy.
Steve Baragona Communications & Public Affairs Officer Infectious Diseases Society of America HIV Medicine Association 1300 Wilson Blvd. Suite 300 Arlington, VA 22209
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posted
Not a doctor, in other words. Their PR guy.
Anyone who thinks that if these guys or someone in their families gets lyme, they would change their minds.....is wrong. This has already happened and they just get whatever treatment they need and keep their mouths shut.
And look at George Bush. No one would ever tell us how long he was treated, yet we got every gory detail about his colonoscopy.
Posts: 8430 | From Not available | Registered: Oct 2000
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seekhelp
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posted
I agree 100% Lou. Dead on.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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bettyg
Unregistered
posted
richie, thanks for name of person who wrote/sent you the hog wash letter !!
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TerryK
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posted
Rich wrote: Terry, you said, that years ago, the CDC had evidence through tissue tests that they themselves ran that lyme disease could survive hefty doses of IV abx. Did they do any similar studies for oral abx?
I don't know. It wasn't a study but work that they did in conjunction with a doctor who was treating lyme. It was mentioned in Cure Unknown which details some of the history with lyme, the CDC and IDSA.
Rich wrote: A lot of people get better on oral so there really are varying degrees of this.
Yes, I agree. In my opinion, the course of illness varies greatly depending on length of infection, strain, co-infections and a persons genetics. I'm sure there are other variables too.
lou said: Not a doctor, in other words. Their PR guy.
I'm sure the rhetoric comes from one of the IDSA ducks. It's the same BS that other people have posted from them.
Lou wrote: Anyone who thinks that if these guys or someone in their families gets lyme, they would change their minds.....is wrong.
You may be right but I do know that a number of doctors who treat chronic lyme disease have had lyme. Nothing like first hand knowledge to change ones mind. That said, some have their own agenda and are incapable of empathy.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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posted
Don't the guidelines conclude that Chronic Lyme disease doesn't exist?
and late stage lyme is taken care of with a few weeks of abx?
If they are saying now that Chronic Lyme exists and if they have such a problem with long ABX treatment.
Wouldn't that be all the more reason to make people aware and help fund research to come up with a safer treatment plus accurate testing.
After my reading and what I've witnessed myself lately as far as "respected professionals" go.
I believe they are corrupt.
Posts: 258 | From San Diego, CA USA | Registered: Sep 2002
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TerryK
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Member # 8552
posted
Yup Fancy, the IDSA guidelines conclude that Chronic Lyme disease doesn't exist.
Yup, the IDSA feel that late stage lyme is taken care of with a few weeks of abx.
Fancy wrote: If they are saying now that Chronic Lyme exists and if they have such a problem with long ABX treatment.
The IDSA call the symptoms left after what they consider to be adequate treatment, Post-Lyme Syndrome. Steere claims that post lyme Post-Lyme Syndrome is some immunologically triggered disorder that was caused by lyme disease but from what I've read, he hasn't found much to support his theory. Still, it is accepted as fact by the CDC and IDSA and the medical community at large.
The IDSA claim there is no evidence of infection after their prescribed abx treatment even though there are animal studies and other evidence that prove that there is.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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quote:Originally posted by mr al: [QB] I don't want to bad mouth anyone cause after years of reading i'm just more confused than ever. These are smart guys who are not completely ignorant to medicine and just make this stuff up.
You're KIDDING, right?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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richedie
Frequent Contributor (1K+ posts)
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posted
I don't get it! If someone has symptoms and gets treatment and gets better, isn't this proof enough? If this happens to hundreds of patients in a doctor's practice, this is even more proof, right?
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quote:Originally posted by mr al: [QB] I don't want to bad mouth anyone cause after years of reading i'm just more confused than ever. These are smart guys who are not completely ignorant to medicine and just make this stuff up.
You're KIDDING, right?
No not at all. I know everyone here just wants to think these guys are plucked out of thin air but fact of the matter is they're very educated doctors. Look, I dislike them and think there's corruption going on myself. I'm sick like every last person on this site.
There's a lot of mad people on this site that like to do name calling, that's fine but we need to get past that. That's all we have now and it's gotten us no where.
Like i said, i don't like these guys, but if you think it was between being a garbage man or a doctor and they flipped a coin you're kidding yourself. These men are educated they're just morally corrupt.
Posts: 105 | From east | Registered: Nov 2008
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posted
I do, but calling them uneducated people is simply rediculous. I think it turns into a bunch of kids calling each other a stupid head lol.
They're smart people who deal with science. We need to beat them at their own game and get smart people who can prove them wrong with documented science. That's the only way this will play out in our favor in my opinion.
Posts: 105 | From east | Registered: Nov 2008
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posted
Of course we need big studies, and that will be key. But in the present environment it will not be enough. Not nearly enough.
You can get the greatest science in the world and the folks in charge will ignore it or dismiss it. It won't matter how great it is, as, unless some seismic shift occurs, I doubt they'll let it be published anyplace where it will be of any use. There is too much at stake. The average MD will never see it. And our plight will not change.
That recent piece (in the Journal of Neuro-inflammation or something), for instance, shows Lyme persistence without a doubt. But the authors, in their conclusions, used so many qualifying words -- "may" "possibly" "if" etc. (sometimes three in one sentence!)-- so as not to ruffle too many feathers, that it fell a mile short of spelling out what the experiments clearly showed. And the average doc, who will never see this obscure journal anyway -- but assuming s/he did -- will walk away with the same opinion they came in with.
I actually think that the opposite of Al's statement is true. Our side has been like shaky nrevous lambs, trying to appease the IDSA folks, wanting to be liked, and making very few waves while we try to convince them to play fair, which will never happen. As if we could all be friends. And using that strategy they have beaten us at every turn.
Our side should have, in my opinion, gotten much nastier and harsher and more aggressive long ago. We should take tips from the way the enemy is playing the game. We should have spent some of the cash raised on giant PR campaigns to discredit the other side, bombarded the public with specific studies -- institutional screw ups, lies, science, cover ups and so forth -- so that the average citizen, or government official, or family doc, when they hear the word Lyme immediately sees it from our perspective. Not theirs.
We are in a war, huge institutions and huge careers swing in the balance, if anyone thinks they will shift positions with being crushed they are delusional. I know less than nothing about law, but imagine the amount of money in lawsuits that places like Yale and the others would face, should the truth come out, would be staggering.
There needs to be many layers in the Lyme fight, from mainstream to fringe. It's the fringe, if they're aggressive enough, that help move the fight, broadening the range of debate, so that the "more rational" players can be taken seriously. You need 300 lb. linemen so the quarterback can throw the ball.
That's the way I see it anyway.
Posts: 845 | From Eastern USA | Registered: Jul 2006
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
I agree, aggressive is the way to go or they walk all over you. Hardball or nothing. Heck, I almost want to drive to their offices myself. I can't stand it any longer. Why not bomb the airways with adds talking about the science and how "their" science from their poorly constructed studies show nothing and do not line up with the evidence. Where are these studies they talk about that prove their point? Just because they are educated, doesn't mean they are not idiots. Book smart is one thing.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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quote: Why not bomb the airways with adds talking about the science and how "their" science from their poorly constructed studies show nothing and do not line up with the evidence. Where are these studies they talk about that prove their point?
okay see this i agree with. I'm for being agressive, but smart. I agree we need to financially get it together and question their findings and show ours.
But i like i said we need to show the reports and discredit theirs and prove ours. Trust me i'm with you guys. But we need to PROVE they're wrong not just say it.
A policeman may know who commintted a crime. They could have no doubt in their mind, but without evidence a crook walks. These guys are crooks and I don't feel we have enough evidence to prosecute them on a LARGE scale even though WE know they're guilty. I hope that makes sense
But yes i agree it will take a dramatic change in our financial situation to make an impact and that's what needs to be done.
Posts: 105 | From east | Registered: Nov 2008
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
I am by nature a very peaceful and fairly positive person, practically a buddhist. However, if you continue to trap me in a corner, lie to me, and deny me what I need to get well - I can only take so much before I come out swinging. It is like that Stanford prison experiment where they took ordinary people and made them into officers and inmates and the inmates actually became inmates/criminals due to the way they were treated and puniched. They took on new personalities. Scary, what 'they' are doing to us.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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That's what I thought. I forgot about the post lyme theory.
I had high hopes in the beginning of this but with all the politics and greed involved. It's hard to stay positive.
Posts: 258 | From San Diego, CA USA | Registered: Sep 2002
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It's a broken record. How about inclusion of the person in a wheelchair Dxed with ALS now living a normal life? The person too ill to work who now can? So on and so on....
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