posted
or pharmanaex? i copied the protocol and is it true that we need to take like 30 supps a day? and herbs to get rid of this thing?
i dont want to have to spend my money on things that dont work . i bought this liquid ,its called lyme d..didnt do a thing..
.I was out only 20 bucks bu still.... then i tried the teasel root...nothing..i need something that will talk this pain away and give me sone hope....is that too much to ask for??
what does everyone out there take for the pain in their joints ... well it s in my shulders and joints and not my hip joint but the trochanter which i was rx with bursitis and i no its lyme ... :(please help me
Posts: 92 | From bethel, ny | Registered: Jan 2009
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I've not tried Researched Nutritionals or Pharmanex but have heard either one is good.
I don't know of anyone who can tell you exactly what is needed to get rid of Lyme. There are some pretty big claims made, but if there was a magic bullet there would be no need for support groups like this.
I'm currently going the mutivitamin/mineral and herb route, and will continue as long as it seems to work,
Asfar as joint pain, I take glucosamine HCl, green tea extract. What are you taking for inflammation?
30 supplements a day seems like a lot. It's possble to take too much of a good thing.
All this can get very confusing. You just have the attitude that you will beat lyme and keep going until you find what works for you.
All the best.
Posts: 51 | From Reno, NV | Registered: Dec 2008
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I'm sorry you are in pain. I had severe pain for years with lyme and co-infections so I know how awful it can be.
The best thing you can do to deal with lyme and co-infections is get an ILADS LLMD. You can go to the seeking doctor section of this website and ask for a recommendation from other lyme patients. Put your location in the subject line. http://flash.lymenet.org/scripts/ultimatebb.cgi/forum/2?
If you can't manage that then consider Buhner's herbs, see his book "Healing Lyme", The Cowden protocol or Zhang's protocol. Zhang also has a book but I can't remember the name off hand.
It depends on the person but for most people, it takes more than a few supplements to deal with lyme and co-infections.
There have been lots of discussions here about things you can take to help with lyme and co-infections. It takes time to research but it is necessary in order to find effective treatments.
Edited to add: Which products of Researched Nutritionals or pharmanex are you thinking of taking for pain? Which protocol are you thinking of using? Can you provide a link please? Maybe someone can give you feedback on specific products.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
I just started taking supplements from InnoVita & I'm feeling a big difference in just a few days of trying them. They are a very different concept of supplementation.
You have to get them from a practitioner, though.
I've taken sooo many supplements over the past 30 years. I think this is the real deal (for me, anyway). My pain level has dropped significantly. I stopped taking everything else so I could see if they were working.
I don't sell them nor do I make any money referring them.
.thanks to everyone for all of your help...the pain is so bad it is starting to affect my brain as afar as depression goes.
.i feel like there is no lite at the end of the tunnel when i used to have so much hope. Everything in my life is going downhill..
.and i no that life does not have to be like this.
.Im going to give innovita a whirl ..i like something that starts to work right away coz then i sart having hope again. thanks so much for your support!
Posts: 92 | From bethel, ny | Registered: Jan 2009
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posted
i do not take anything for inflammation! please send me some sugestions!
i take percocets now and i feel like a walking zombie(foreal)
i am starting to take more and more percs too coz what used to be effective is not now..
im afraid of getting addicted. i cannot even get out of bed in the morning to go to the bathroom. I do but i am so stif like im an old lady..
does anyone in here take percs for pain? I do beleive that percs are ok for acute pain but not for long term.
feedback please?
Posts: 92 | From bethel, ny | Registered: Jan 2009
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Sent you a PM.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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I've not used the "Researched " products but I have used Pharmax. They are good quality but there are other good quality supplements on the market, too.
That link is to Dr. Burrascano's supplement suggestions (2008). Yes, his suggestions are excellent. However, it is most important to be sure that you are FIRST getting proper treatment for the infection.
Without treating the infection, all the supplements in the world will do nothing in the long term. With treatment for infection, see what he says are required and start at the top for most important.
Most of us have to limit - but his evaluation is one for optimal success. Singleton's book further explains what these do.
Percocet can be very hard on the liver and it depresses the nervous system. While it may help decrease pain, it can put more stress on the body in other ways. It's best to discuss it with your doctor.
If you can only get two supplements, Magnesium and fish oil are the best things that help reduce pain but, ultimately, treating infection is the key.
The most important thing, as TerryK mentions, is to get to a good LLMD. You will need individualized treatment plan. You may need to be assessed for other tick-borne disease (TBD).
Singleton's book addresses many of the system dysfunctions that result from lyme/TBD and he discusses certain support measures in great detail.
The other books below were mentioned by others - you can find our more at the links:
==============
Find your local SUPPORT GROUP for help in finding a doctor, etc.
posted
this is for the post about innovito to the lady that posted it . i tried to pm u but your mail box is full!!
yes please i would need his info..pain is my worst symptom too.
its not the fact that i might become addicted, i dint mean it that way.
they make me feel high but not in a good way. My other problem is that i have a hard time sleeping.EVEN with sleeping pills!!
sometims i take them and they do releive the pain but then sometims i take them and they dont! thats when i get so depressed.
.yes u cannot function with pain 24/7..i dont really remember the last time l enjoyed myself or went out of the house for fun or even laughed...
yes true chiros arent that expensive so please elt me know where to go is he in ny? im in NY..ok ty for everything.
Posts: 92 | From bethel, ny | Registered: Jan 2009
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posted
i do not have any money to get a ll doctor. they all want like 1200 dollars and i just cant get a hold of that kind of $$..im going to try to get into the ny presb hospital. they have an inpatient program there .wish me luck.
Posts: 92 | From bethel, ny | Registered: Jan 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Some LL doctors do take insurance - I hope the place you go works out - and also your local support group may have some names of doctors who are at least lyme friendly and may work with you as they learn more.
I'm sorry that this is such a rough ride right now. (I got your PM and do understand).
I wonder if you could contact the closest support group near you and see if they have the books I linked above to loan.
You might also request them from the library - or even ask them to purchase them.
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
If you're talking about transfer factor, then yes, I have tried and do take Researched Nutritionals Transfer Factor.
Not sure how much it helps. I'm sure it's helping some, but I don't really notice anything from it. The first day I started it, it made me herx. And then I believe it made me herx a couple other of times.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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