posted
What does an IGG VCA EBV titer 1:3795 mean because the doctors say nothing can be done about it and was wondering if this could be another reason why I feel so sick and weak.
Posts: 5 | From agoura ca. | Registered: Jun 2008
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Yep, could be part of your problem.
Here is a link to an article about chronic EBV infection:
Patients with "high" antibody titers against HHV-6 IgG ≥ 640, EBV VCA IgG ≥ 640 and detectable EA Ab at 1:160 or HHV-6 IgG ≥ 320 if EBV VCA IgG ≥ 1280 and has detectable EA Ab at 1:160 (measured by the average of a minimum of two time points obtained during screening at least 3 weeks apart).
You can also view two videos about EBV infection on the HHV-6 website www.hhv-6foundation.org There is a link on the home page:
"View videos from the Symposium on Viruses in CFS"
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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posted
Thanks,yes I read that but my doctors won't test me for any other viruses because they said ins. won't pay for PCR tests.I'm one of the people that was told I have MS last April went on interferon for 3 mos. until I got to the MS specialist who said no MS,stop avonex,then did extensive testing including lyme which turned up 41 band only,next neuro did more testing came up positive with 23 band WB Quest and told me I have classic lyme.I have not done Igenix testing yet due to finances. I have been sick since Oct 06 after being in Iowa for 3 wks and having what I thought was a bruise on leg but it did not hurt just itched like crazy then white ring and scaly skin around punture marks but did not see what bit me.For Betty G., I'm from Webster County IA. but have had ticks on me from dog and lots of outdoor activities living in California for twenty years.I have been to 18 doctors,all of which 3 even acknowledge I could have lyme.Only on doxy for it but feel only small improvement for some symptoms.The constant vertigo and eye tracking problems and pain are wearing me down.
Posts: 5 | From agoura ca. | Registered: Jun 2008
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Well, you could ask for IgG and IgM antibody tests instead of PCR. Your EBV titer is high, I would not ignore that.
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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posted
Yeah,I did that but they both said if you want the test I would have to pay for it myself,HMO doctors.I tried to change insurance but the MS thing is on my medical records and original neuro won't take it off even thought he was wrong,something about getting sued.I will see the doc treating for lyme so I'll take the info from Dr. Montoya study to try to convince him to get it approved and hope some anti-viral meds.He studied at Yale with Steere and knows about the lyme controversy and dosen't care for standards set by them so he stays in the middle,but won't push it too far to lose his license for 1 patient.He knows I have learned alot about lyme,MS and other infectious stuff and wants to help me but ha shis hands tied by ins companies guidelines and he is the only doc I still see since I first got sick and I do like his bedside manner,but I just want to feel better like everyone else here and will push it as far as I can with docs.Most of the docs I have seen think I'm a hypocondriac or want me on anti-depressants which I refuse to take because I'm sick not depressed but sometimes I feel depression for short periods of time,like at night when the pain won't let me sleep or the headaches won't go away.I thank god that we have state disability ins here California because I have needed it three times since I got sick,I feel bad for the people that have nothing like this to fall back on when they can't work,my son and I would be homeless if we did not have this benefit.Thanks for your reply to my first post.
Posts: 5 | From agoura ca. | Registered: Jun 2008
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Hi Exhawk.
If you don't mind breaking up your text into sentences,
You will get more responses.
A lot of member here are unable to read text without spaces.
Neuro Lyme issues.
My EBV titers, CMV titers, HHV-6 titers were all very high.
I did 8 months of valcyte for them.
It isn't cheap.
I have insurance so my co-pay was only 40.00.
The medicine costs 4000.00 for 30 days.
You didn't say how long you've been on doxy.
You may have co-infections and that may be what
Is holding you back from feeling better.
While my LLMD considers EBV and the others to be a type of "co-infection",
A Lyme Literate Medical Doctor could diagnose
You based on symptoms not bloodwork for things like bartonella and/or babesia.
Especially if insurance will not pay for tests and you don't have the money.
My LLMD diagnosed me based on IgM band 23 (Quest)
Having 54/75 Lyme symptoms,
And having babesia and bartonella symptoms as well.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
If you live in Agoura CA, you are not too far from an ID doctor who treats chronic fatigue syndrome. His speciality is enterovirus, but he would do a good job of evaluating your situation...and he would not make you feel like a hypochondriac!
His name is Dr. Chia, and he is in Torrance, CA. Here is an article on him:
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